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LymeDiseaseMexico Dr Morales Puerto Vallarta
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Glascis
Regular Member
Joined : Oct 2017
Posts : 62
Posted 10/29/2017 12:05 AM (GMT -5)
Hi everyone,
New member here from Canada. I'm thinking about
travelling to this clinic LymeDiseaseMexico.com to be treated by Dr Morales pretty soon. I found a couple of threads asking about
him and the clinic but no updates.
Is anyone able to give some feedback on their experience if they have been there?
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 2:04 AM (GMT -5)
Hi Glascis - welcome to our community!
I am in Canada, too. Are you Western, Eastern or in the middle ?
Glascis
Regular Member
Joined : Oct 2017
Posts : 62
Posted 10/29/2017 11:26 AM (GMT -5)
Thank you
I've been lurking your forum when I have a free moment since I discovered it a couple of weeks ago. I'm in Calgary.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 1:24 PM (GMT -5)
Have you been in treatment yet?
Glascis
Regular Member
Joined : Oct 2017
Posts : 62
Posted 10/29/2017 2:10 PM (GMT -5)
Unfortunately not what I'd consider treatment, no. I had even gone into the ER with a tick bite in July 2014 and received steroid creams.
Since then I've made the round of the doctors pretty much like everyone else has and have received treatments of large doses of condescension, humiliation, hyper-skepticism and suspicion, combined with the occasional treatment of berating.
Most of my drug related treatment has centred around strong medication for my crazy delusions although now I'm on a drug that suppresses my body's immune system which helps with the sleep, itching and rashes although it has godawful side effects.
I'm planning to go to PV soon - this is my Hail Mary.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 2:23 PM (GMT -5)
You do know there are other options if you don't get results in Mexico, right?
Glascis
Regular Member
Joined : Oct 2017
Posts : 62
Posted 10/29/2017 2:52 PM (GMT -5)
TBH I didn't even realize the possibility of Lyme until a couple of months ago. I had been tested twice and results were negative so my research and knowledge is late and I'd say is fairly poor. I only saw the documentary Under our skin yesterday.
Once I figured it out, I've been concentrating on trying to get diagnosed/ treatment as fast as possible. I'm getting worse every day and I'm working full-time which leaves me bone tired - I'm struggling every day not to just lay down and give up. I have realized it's a race against time because the time is going to come fairly soon when I won't be able to force myself into getting up and doing what needs to be done.
I am 100% sure I want treatment including antibiotics, so I concentrated on that. Because I teach part-time as well I won't be able to travel except for a few days between Jan-June so I need to get treatment before the end of the year or after June next year.
The only options I could find that were available to me were a couple of naturopaths in Calgary, a private MD in Calgary but her strong preference is the natural route (no antibiotics), Dr Hawkins is not even reachable and his wait list is apparently two years long.
I did see a couple of websites in Vancouver & Vernon but didn't inquire about
costs/ wait times.
I looked into Dr M in NY she's unfortunately booking months away, it's a long flight and a drive and one of her patients had their medication seized at the border so I was thinking that's not the best option for me.
I also saw Dr J's website in DC again a few flights and I'm not sure I can afford the cost. Not that I know what the cost is I saw a couple of posts about
it being a bit pricey so didn't inquire.
A lady in Edmonton spoke very highly of this PV clinic and they can fit me in before the end of the year. Do you know anyone else who was treated there? Do you know of other options that include antibiotics?
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 3:51 PM (GMT -5)
The ND's in Alberta aren't licensed to prescribe antibiotics - so only non-pharma treatments (Unless something has changed in the past few months)
The ND's in BC can be licensed to prescribe abx. The one in Richmond does, also a few in Victoria, and one in Summerland.
Maybe a few more.
The wait time for the ND in Richmond is probably 2 or 3 weeks. You go for the initial consult and then can do follow ups via phone. He can and will prescribe abx. he does like a positive test result (unless something has changed).
If you have the test result with you, then you should be able to start treatment right away.
When I called Dr. J's office, I was told the first appt in person, then you don't go back for 6-9 months.
You do followups in-between via the phone or skype. (i can't remember if he accepts phone appts...or just skype)
The initial consult is the highest cost...then the cost decreases for the 2nd and 3rd appt.
The Can/US exchange really adds to it all - not just the appt. cost, but the hotels, meals etc. Not to mention I think from Vancouver (how I'd go) it's not non-stop...so means two flights...and longer travel.
I figured something like $4,000 .
BUT, -in hindsight - had I gone to him in 2014 - maybe the cost would have been worth it - if I had gotten back to work two years later (I'm at 3 years now) - because I could make all that up and more if I was working.
My biggest expense isn't the meds, or the appt.s...it's the lack of income.
Another option - is LLMD in Seattle Washington MR.
Yes, there are stories of meds being confiscated at the border. Can the prescript
ion not be filled in Canada?
Or is a script
from a U.S. Dr. not recognized?
I don't know about
the clinic in Mexico....but others' may be along to post about
it.
Re: abx options - all that I've listed above.
Glascis
Regular Member
Joined : Oct 2017
Posts : 62
Posted 10/29/2017 5:36 PM (GMT -5)
Thank you for all the information Girlie.
The script
from a US doctor is not recognized here unfortunately, although I know (because I used to live in BC) that AB pharmacists will fill BC script
s.
I finally found a doctor two weeks ago who was willing to sign an Igenex requisition so I am going to the lab to get blood drawn tomorrow. I am so not looking forward to that. I called three times and got three different responses as to what their procedure is. Hopefully that test shows something.
Wow Dr. J doesn't sound so bad at all. In my mind it was around 30K - why I thought that I have no idea. Do you know what his wait times are like?
I really understand what you mean by income. Since this started I had to sell my house and my income has gotten so low I receive the GST credit. I have been pulling out savings to survive. The treatment in Mexico is going to run approx 14- 20K all said and done which will about
halve what I have left. If at some point I get well enough to work more hours I can make that up - if not I will have a hole that's getting harder to fill. Even if I get slightly better it would be still be better than this steady decline. My wrists and fingers aching so bad that sometimes I can't type or write is the latest annoyance.
I feel some confidence in this decision but also a fair amount of what ifs and fears. The doctor is a member of ILADS as well which inspires more confidence.
Would you feel OK telling me who you are getting treated from and where you think you're at from your pre-Lyme self?
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 6:43 PM (GMT -5)
When I say $4000 that is just the initial consult and flights, hotels and meals for two of us (my husband would go with)
Probably would be more like $5000.
It depends on if I need to have more testing done...my GP has done a ton of tests...she is very supportive so hopefully he would be fine with those tests.
So after that you'd be paying for a second appt. (via skype) probably 3 or 4 months later (which is less than the consult) and then a third one another 3-4 months later.
But not travel.
Then back for an in-person again. So for a year of treatment maybe $20 K
I could be way off base...it depends, again on what other testing he wants done. Maybe my GP would agree to what he requests and give me a lab req...not sure.
Hindsight - should have done it.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 6:45 PM (GMT -5)
Even if Alberta won't fill them, Dr. C. in Richmond will send it to the Pharmacy near his office and it's filled, then mailed to you (the drugs)
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 7:01 PM (GMT -5)
When I had called Dr. J's office - I think they said they could get me in within a month.
But, that might mean one of his NP's. Most people do see a NP first.
I would wait longer and want to see Dr. j. himself. Maybe for patients coming from out of country...he would agree to see them at first appt?
Girlie
Forum Moderator
Joined : May 2014
Posts : 48577
Posted 10/29/2017 7:03 PM (GMT -5)
I was treated by the ND in Richmond. He has the most experience for treating lyme in BC and maybe all of Canada.
But, I am basically self-treating now. He hasn't recognized Babesia and I wanted to have that covered..because I plateaued on the lyme/bart treatment.
If you email me, I can give you the contact information - if you don't have it.
I am down to less than 10 symptoms now. I have had close to 40.
Sounds good on paper...but a couple of the symptoms are my worst ...and need to go before I can even return to work..
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