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Memory gaps and fades

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Posted 11/29/2017 11:22 AM (GMT -5)
Lately I've been noticing my memory feels weird. I do occasionally have the "doorway effect" where I'll go to the cabinet and can't remember why I was there, but this new feeling is odd.

When I try to remember things, from my past (or even recently) it feels like I'm remembering a dream. The memories feel cloudy. Even stories I've told a million times. I feel disconnected from my memories. I'm a writer and have always had a vivid memory - scents, feelings, sounds. And now it's just faded. Not gone, but it doesn't feel real anymore. Recently, I was telling a story I've told a million times and it felt fake. I don't know how else to describe it. I felt like I was making it up. It's so odd. I'm now starting to doubt my memories. They almost don't feel like they're mine or like I'm remembering a dream. I also can't remember things I know I used to know. That's super disconcerting.

I gather this is the lyme, but has anyone had this and does it go away or get better? Does anything help? I've been taking Neuro-Anti-Tox for a year now.
Posted 11/29/2017 12:01 PM (GMT -5)
I experience this a lot too. I don't know about it going away or getting better, but I am hoping it does.
Posted 11/29/2017 2:29 PM (GMT -5)
Hey 10LymeB-

This whole memory thing freaks me out a little, too. My kids joke that I am 90y/o. I laugh but it hurts a little.


This is my second time through treatment. My mind did clear the first time. I am counting on that as I go through this, again.

I recently went off Nystatin (for Candida) and I noticed the foggyiness rolling back in. I asked to be put back on. Are you on ABX? Have you been treated/tested for Candida? Just a thought. I feel it plays a large part with my mind clarity maybe it is a piece of the puzzle for you.

Warmly -


Peppermint Tea
Posted 11/29/2017 2:37 PM (GMT -5)
I have this VERY badly to the extent that all memories and facts about my life - including things as obvious as my address, my family and even my name - sometimes don't feel my own. Like you I generally have no problem recalling these facts but they feel kind of 'false' or at the very least 'distant'.

I have a few theories.

1. The symptom actually started following treatment so I think it's either caused by accumulated toxins in the brain or a confection I'm not currently treating becoming more active (babesia?)

2. I have suffered from dp/dr type symptoms since I was infected back in 09. In fact, these were some of my first symptoms. I know that symptoms come and go with treatment so possibly this 'memory dissociation' is just a shift in my dp/dr that will pass given time.

3. Trauma - I have a couple of significant traumatic events in my past which, coupled with the trauma of chronic illness, could be enough to trigger this kind d of psychological issue. I have received a great deal of therapy and practice Qi Gong and mindfulness meditation to try to deal with these issues.

4. Genetics. Mental illness runs strongly in men in my family. Again, coupled with the lyme stuff psychological symptoms like this are likely to be exacerbated.

5. Bit of a wildcard this - ammonia. I realise I've already mentioned toxins generally but I believe I have read that excess ammonia can cause dp/dr type symptoms. I am currently waiting for a couple of new supplements to arrive to see if they help.

Hope some of this was useful and that you get rid of this symptom soon! I'll let you know if I figure anything out.
Posted 11/29/2017 8:39 PM (GMT -5)
ClunkyTrain, Thanks for all the theories. I'm just freaking out over here. I guess I should notify my LLMD and see what she says. I'm starting Infusio in a little over a month and I hope that helps. I think I've managed to avoid most of the neuro stuff in the last year, but now it's creeping up and I don't want it to get worse. I want it gone.
Posted 11/29/2017 10:28 PM (GMT -5)
Just an update: I'm going to go with the candida theory. I've been really depressed lately and have been compensating with not eating well and indulging in sugar. I have these gluten free fig cookies and I think the figs are just too much. I've been eating them a lot. I've also not said NO to sugar when it's offered. So bad. I'm off sugar again and I'm going to take ACV to help battle the candida. Hopefully this helps.
Posted 11/29/2017 10:34 PM (GMT -5)
Yep.........not at all uncommon with lymies. Rest assured, your normal here.

There is not one alone reason. Its a combo of many things that lyme messed up.

Sleep is a huge issue. Most here have sleep issues - cant sleep, or need to all day. Any and all hormones can be messed up too.

If you have leaky gut (common) your not getting proper nutrients- hard on the brain.

Candida- hard on the brain.

the list goes on.

Liver plugged up? high ast/alt, from meds and killing critters? - that messes up with brain methalation pathways - brain fog. Common here.

I had all of this and your symptoms. I'm 80% better there. It took 6-12 months for my brain to improve after ABX. LLMD was not surprised at all. The last 20% for me is probably hashimoto.

Its a pretty hard quick fix if your still killing the critters. There are ammino acids that can help, but you need to experiment. Then of course detox. I would suggest D-limonene. Its the best lever detox there is, yet know one knows this.
Posted 11/30/2017 5:35 AM (GMT -5)
10lymeB I hadn't actually really considered Candida but I'll look into it now thanks! I definitely get gut issues from time to time.

I freak out about this stuff too but my symptoms change around so much (actually feeling maybe 20% less foggy today) that I try to tell myself it's all part of the journey and, with the right treatment, I'll get there in the end!
Posted 11/30/2017 12:29 PM (GMT -5)

clunkytrain said...
10lymeB I hadn't actually really considered Candida but I'll look into it now thanks! I definitely get gut issues from time to time.

I freak out about this stuff too but my symptoms change around so much (actually feeling maybe 20% less foggy today) that I try to tell myself it's all part of the journey and, with the right treatment, I'll get there in the end!

I'm kind of getting used to the lyme roulette. I hate to say that, but I guess it's good. All my crazy symptoms would cause panic attacks and now I'm just like, "meh, it's just lyme."
Posted 12/30/2017 8:42 PM (GMT -5)
Sounds like depersonalization/derealization which has a lot to do with a dysfunction in the brain
Posted 12/30/2017 8:52 PM (GMT -5)
Depersonalization/derealization is often associated with babesia, are you treating that too?
I have also had that real flattening of personality or feeling like my former "self" no longer exists, it's some kind of brain thing but hard to even describe. It's really alarming and frustrating.
Posted 12/30/2017 11:08 PM (GMT -5)
I really think this is a babesia symptom. I had that with dizziness and vertigo, but it went away. Babesia is my theory but I was never tested and that was a long time ago.
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