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What infections would you test for if your case was like this?

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Posted 12/31/2017 7:43 PM (GMT -5)
Yes, DDS means dentist. Jaws are messed up-get checked by a biological dds. One who find infection in patients on a regular basis.

Face issue-macrons testing makes sense also. I think it cost me $100.00 and was a deep nasal swab. Real easy. I wouldn't waste time with xrays.
Posted 12/31/2017 7:52 PM (GMT -5)

k07 said...
Yeast and mold can cause the drunk feeling too. I used to have it a lot prior to my more prominent neuro sx. When we stay at our cottage on water (with mold) i always wake up feeling like i have a bit of a hangover.

The problem is the symptoms overlap so much. Testing for all 3 b’s, yeast, possibly some mold indicators (see survivingmold.com lab tests), and mycoplasmas would be a decent start. Also consider heavy metals (any amalgams?).

Thank you for your answer! I tested positive for all the 3 Bees, Mycoplasma ph. and CMV. Perhaps there is something else in addition to these, but I hope these tests will do for a while... My symptoms definitely feel like mold symptoms (although I don't have any typical flue-like symptoms, no problems with throat etc.). Mold is something I have been suspecting since the very beginning but it didn't seem very likely as my illness started very suddenly in a temporary place. And well, now I have been living (read: existing) in a few places, the current one is a new building, should have no problems (maybe chemicals in the building materials...?) and yet I still feel the same everywhere... But yes, I will test for some mold indicators if needed. I would have done it already but I have not been aware of any reliable good test.

about yeast I must say that I hope I don't have any yeast problems after three+ years of strict diet and supplements and "treatments". My symptoms started when I was on antibiotics (in vain) so I thought it might be dysbiosis-related... but no, it was something way more bad...

My symptoms sound like heavy metals, yes, but as far as I know, according to Genova Diagnostic's NutrEval test etc., I should not have any significant heavy metal accumulation. Also no obvious reasons for why I would have them, no amalgams (they have not been used during my living time fortunately).

This is not very simple, right? But maybe it really is due to the Bees. I have some hope left.
Posted 12/31/2017 8:00 PM (GMT -5)

magoo2 said...
Yes, DDS means dentist. Jaws are messed up-get checked by a biological dds. One who find infection in patients on a regular basis.

Face issue-macrons testing makes sense also. I think it cost me $100.00 and was a deep nasal swab. Real easy. I wouldn't waste time with xrays.

OK, I will definitely do that and go to see some biological dentist asap. I hope regular check-ups are not super costly, however.

And OK, it seems macrons is a thing of its own. I'll look more into it if it doesn't go smoothly with my future Lyme treatment, but I don't think nasal problem is very likely because I don't have any typical nasal/flue-like symptoms...

Yep, those X-rays and MRIs were two years ago, not gonna do that anymore. : )
Posted 12/31/2017 8:13 PM (GMT -5)

k07 said...
Also, cowden does have a metal detox component (sealantro). Would that be when your sx kicked up?

I'm not sure what you mean, but yes, I did try Sealantro for some time but I don't think it triggered any new symptoms. Everything is always the same for me, no clear reactions. I still have a bottle of Sealantro and also chlorella, I will probably use them just in case... Do you think it's safe to assume I don't have significant heavy metal problems if I don't feel better whilst/after taking such herbs?

Well, now I've got clearly positive results for Lyme so heavy metals are not that likely... But it's MSIDS so...
Posted 12/31/2017 8:14 PM (GMT -5)

magoo2 said...
Yes, DDS means dentist. Jaws are messed up-get checked by a biological dds. One who find infection in patients on a regular basis.

Face issue-macrons testing makes sense also. I think it cost me $100.00 and was a deep nasal swab. Real easy. I wouldn't waste time with xrays.

Magoo,
I have mold and was tested for MARCONS over a year ago. It came back negative, but my doctor then and the new one I have now seem to think it should have been positive. I have mixed opinions about MARCONS. From what I've read, treatment can be hard and it often comes back. Did you do treatment for MARCONS? What was your experience? Did it have any affect on your response to Lyme treatment? Just curious.

I'm planning to go to a biological dentist soon to get checked out. I'll be checking with you soon to get more info about dental stuff.
Posted 12/31/2017 8:23 PM (GMT -5)
I just started beg spray-silver and ozone. I think I hit it to hard yesterday but better to hard than to weak. My response-headache today!
Headache and fever-not sure if it was the ozone or the idiot coughing at walgreens yesterday. Better tomorrow

Post Edited (magoo2) : 12/31/2017 6:26:53 PM (GMT-7)

Posted 12/31/2017 8:44 PM (GMT -5)

WalkingbyFaith said...
While an LLMD may be very helpful, you should be aware that they will most likely treat you with long term antibiotics. If that is something you are not comfortable with, cannot afford, or cannot tolerate due to herx reactions, then herbal protocols are a viable alternative. You mentioned you did Cowden's for two months. Stephen Buhner also has protocols for all the infections. He has books that are very informative and helpful if you are interested. Also, many folks use herbs along with antibiotics.

Thank you sister/brother. I have some kind of a plan to go to Germany as soon as possible, because this suffering is just too much to bear. I have not been able to do anything normal feeling normal in all of my adult life. I have tried to do my best, I've been brave and patient but now I just don't know anymore (particularly because I don't react properly to anything). I hope I could find someone who knows what approach is good for me. It is not simple; I would like to try IV-ab because who knows if that would help me? I would like to get some results after several years of complete mystery and frustration... But I am also a bit afraid (well, maybe afraid is not the right word) because my symptoms were originally triggered by antibiotics... if not only stress. It would be great if herbs were the way but how long should I try them in order to know if they really are? Buhner's protocols are definitely on my list. It's just a bit overwhelming now. With everything.

Thank you for every word.
Posted 12/31/2017 10:03 PM (GMT -5)

Eaglet said...

k07 said...
Also, cowden does have a metal detox component (sealantro). Would that be when your sx kicked up?

I'm not sure what you mean, but yes, I did try Sealantro for some time but I don't think it triggered any new symptoms. Everything is always the same for me, no clear reactions. I still have a bottle of Sealantro and also chlorella, I will probably use them just in case... Do you think it's safe to assume I don't have significant heavy metal problems if I don't feel better whilst/after taking such herbs?

Well, now I've got clearly positive results for Lyme so heavy metals are not that likely... But it's MSIDS so...

I was just suspicious of metals since all your symptoms are around your head. I think doing a detox can only help. We are exposed to so many metals on a daily basis - foods, water, cooking materials, vaccines, etc.

I used the sealantro myself and with my children (along with detox baths, green smoothies) and noticed a good reduction in heavy metals. We had no adverse effects from it.

I am happy you have confirmed tests and know what to tackle. Please keep us updated on how it goes and which treatments help.

For what it's worth, I did test positive for MARCoNS. I just finished 6 weeks of nasal spray and will retest soon. The only thing I really noticed is possibly less fatigue. I also had a neuroquant MRI last week and supposedly it can indicate based on where brain inflammation is if it is from lyme or mold. I also have a lot of "head" symptoms (tinnitus, jaw tension, facial numbness, some pressure, poor short-term memory) so looking forward to those results.
Posted 12/31/2017 10:50 PM (GMT -5)

k07 said...

Eaglet said...

k07 said...
Also, cowden does have a metal detox component (sealantro). Would that be when your sx kicked up?

I'm not sure what you mean, but yes, I did try Sealantro for some time but I don't think it triggered any new symptoms. Everything is always the same for me, no clear reactions. I still have a bottle of Sealantro and also chlorella, I will probably use them just in case... Do you think it's safe to assume I don't have significant heavy metal problems if I don't feel better whilst/after taking such herbs?

Well, now I've got clearly positive results for Lyme so heavy metals are not that likely... But it's MSIDS so...

I was just suspicious of metals since all your symptoms are around your head. I think doing a detox can only help. We are exposed to so many metals on a daily basis - foods, water, cooking materials, vaccines, etc.

I used the sealantro myself and with my children (along with detox baths, green smoothies) and noticed a good reduction in heavy metals. We had no adverse effects from it.

I am happy you have confirmed tests and know what to tackle. Please keep us updated on how it goes and which treatments help.

For what it's worth, I did test positive for MARCoNS. I just finished 6 weeks of nasal spray and will retest soon. The only thing I really noticed is possibly less fatigue. I also had a neuroquant MRI last week and supposedly it can indicate based on where brain inflammation is if it is from lyme or mold. I also have a lot of "head" symptoms (tinnitus, jaw tension, facial numbness, some pressure, poor short-term memory) so looking forward to those results.

k07,

Please update us when you get the Neuroquant results. I never had that done. I tried the Shoemaker protocol - getting away from the mold and cholestyramine. Couldn't tolerate CSM - quit after 11 days. It was after that I had further Lyme tests that came back positive. Took minocycline for 7 days to try to treat Lyme/erhlichia - couldn't tolerate it either and had to quit. Never did VIP. Now I've been on Buhner's protocols for 7+ months. Still stumbling along with no solid improvement. I should probably get retested for the mold (Realtime Labs) to see how my results have changed but haven't done it yet.
Posted 1/1/2018 7:16 PM (GMT -5)

k07 said...
I was just suspicious of metals since all your symptoms are around your head. I think doing a detox can only help. We are exposed to so many metals on a daily basis - foods, water, cooking materials, vaccines, etc.

I used the sealantro myself and with my children (along with detox baths, green smoothies) and noticed a good reduction in heavy metals. We had no adverse effects from it.

I am happy you have confirmed tests and know what to tackle. Please keep us updated on how it goes and which treatments help.

For what it's worth, I did test positive for MARCoNS. I just finished 6 weeks of nasal spray and will retest soon. The only thing I really noticed is possibly less fatigue. I also had a neuroquant MRI last week and supposedly it can indicate based on where brain inflammation is if it is from lyme or mold. I also have a lot of "head" symptoms (tinnitus, jaw tension, facial numbness, some pressure, poor short-term memory) so looking forward to those results.

I have those same symptoms, especially tinnitus, jaw tension and pressure. Face feels weird but not necessarily numb.

Although my main symptoms are in head/face area, I still do have other symptoms too. They are just not as hellish (except the nerve problem in my thumb), so at this point I'm not talking about them.

I try to avoid heavy metals as much as possible but if you have some new tip, I'd like to hear. Is is safe to eat hot food with a spoon/fork made of stainless steel?

I wish I could do detox baths but in this country bath tubs are not a norm - I don't have such in my home, I should buy a separate one (that wound be lovely), but they are not very cheap and I'm still lacking the actual treatment so... hmm... What kind of baths you do?
Posted 1/1/2018 7:23 PM (GMT -5)
I haven't thoroughly researched heavy metals...but a few things I do know:

Stay away certain fish: Mackerel, tuna, swordfish are some of the ones mentioned.


If you have compromised mercury amalgams in your mouth (i.e. are leaching mercury into your system) ...have them replaced. Some recommend only doing this with a Biological dentist so exposure during removal is limited.


I have not heard using stainless steel utensils is a problem.
Posted 1/1/2018 7:29 PM (GMT -5)

Eaglet said...

k07 said...
I was just suspicious of metals since all your symptoms are around your head. I think doing a detox can only help. We are exposed to so many metals on a daily basis - foods, water, cooking materials, vaccines, etc.

I used the sealantro myself and with my children (along with detox baths, green smoothies) and noticed a good reduction in heavy metals. We had no adverse effects from it.

I am happy you have confirmed tests and know what to tackle. Please keep us updated on how it goes and which treatments help.

For what it's worth, I did test positive for MARCoNS. I just finished 6 weeks of nasal spray and will retest soon. The only thing I really noticed is possibly less fatigue. I also had a neuroquant MRI last week and supposedly it can indicate based on where brain inflammation is if it is from lyme or mold. I also have a lot of "head" symptoms (tinnitus, jaw tension, facial numbness, some pressure, poor short-term memory) so looking forward to those results.

I have those same symptoms, especially tinnitus, jaw tension and pressure. Face feels weird but not necessarily numb.

Although my main symptoms are in head/face area, I still do have other symptoms too. They are just not as hellish (except the nerve problem in my thumb), so at this point I'm not talking about them.

I try to avoid heavy metals as much as possible but if you have some new tip, I'd like to hear. Is is safe to eat hot food with a spoon/fork made of stainless steel?

I wish I could do detox baths but in this country bath tubs are not a norm - I don't have such in my home, I should buy a separate one (that wound be lovely), but they are not very cheap and I'm still lacking the actual treatment so... hmm... What kind of baths you do?

Although messy, I really like epsom salt & bentonite clay. I’ve heard foot baths can be good for detox too, although have not tried. I did some FIR sauna sessions which seemed helpful. I may invest in one of the portable units.

As far as I know, good stainless is ok. I use cast iron too, but I know for some too much iron can be a problem.
Posted 1/1/2018 8:37 PM (GMT -5)

Girlie said...
I haven't thoroughly researched heavy metals...but a few things I do know:

Stay away certain fish: Mackerel, tuna, swordfish are some of the ones mentioned.


If you have compromised mercury amalgams in your mouth (i.e. are leaching mercury into your system) ...have them replaced. Some recommend only doing this with a Biological dentist so exposure during removal is limited.


I have not heard using stainless steel utensils is a problem.

Utensils. I just learnt a new English word. Haha, thanks. (I have not heard stainless steel to be a problem too, only in the book of Hulda Clark I saw something like that... But that book is quite controversial as far as I know... someone just showed me it and I read a few pages...)

I have been completely avoiding fish due to the heavy metal issue. Or not completely because sardines and other small fishes like vendace are good... Salmon I've had every now and then. But it's not wild. I don't understand why we can't have that in the stores since I live near the places where salmons naturally reside... Do you know any other fishes that are OK to eat at least sometimes? Coalfish? I really would like to eat some fish after so many years of chicken.

No amalgam fillings in my mouth. They stopped using them before I was born or when I was little. Good. I've got enough problems already.
Posted 1/1/2018 8:49 PM (GMT -5)

k07 said...
Although messy, I really like epsom salt & bentonite clay. I’ve heard foot baths can be good for detox too, although have not tried. I did some FIR sauna sessions which seemed helpful. I may invest in one of the portable units.

As far as I know, good stainless is ok. I use cast iron too, but I know for some too much iron can be a problem.

I'd like to try that. Everybody seems to be doing that.

Bathtubs may not be a norm in Nordic houses but saunas are! I have a big regular sauna but I don't use it at the moment because it's heated up using electricity and not fire... I hope that's not a problem because I'd like to go to sauna again after a long break... but I'm a bit afraid. However the main reason for why I have not been using my sauna during my illness is that I can't stand high temperatures anymore. I feel very very weird (although I do all the time) when I am there and after I come out... Even a hot weather makes me unable to function. Heart starts racing, can't concentrate...

Do you know if non-stick frying pans are OK? I don't fry anything though because of my hyperacusis... but sometimes my family cooks for me so that's why I wonder. The pan is made of steel but has a non-stick coating on it?
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