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Candida, Prozomyxzoa R, or something else?

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Posted 11/28/2017 4:14 PM (GMT -5)
Hello all,

So long story short, I am wondering what it is exactly I am going through. Could it actually be mainly Candida? Overall for the past month or so I have generally felt better, although this week I have not felt quite as well, but not nearly as bad as initial onset. I did eat pretty bad for the last 4-5 days over the holidays, reintroducing some alcohol, and all the thanksgiving junk food we are used to. I have noticed a white tint to my tongue, as well as feeling like I am bloated when I wake up, and what can only be described as a nervous tension from time to time in my gut. Also the eye floaters seem to be a bit more evident than before.

To summarize:

Bitten by a tick, red rash developed 4 years ago ( untreated, didnt know at the time what this rash meant)

Sep 21 2017 ER visit with Heart Palpitations, released a few hours later, but continued to suffer from brain fog, anxiety, high blood pressure, head pressure and general depression and fatigue ( no pain involved at all) I should add my diet the week leading up to this event was absolute crap, lots of soda and junk restaurant food.

Symptoms continued for about 2-3 weeks, heart checked out fine per sonogram.

Early October Lyme test game back negative, only IGM 41 tested as positive, all other negative.

Put on Doxy on a whim from a non LLMD and immediately began to feel better


Switched docs to a LLMD and scaled back Doxy to 100 mg per day, as well as added a probiotic during the day.

Additional Tests were done through Fry Labs and I came back has positive for Funneliformis Mosseae, what others seem to call Protomyxzoa Rheumatica.

Brain and Neck MRI showed not much abnormal except for a small, sinus cavity cyst and a small malformation at the back of my brain ( genetic, not concerning)

Overall for the past month or so I have generally felt better, although this week I have not felt quite as well, but not nearly as bad as initial onset. I am functioning, working, and living life as per normal, but without the usual enthusiasm I am used to, a bit of a downer mood since this all happened.

Any thoughts?
Posted 11/28/2017 5:17 PM (GMT -5)
Hi
I did find an older post on Protomyxzoa Rheumatica. Not sure if you have read it before.


https://www.healingwell.com/community/default.aspx?f=30&m=3816374


The white on your tongue and the bloating seem like candida.

In our new to lye start here thread there is good information on candida that may be of help to you.


Take care, Jo
Posted 11/28/2017 5:33 PM (GMT -5)
Sorry you are infected.

The bulls-eye after tick bite bite is fully diagnostic. Don't let the single band result test fool you into thinking you were not infected with borrelia.

Before I knew I was infected, I noticed that when I consumed alcohol, sugar, and/or gluten I would feel awful for the next day or two.

I would strongly recommend against consuming alcohol, added sugar and gluten 100%. It is hard, but I believe it has helped my healing immensely.

You have been infected 4 years. It is going to take more than a few months of doxy to get your body back to functioning again.
Posted 11/28/2017 7:20 PM (GMT -5)
Hi Eldonkey -

I think what you're describing is likely an active yeast/fungus overgrowth, possibly complicated by undertreated Lyme.

First - the y/f overgrowth:
Here is a ton of info on diagnosing, symptoms, treatment
Y/FO post in the "New to Lyme?" thread:
www.healingwell.com/community/default.aspx?f=30&m=1606610&g=3644275#m3644275

So, your LLMD was able to diagnose you based on a rash? The sx you're describing aren't real indicative of Lyme. But the rash could be (not all Lyme rashes are the perfect bull's-eye type rash, but if it was, that is almost definitive for Lyme). The tests are only 50% accurate and band 41 doesn't tell you much, unless the rash is a Lyme rash.

It's good that you're seeing an LLMD but 100mg of doxy once a day is half the recommended dose and not advisable - you don't want to grow resistance. You're better off doubling it or stopping the abx and start on herbs or an alternative therapy.

Honestly, you likely won't know the answer to your question (what is causing the current sx) until you get on a restricted diet and get treatment for yeast/fungus underway. I think that will do a lot to reduce if not eliminate your sx. And only then will it be MUCH easier to evaluate the remaining symptoms and figure out next steps in treatment.

Hope this is helpful -

-p
Posted 11/28/2017 7:32 PM (GMT -5)
All very helpful. Yes, thank you! So interestingly enough I did have the bullseye rash. Up until recently, I have had no lyme like symptoms. Regarding the P R, yes thank you for the link, I have read it and it is quite helpful. Sounds like I need to cut down on the fat and sugary junk, similar to dealing with Candida.

Dr Fry's lab is the one that microscopically found the PR/ FM whatever you want to call it. I am working directly with his recommended clinician now that he is no longer working directly with patients. I specifically asked my LLMD if what I have is "lyme" and I was told based on the CDC guidelines, NO. I found that interesting. Regarding the Doxy, I was on twice a day for about two weeks, but my LLMD wants me to build up to it so she cut me back to once a day. I seemed to be herxing quite a bit while on it twice a day.

I've thought of going the herb route as well, waiting to get approved for plant allergy testing before going that route. I guess my question is, are there varying degrees to all these bug symptoms in terms of severity? In the beginning I was barely able to function mentally because of the anxiety and high BP, but since that has been tempered, I can pretty much go about my day to day relatively normally. Just wish my positivity on life was where it used to be. Its all a process I guess.

Thanks Much! Eldonkey
Posted 11/28/2017 7:42 PM (GMT -5)
Thanks for the clarification. I would try to work up to the optimal dose of doxy as quickly as you can - be sure you have a good detoxing protocol in place - it's as important as the doxy.

Many of us are taking both abx and herbs so that might be a good idea.

"I was told based on the CDC guidelines, NO. I found that interesting" --- the reason she stated this is that the CDC guidelines have failed most Lyme patients. They are only about 50% accurate. I can share studies with you if you like. ANd this is why Lyme specialists are needed... regular MDs don't know how to diagnose or treat Lyme.

There are absolutely NO two Lyme cases alike. There are so many variables from one person to the next depending upon the quality of health before being infected, quality of health afterward, how man coinfections the person was infected with and how well-fuctioning the immune system has kept the infection managed - or not.

The response to treatment is every bit as varied because of the same variables above but also the body's responses to herbs and drugs and ability to detox appropriately and manage herxing (a sepsis-like condition that commonly develops with antimicrobial treatment).

This is why it's so critical to get the y/f under control - it's pretty straightforward and since many of the sx overlap w/ Lyme & Co, you can get a much clearer picture.

-p
Posted 11/30/2017 1:16 PM (GMT -5)
All very good info here from everyone. Thank you. I have a Dr. appt later today to discuss possible yeast infection. Is it odd that I havent really had any stomach issues other than occasionally feeling a bit bloated when I wake up?( it tends to go away as the day goes on).

No pain really to speak of, my main concern is that the eye floaters have been a bit stronger this week, and my anxiety has picked up a bit. Also my mood is quite down, I feel almost bipolar with these mood swings, totally not like me. Thats probably the biggest thing.
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