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Best time to test for Bartonella

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Posted 12/4/2017 5:58 PM (GMT -5)
We just received a DNA Connexions Lyme test kit for my 16 year-old son. While we're aware that he could have Lyme as well, we're almost certain that he does have Bartonella. We'd like to minimize, as much as possible, the chance of a false negative with this test. So we're wondering if there might be a better time to perform the test. We've read the test kit's instructions regarding 30 minutes of exercise, which we will do.

We've noticed a cyclic pattern with some of his symptoms. about once per week, his occipital lymph nodes will swell up and hurt. This is accompanied by a headache that extends from the back of his head over into his sinuses. This lymph node swelling and headache lasts only about one day, and then clears up until the following week. I'm thinking that perhaps the lymph node swelling might indicate the presence of more bacteria, and therefore might be a better time to perform the test. Does this make sense, or is it even a factor?
Posted 12/4/2017 7:18 PM (GMT -5)
Hi and welcome to our forum,

Sorry that your son and family is going through this. But glad that you have found us.

We do encourage all new members to read our "New to Lyme" start here thread at the top of the page. It has useful and important information about detoxing, testing, symptoms and more.

Not sure if your familiar with Stephen Buhner's book on co infections, specifically Bartonella, for help with the lymph system he suggests Red Root. It is something to discuss with your LLMD and see if it would be helpful for your son's situation.

Always do your own research about a herbal and check for side effects and contradictions.

I don't know enough about this testing issue so...

Others will be along that are more experienced to answer your question about the testing.

Take care and I wish your son the best of healing, Jo
Posted 12/4/2017 9:25 PM (GMT -5)
7 day flares are either babesia or bartonella symptoms from the two are more shades of gray than black or white.

when i did this test i was told to cease any bug killing meds/herbs for 24 hours and to do moderate exercise to draw them out of deeper tissues. if your son is doing meds i would stop 48-72 hours before to let them proliferate more.

still if you are going to see an LLMD they should just treat all 3 B's (borrelia, bartonella, babesia) as it's likely most people these days have all 3 + there's crossover to kill other pathogens not listed.

best antibiotics for bartonella are rifampin, bactrim and cipro/levaquin.
Posted 12/5/2017 6:24 AM (GMT -5)
cb7,

I am glad you found us. In regards to your question about the DNA connexions test. I can give you a few pointers as I just had mine come back. I have dealt with chronic issues since 2009 and was negative by all other testing methods and was being treated based on clinical diagnosis.

The DNA connexions I completed after research led me to a hospital out west who was trialing it and had great success.

I followed their advice which was called a provoked test. Their procedure was a one-hour deep tissue massage focusing on areas around joints and muscle fascia. Their reason was that because of the fact that these infections like to go to areas such as deep into tissues and in and around joints and will stay there they provoke them to come out into the bloodstream.

They had their patients empty their bladders right before the massage and took the first urine after. In the last test that they did out of 122 patients tested 120 came back positive after failing other methods. In my case, I was not symptomatic when I had mone done and mine was positive for Borrelia and Bartonella hensalae.

While he is having symptoms though is when the bacteria is moving and growing so it could help but don't fret if you miss it by a day. I know for the normal testing they say best chance is when symptomatic

Nick
Posted 12/5/2017 11:25 AM (GMT -5)
Thank you, Rikky1 and nberg. This is very helpful. nberg, did you replace the 30 minutes of exercise recommended by DNA Connexions with the deep tissue massage? Or did you do both?
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