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total body numbness please help

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Posted 11/9/2017 10:56 AM (GMT -5)
I’ve been suffering with numbness in arms and legs last 4 days. very hard to grip or walk. yesterday was whole body. I was double checking to make sure my face or body was there because I couldn’t feel it.

if I get a super hot bath everything tingles like crazy but then goes back numb after.

LLMD says ammonia is very high and I have backed off abx to detox. please suggestions or help in any way I can’t stop crying this is scary. I don’t want to be numb forever. does it go away?

I have had neuro symptoms lately feeling psycho and feeling like i’m floating, bad brain buzzing, texture and smell sensitivity and last night for several hours severe facial and head jerking and twitches and completely awful stuttering. freaked my parents out.

I take glutathione, all’s seltzer gold, detox baths, liposomal vitamin c, lots of support tinctures, n acetyl cysteine, probiotics, vit d, b12, cbd, carnosine, milk thistle, acz nano zeolite, silver, coQ10, k2, zinc and curcumin in the morning.
Burbur pinella detox and chlorella in afternoon.
a lot of same ones in Pm as AM but just sleeping assist on top of t.
Posted 11/9/2017 11:13 AM (GMT -5)
Really sorry you are experiencing the awful numbness. I also had it for a LONG time. Sometimes it was continuous and other times it would come and go.

Wish I had some wonderful, helpful ideas. For me, hot baths made everything much worse. Cold was bad, too. Tepid baths seemed to work best.

Hang in there!
Posted 11/9/2017 1:28 PM (GMT -5)
Mandy - Did you start something new in the past few weeks?


Gosh, that sounds awful...so sorry you're experiencing the numbness.
Posted 11/9/2017 1:36 PM (GMT -5)

Girlie said...
Mandy - Did you start something new in the past few weeks?

Good question. So Id been slowly working my antibiotics (herbal Byron white) over the past two years of treatment. I could barely tolerate herxheimers (pain, dizzy, stomach food issues, head ringing, seizures) so we increased very slowly and took breaks as needed. I just got to the point this summer of being able to tolerate higher doses.

But then I had my two little brothers die in an accident which put my organs in a tail spin- spleen enlarging, very inflamed liver and gallbladder and kidneys. Once we got that under control, I had an ovarian cyst erupt which almost killed me and I was hospitalized.

Since the Ovarian cyst, I just haven’t been able to go back on any dosage of abx... I am on lowest dose possible and this numbness and twitching is happening.

I’m about to throw in the towel.
Posted 11/9/2017 1:41 PM (GMT -5)
Don't give up with proper treatment my numbness is gone.

Discuss binders,Jernigans brain detox and buhners neuro protocol with your llmd. Hang in there,I'm at work so I have to go but please take care,Jo
Posted 11/9/2017 2:08 PM (GMT -5)
you can't throw in the towel else you'll never improve so hang in there. it will go away the numbness is not permanent its the bugs having a party and/or toxin die off.

L-Ornithine works very well to get the ammonia levels down and detox your liver. May want to try it out. Best one is the Allergy Research Group brand but very pricey. 1-2 tsp a day should do it.

the inflamed liver/spleen is either backed up toxins or babesia. it could be bartonella but only a few species will swell your liver/spleen so i'm going with most like babesia which cause all that stuff you're dealing with.

babesia can take a long time to get rid of. are you doing anything to treat this?
Posted 11/9/2017 2:38 PM (GMT -5)

Rikky1 said...

babesia can take a long time to get rid of. are you doing anything to treat this?

I’ve never heard of L- Ornothine I’ll look it up. Money isn’t a problem right now. I’m already in debt I need to get better. My parents help pay for most.

We are waiting for co-infection testing from Igenex to get back but we assume (we being LLMD and I) I have Babesia and Chlamydia Pneumoniae and Bartonella. The dr intends to treat me for it to see how I respond after test results get back.
Thank you for your replies.
Posted 11/9/2017 3:14 PM (GMT -5)
LymeDontKillMandysVibe -

Your body is really struggling. I'm so sorry you've had such a hard time and that you lost your brothers. You will fight your way out of this. You just need a little time.

Byron White formulas are very intense - you might try Beyond Balance, which is known to be much less intense. I have done very well on several products.

You might also try anti-inflammatories for the neuropathy. My Lyme-knowledgeable neurologist suggests most neuropathy we have is from inflammation.

Your detox sounds great... just keep up that component and VERY slowly and steadily work on integrating antimicrobials. It's OK to take a break every now and then.

-p
Posted 11/9/2017 9:16 PM (GMT -5)
Mandy,

You may also want to add another binder. Zeolite was the only thing I saw in your list. Maybe add charcoal or citrus pectin.
Posted 11/9/2017 9:40 PM (GMT -5)

WalkingbyFaith said...
Mandy,

You may also want to add another binder. Zeolite was the only thing I saw in your list. Maybe add charcoal or citrus pectin.

thank you for mentioning this! I forgot to put those in the list, I do take charcoal and also bentonite clay and citrus pectin.
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