Lyme Literate Opthamologist?

Mergirl, I do not have quite your symptoms but I do have left eye pain. I am being treated for Lyme and bartonella. The pain comes and goes and right now it's bad as I am trying to wean off of some antibiotics. I was wondering the same thing as I am in Maine and was thinking that there may be someone at Spaulding that may be able to help you? I seem to remember hearing about this someplace. The last time I checked (earlier this summer) there was a hold on new patients.

Mer- Someone else had a near identical post a while ago. Anyway, I had what you described for about 3 months, turned out it was candida STILL trying to hang on.

Once its in your blood, you never know where it will come out to say hello.

I treated my eye lids (they were swollen and flaking) with coconut oil. Everything else stung. After a few weeks the blur and gunk went away too. Used standard eye drops. Eye Dr gave me antibacterial eye drops which did nothing, since it was yeast.

I woke near blind once too, no gunk or anything, just 80% dark. That must have been the nerve and lyme, vision came back as before. Thought death was near for sure, around 2008.......

Post Edited (astroman) : 12/4/2017 6:34:49 PM (GMT-7)

astroman said...
Mer- Someone else had a near identical post a while ago. Anyway, I had what you described for about 3 months, turned out it was candida STILL trying to hang on.

Once its in your blood, you never know where it will come out to say hello.

I treated my eye lids (they were swollen and flaking) with coconut oil. Everything else stung. After a few weeks the blur and gunk went away too. Used standard eye drops. Eye Dr gave me antibacterial eye drops which did nothing, since it was yeast.

I woke near blind once too, no gunk or anything, just 80% dark. That must have been the nerve and lyme, vision came back as before. Thought death was near for sure, around 2008.......

Hey Astroman,

Well I for one and glad you're still with us! I have felt the same the last couple of months with all my issues.


Good point about the Candida. I remember you and Piroutte being very helpful in that department a few weeks ago. I still don't know for sure if it's an issue ( Can't afford testing and current LLMD doesn't seem too interested in my digestive issues in general) But I asked him for a prescription of diflucan anyway. I've been taking 200mg every other day for a couple weeks now.


My current refill is going to soon run out though. I see my llmd later this week but for some reason, I don't think he will be too open to giving me more. I was hoping it would make some kind of a difference in some of my symptoms but so far it doesn't seem to have. ALso of course watching my diet this whole time. Very strict. Maybe every coupld days I'll have a very small amount of fruit. Like a few blueberries in my morning oats or some green apple in my green smoothie. That's about it.


As for the coconut oil, been doing that too. Last time I saw llmd I told him about the burning eyes, eyelashes falling out ( still doing that) and the small amount of discharge from my eyes. I think the white flakes , some of them is probably demodex because that seemed to improve a bit when I started using tea tree oil soap on my eyes. I do still use the coconut oil everyday both internally and on my face.

Other than that, not sure how else to self treat if this is candida. Should I try to push to continue the diflucan? If he won't give me more I'm prepared to try to get my own supply somehow. So tired of not being listened to.

Well........there are "standard conventional" lab tests that detect actual candida albicons. My regular GP was able to do this, after my asking/suggesting. Brought the test orders to a local hopital- you can do that for limited GP clinics.

Your body makes antibodies to candida, its an insurance covered "regular lab" antibody blood test (lab corp, Quest ect.). There are other stains of all-body yeasts, but Can Alb is the most common.

Its a three part report, I think its IGG, IGA (?) and I forgot the other...but all three parts are done. What that means is a yes or no for candida exposure in the distant past, recent past and day of blood draw. My GP Rxd the Diflucan. First time , year before was from a LLMD though.

astroman said...
Well........there are "standard conventional" lab tests that detect actual candida albicons. My regular GP was able to do this, after my asking/suggesting. Brought the test orders to a local hopital- you can do that for limited GP clinics.

Your body makes antibodies to candida, its an insurance covered "regular lab" antibody blood test (lab corp, Quest ect.). There are other stains of all-body yeasts, but Can Alb is the most common.

Its a three part report, I think its IGG, IGA (?) and I forgot the other...but all three parts are done. What that means is a yes or no for candida exposure in the distant past, recent past and day of blood draw. My GP Rxd the Diflucan. First time , year before was from a LLMD though.

Thanks,

I'll look into the candida test. Not sure if my llmd will be willing. My pcp unfortunately, well seems i have to find a new one soon. Still trying to work on that with this darn brain fog everyday. Can't seem to get organized or get much of anything done lately. Hopefully, my llmd will be open to hearing me out and refilling. I really do think Candida is a factor here.

Aurora2013 said...
Mergirl,

I also use difflucan but have found that Candex does an excellent job of keeping the candida at bay. In addition, I have a lot of neuropathic pain all over my body and for some reason the Candex seems to help ease some of this pain so it's certainly a bonus for me.

Aurora2013, Thanks for mentioning this, I made a sep post asking about it. What is the best price you found?

Hi Mergirl,

If you are having a problem with candida/yeast the only "natural" product that I know of is called Yeast-Ease (link below). I can't say anything about this product because I never took it.

hansacenter.com/product/yeast-ease/

hansacenter.com/wp-content/uploads/2013/08/Yeast-Ease.pdf

Hope you feel better,
Denise

astroman said...
www.candidamd.com/candida/symptoms.html

Thank you.


I do have many of those symptoms plus many more I didn't see on there. For example, you mentioned in another thread that the problem with my burning eyes was most likely due to a systemic Candida problem. I've been taking diflucan every other day for a couple weeks now and I THINK I herx on it but it's very hard to tell. That symptom in itself has gotten better in just the last few days. A couple of my other symptoms have gotten slightly better recently too. Other more serious ones remain most of the time.


Guess the million dollar question is how do I know which symptoms are Lyme and which Candida?


Up until the past year, year and a half, my symptoms were mainly chronic pain symptoms with anxiety, depression, headaches, severe head and eye pain, etc. In the past year that intensified to Heart palps/racing, severe cognitive dysfunction/decline, brain fog, GI upset/grumbling/ digestive issues/ GERD ,Tinnitus ( currently driving me mad as well), blurry vision, red eyes, etc, etc

I don't know what is causing what at this point.

Girlie said...
Mergrl - there is a post in the "New to Lyme..Start Here!" thread that Pirouette generously crafted on Yeast/Fungal issues.

She lists some natural antifungals - maybe take a look.

Thank you. I'll review that part of the thread again.