Oh Hoagie, hugs to you. I wish I had an answer. I do have prayers.

Hoagie sure sounds like lyme and his friends are messing with your nerves. Quite common unfortunately.

Antitox II and Burbur/Pinella are excellent for detoxing nerves and brain.

You're only 2 months into treatment unfortunately most folks get worse during this time especially if you've had it for a while. My wife did 1 year of lyme focused treatment and went nowhere cause babesia was her primary symptoms and also blocking healing against lyme.

For example my wife is 3 1/2 months into babesia focused treatment and she's worse than ever. These pathogens are hard to eradicate and are all over our darn bodies doing their thing.

The only things you can try and increase detoxing, lowering whatever killing medicines you're taking so its more manageable, and/or look at some type of disability at your job. I did look at disability when i went through a very rough stretch and i was surprised how easy it was to obtain (at least through my employer).

you were considering trying DMSO, please do it. its really amazing stuff.

Hi Hoagie,
I am so sorry you are suffering through this. I now it has to be very difficult to face this situation. You and your llmd just need to figure this out and soon.

If the treatment is causing this intense reaction to escalate I would call your llmd and definitely discuss backing off the treatment and getting your body and nerves/brain function at a more stable place.

Back on 10/3 you posted that you were getting numbness and starting to have issues walking did the numbness go away or has it migrated anywhere else?

Like Girlie and Rikki said you need to lower the toxins and maybe the treatment.

The killing of these infections can be very hard on the body.

Hoagie, I would also ask your llmd about other illness besides the three B's, it could be something else causing this. There are other co infections I would want to be sure.

This site describes many of them.

http://www.lyme-symptoms.com/ChronicCoInfectionSymptoms.html

Just trying to help, hang in there, there has to be an answer or solution to get this better.

Take care, Jo

Girlie said...
Hoagie - are you detoxing? Sounds like you're body is flooded with the toxins from die-off.

i think - whatever you do, you should be taking something for brain inflammation and a binder.
A couple ideas:

- Jernigan's Neuro-Antitox II - CNS/PNS

or

Nutramedix Pinella - Nerve/Brain Cleanse (and you can pair it with Burbur for more detox)

Going to research these and get one. Thanks for posting.

Lapis_29 said...

Hoagie said...

Lapis_29 said...
you were considering trying DMSO, please do it. its really amazing stuff.

I really want to. But I am a bit scared because of the test saying it caused inflammation of mitochondria. If that happens, I'm toast.

I am on another forum whre ppl are doing DMSO for various things, so far zero negative side affects (other than topical skin issues). none.

all good results. its truly incredible stuff.

Can you list things it improved for you?

goshawk said...
Hi Hoagie,
I am so sorry you are suffering through this. I now it has to be very difficult to face this situation. You and your llmd just need to figure this out and soon.

If the treatment is causing this intense reaction to escalate I would call your llmd and definitely discuss backing off the treatment and getting your body and nerves/brain function at a more stable place.

Back on 10/3 you posted that you were getting numbness and starting to have issues walking did the numbness go away or has it migrated anywhere else?

Like Girlie and Rikki said you need to lower the toxins and maybe the treatment.

The killing of these infections can be very hard on the body.

Hoagie, I would also ask your llmd about other illness besides the three B's, it could be something else causing this. There are other co infections I would want to be sure.

This site describes many of them.

http://www.lyme-symptoms.com/ChronicCoInfectionSymptoms.html

Just trying to help, hang in there, there has to be an answer or solution to get this better.

Take care, Jo

The numbness has actually subsided within the past few days. But the walking has continued to decline since before treatment even.

I have a couple of theories...

I tested negative for Bartonella, but I am positive I have it. And I contracted it 5 years ago through a cat bite. I believe that is my major issue. I am going to call my Dr tomorrow and have him prescribe me Rifampin. I am currently on Mino, Zith, and Flagyl. Don't think I'm really hitting that bart.

Also, I have some dental issues that need attention. I had an infected tooth pulled last Monday. That may be causing some issues. I am seeing a biological dentist tomorrow to look at my fillings and a root canal I had done just before I started noticing my walking issues/

I think my body has been overrun at this point. Between the 5 years of undiagnosed bart, the 14 months of Lyme, and the tooth infections, my immune system has been overrun. I'm just freaked out because my most concerning symptom is getting worse. Hopefully with the proper treatment and getting the tooth infections under control, things will turn around.... HOPEFULLY.

dacarte3 said...

Lapis_29 said...

Hoagie said...

Lapis_29 said...
you were considering trying DMSO, please do it. its really amazing stuff.

I really want to. But I am a bit scared because of the test saying it caused inflammation of mitochondria. If that happens, I'm toast.

I am on another forum whre ppl are doing DMSO for various things, so far zero negative side affects (other than topical skin issues). none.

all good results. its truly incredible stuff.

Can you list things it improved for you?

I talk about it in this thread


https://www.healingwell.com/community/default.aspx?f=30&m=3914807

also more recently it has greatly improved my sleep quality.

Hoagie said...

dacarte3 said...
Hoagie,

I 100% understand the feeling of being in a scary place. I'm in one right now too. Neuro Lyme seems to be the worst manifestation of Lyme.

It's kicking my butt right now too. I don't really have any advice as I'm searching for answers myself. But just want you to know you are not alone.

Thanks decarte!

I understand you are going through a rough time. But, we are warriors. I plan on beating this thing. My concern is the time frame. I am at a race against the clock at the moment. I have to be able to work. So, I'm hoping I can contain this before it gets too bad. Today has been a bad day. So, I freaked out a bit earlier. I think I just need to relax and take things slow for now. I believe I have been pushing it too hard lately which is exacerbating my walking issues.

We'll see.

AND, we are going to get through this. We are fighters.

And this forum is awesome. I appreciate you all so much!

I just bought one of those CNS herbs girlie recommend. I agree with her that it's Neuro toxicity from lyme. You should to. worth a shot.

dacarte3 said...

Hoagie said...

dacarte3 said...
Hoagie,

I 100% understand the feeling of being in a scary place. I'm in one right now too. Neuro Lyme seems to be the worst manifestation of Lyme.

It's kicking my butt right now too. I don't really have any advice as I'm searching for answers myself. But just want you to know you are not alone.

Thanks decarte!

I understand you are going through a rough time. But, we are warriors. I plan on beating this thing. My concern is the time frame. I am at a race against the clock at the moment. I have to be able to work. So, I'm hoping I can contain this before it gets too bad. Today has been a bad day. So, I freaked out a bit earlier. I think I just need to relax and take things slow for now. I believe I have been pushing it too hard lately which is exacerbating my walking issues.



We'll see.

AND, we are going to get through this. We are fighters.

And this forum is awesome. I appreciate you all so much!

I just bought one of those CNS herbs girlie recommend. I agree with her that it's Neuro toxicity from lyme. You should to. worth a shot.

I hope it helps, dacarte3