Mycoplasma - overlooked in Lyme disease

Oh my goodness. That is terrifying. I'm so glad you're ok!

Thanks Dahlias & Dude!

I am feeling better today but still have a long road back.

So - yes, you have a lot on your plate too. It's very difficult to know where to start when you have so much to treat. Do you feel like your viral loads are better under control now? That was key for me and I've had to stay on antivirals all throughout treatment.

I like the idea of hitting everything at once but I doubt it's easy - or manageable for people like us to do. Although I think the HBOT discussion is interesting, are you considering that? Have you explored bee venom therapy? I don't know about RIFE - I have a friend who has tried pellets and is now trying a wrist band that has RIFE-like functions so we'll see how she fares.

I was recently tested by the MD who is selling the RIFE wrist bands and he confirmed myco, bart, babs, viruses and mold. He said Lyme and candida were negative, which is kind of odd but I have been treating them most aggressively.

I started on herbals when I was first dx - and have stayed on them. I then started with IV rocephin - took it for 2.5 years and then started IV vancomycin and I'm trying to wrap it up now after 1.5 yrs.

And it took awhile but I had worked up to an optimal herbal doses before going off the rocephin, same with the vanco - hope this transitions me for the next year. And I'm also one of those people who will probably have to continue treating for a few more years (I initially went 16+ yrs undiagnosed).

I also had severe GI problems and refused oral abx but after cycling through several different herbs ineffectively I very quickly started losing ability to walk so we went straight to IV abx, which helped. I stayed on the BW A-Bart for the next year after that (along with several other things) but finally, after about a year I linked the A-bart to severe GI episodes I was having so I stopped it and we started vanco.

I can't remember everything I took in the beginning but I know I took Byron White and Beyond Balance along with some Nutramedix individual herbs. I've been on Japanese knotweed for a few years along with Eluna, Samento and banderol. And was trying to restart C.S.A. a few months ago when I started getting bad diagnoses about non-Lyme stuff and decided to slow down a bit.

I saw your other post about Raintree Formulas - I've not tried them. Of course, now that I'm going to be more focused on myco, I need to explore a few more things! Thanks for the suggestion.

I felt 100% overwhelmed by the herbal options as well - particularly when I started out. Luckily, my LLMD had me successfully address the yeast/fungal issues and got my viral loads down first before starting in with herbal antimicrobial protocols for Lyme, bart and babs. But I was so sick and had so many different sx raging that I had such a difficult time fully understanding what I was doing, with what, and what my reactions were or meant.

That's one of the advantages abx has over herbs - for many people, there are only a few "known" abx protocols and they don't face this GIGANTIC, overwhelming learning curve that is a reality with a newbie to herbs.

So, this roller coaster ride has been very difficult to navigate but I have finally made progress. And then this myco mystery, which maybe is also becoming clearer.

I hope you're able to make some progress. Keep reading and asking questions - you will eventually figure this out, step by step.

-p

Thanks PeteZa - I will get there. I am getting very tired of these setbacks... has not been a good couple of months.

-p

Pirouette,

Thanks for your encouragement. I wish I felt as confident that I'll figure-out things, but I'm not so sure.

Currently, my main problem is "analysis paralysis." As such, I'm not really doing much. No herbs and no antibiotics. Even when I did take antibiotics (over two years ago), I only had five, short-term rounds. Two weeks of antibiotic "X," a few weeks off, then 10 days of antibiotic "Y." A year later, another round of "X," etc. It's been scattershot.

As for my viral loads, I would say that, in general, I feel better than I have for most of the past four years. But, fatigue has been the most prominent and enduring symptom. Back in 2013, when I got sick (this was a year before the tick bite), I thought it was a Cold or Flu. But, it got really bad and lasted for seven straight weeks. I don't ever recall feeling that sick. In hindsight, I almost certainly had Walking/Mycoplasma Pneumonia. Now, I don't think it ever left.

Since that time, I've have the persistent fatigue and a cough that keeps recurring. There are still many other symptoms that come-and-go (e.g. Dizziness, Muscle Pain, Joint Aches, Brain Fog, Poor Memory, POTS, etc.), but the fatigue is constant and the cough is nearly so.

I now feel it's probably Mycoplasma that's plaguing me the most. Lately, I've noticed that my fatigue flares and I'll also get a really sharp, sore throat. But, it's not the back of my throat, it's the front of my throat, it feels like it's around the Adam's apple. I've had that throat issue, on-and-off, for about 14 years -- around the same time that fatigue (Mycoplasma?) first started troubling me.

My LLPA (who works part-time at the Jemsek Specialty Clinic) wants to put me on a pulsed regimen of four oral antibiotics, but I keep worrying that such a protocol (1) will not be curative, (2) will destroy my gut in the process, and (3) may cause me to develop antibiotic resistance. (Despite what you're thinking, I'm actually a lot of fun at parties. )

I'm open to Rife and mHBOT therapies, but no way on the Bee Venom Therapy (BVT). I'm leaving that one all to "bluelyme."

Before doing anything else, I think I'll try the "Myco" supplement and see where that leads me:

* www.raintree.com/myco-capsules

And, possibly add some of these other RainTree products:

* www.raintree.com/amazon-af-capsules
* www.raintree.com/amazon-immune-support-capsules
* www.raintree.com/spiro-capsules

Finally, in case you've not seen them, here are some articles:

* /rawlsmd.com/health-articles/mycoplasma-the-most-common-lyme-coinfection
* /rawlsmd.com/health-articles/when-to-consider-antibiotic-therapy
* www.organiclifestylemagazine.com/issue/15-lyme-disease-holistic-protocol-to-completely-rebuild-the-immune-system

Wishing you the best of everything,

The Dude

Georgia Hunter said...
Pirouette,

I hope you feel better soon. If I could, I would help you. My knowledge base just isn't broad enough. For that I apologize.

Dude,

Anytime someone has an issue with their Adam's apple, I think it's protozoal. Your symptoms are just like mine were a few years ago.

Georgia Hunter,

Thank you, sir. I always appreciate feedback from your brilliant mind. Would you mind sharing how you addressed the issue?

I have six tablets of Vermox/Mebendazole that came all the way from a pharmacy in Auckland, New Zealand, but I never took them. It seems that's for worms, anyway. I guess it wouldn't hurt to take them.

A couple of years ago, a friend and co-worker noted that, when I did call-out sick for work, it was always the day before, day of, or day after a full moon. I'm not sure if that would signify a specific parasite.

The Dude

p.s. 3:43 AM! I sure hope your sleep improves soon!

Dude - I also have some issues around the adams apple but mine is like something is in there (swollen?) and it's uncomfortable to wear clothes that are tight or touch neck. My thyroid is so-so and 2+ docs say thats not the issue. Anyway, this all started after I got what I thought was food poisoning in Nov. So...GH may have just given me a gem too! I only have a couple ivermecton, albenadazole, flagyl and tindi.

Update -

-for those of you who learn like I do from others' experiences. My sx never made sense until I was able to put them in context with what other people experienced.

I am remarkably better - surprisingly. This time the crash was much harder but the recovery is faster - I don't know why. Is my immune system stronger? I have been drinking a lot of aloe vera juice - not as soothing for throat as I had hoped but it's sure good for the GI and maybe it's helping immune function.

One new thing that has developed is I can't hear out of one ear - hope this isn't damage from the high fever.

I still have a lot of sinus drainage and phlegm I'm coughing up so clearly still have a lot of inflammation so hoping the hearing will return in time.

Will see LLMD next Wed so will talk about tx options. Ugghh.... I thought I was wrapping things up.

-p

Pirouette and others,

I didn't read all the posts here but got the gist that some are dealing with high viral loads, fungal/mold issues etc, and "analysis paralysis" regarding what to do - I love that description; it fits me perfectly!!!

Anyway, I just wanted to share something with you. I'm doing Buhner's bartonella protocol. It includes Isatis/Houttynia/Alchornia in addition to Sida Acuta plus supportive herbs.

I have all Buhner's books and just noticed that Isatis and Houttynia are both in Buhner's top list of ANTIVIRAL herbs. Also, Cryptolepis, Sida Acuta, and Alchornea are the herbs he recommends for treating aspergillosis (mold/fungal).

I've had noticeable improvement with IHA. I got the feeling it was hitting a lot of things - not just bartonella. I find Sida to be super potent and only take 1 drop of it.

Anyway - I would highly recommend taking those herbs together if you haven't already and see what effect it has - see if you have improvements or worse symptoms/herx. Might give you the clues you need to move forward.

Georgia Hunter said...

The Dude Abides said...

Georgia Hunter said...
Pirouette,

I hope you feel better soon. If I could, I would help you. My knowledge base just isn't broad enough. For that I apologize.

Dude,

Anytime someone has an issue with their Adam's apple, I think it's protozoal. Your symptoms are just like mine were a few years ago.

Georgia Hunter,

Thank you, sir. I always appreciate feedback from your brilliant mind. Would you mind sharing how you addressed the issue?

I have six tablets of Vermox/Mebendazole that came all the way from a pharmacy in Auckland, New Zealand, but I never took them. It seems that's for worms, anyway. I guess it wouldn't hurt to take them.

A couple of years ago, a friend and co-worker noted that, when I did call-out sick for work, it was always the day before, day of, or day after a full moon. I'm not sure if that would signify a specific parasite.

The Dude

p.s. 3:43 AM! I sure hope your sleep improves soon!

I go to sleep very early and get my 5 hours in. If I do it that way, I sleep for 5, read for a couple, and can go back to sleep for a couple. Everything that I have ever used for sleep that has worked has faded off over a couple of days to a couple of weeks. Most people that I talk to think I am normal and I possibly am, but I'm a perfectionist and I know I am not what I was.

If my thoughts are correct, the Vermox will help kill what is causing your issues. Six may not be enough, but we may have a FL1953/Funnelliformis mosseae type issue, or something close to it.

Georgia,

Again, I thank you for the nuggets you're sharing with me. I need to look into the matter more closely. You consistently help a lot of people by answering questions and pointing them in new directions.

As for your sleep, I'm not sure it's "normal." It may be common, but, of course, it's also common for people to eat terribly, be in poor health, and take multiple prescriptions (no offense ). So, I think society tries to normalize being sick. But, that's just my opinion.

Somehow, I had already imagined you to be a perfectionist. I imagine you as being what Joseph Cohen at /selfhacked.com might be like in another 25 years.

Be well,
The Dude

WalkingbyFaith said...
Pirouette and others,

I didn't read all the posts here but got the gist that some are dealing with high viral loads, fungal/mold issues etc, and "analysis paralysis" regarding what to do - I love that description; it fits me perfectly!!!

Anyway, I just wanted to share something with you. I'm doing Buhner's bartonella protocol. It includes Isatis/Houttynia/Alchornia in addition to Sida Acuta plus supportive herbs.

I have all Buhner's books and just noticed that Isatis and Houttynia are both in Buhner's top list of ANTIVIRAL herbs. Also, Cryptolepis, Sida Acuta, and Alchornea are the herbs he recommends for treating aspergillosis (mold/fungal).

I've had noticeable improvement with IHA. I got the feeling it was hitting a lot of things - not just bartonella. I find Sida to be super potent and only take 1 drop of it.

Anyway - I would highly recommend taking those herbs together if you haven't already and see what effect it has - see if you have improvements or worse symptoms/herx. Might give you the clues you need to move forward.

Thank you for the information and recommendations!