for those of you who have recovered

Welcome to our community, sickoflyme123ct!


My tremors went away early on in treatment. Actually my leg tremors went away even prior to treatment.

The skin wrinkles - not sure...i have them bad on the back of my hands...certainly lightning it's worse.

Not changed for the better...unfortunately...

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Edit: You said "For those of you who have recovered..." I am not fully healed yet...but wanted to post my experience anyway.

No more tremors or shaking. I had vibrations too and tics. The tic on my lip was so annoying. All gone with treatment.

Wrinkles and crepe skin - well, I'm old and that hasn't gotten worse. I think it got better when I healed, but I didn't much care about that. I had so much worse things to recover from that the skin was the least of my problems.

I did notice that being in water my fingertips wrinkled a lot faster than my sisters. She never had lyme and is 16 months younger than me.

I just keep doing my collagen and biosil even though I healed.

There are many different types of tremors. Not everyone with lyme has the same type. Just like in the non-lyme world, there are many causes.

Motion type of tremors are different than Parkinsons tremors (a specific resting tremor).

Here are 8 types : /en.wikipedia.org/wiki/Tremor

In our case some are related to anxiety, a "toxified" body, adrenal or thyroid issues with the infection, lack of sleep. These all influence the nervous system. One could pool them all together to fall under "nuero lyme", which is somewhat of a buzz word though.

It has also been noted that some with identifiable autoimmune conditions also have tremors.

What I have noticed in co-workers: Many smokers have tremors, until they light up.

Hypertension can be another (with or w/o lyme).

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My tremors improved but are not 100% gone, but way better. I had very ridged, shaky MS like movements for a while. Sleep, thyroid and time duration of and after physical activity have still been an influence in my case.

I never had the skin issues mentioned, but other skin issues that corrected.

The tremors in my legs were at the same time I got weak.

I had to stop driving because when I was stopped at a red light...my leg was weak and shaking so bad I didn't know how much longer I could keep the brake pedal pressed.

That day I stopped driving and working.

I am driving again...but still not working.

My hand tremors - right hand resolved soon after treatment, but my left hand (that side has nerve issues from lyme and co's) took a few more months.

sickoflyme123ct said...

dacarte3 - What did you do to address the neurolyme?

shinier, papery wrinkles is definitely a good way to describe what I have.

My neuro symptoms were parkison and ALS like with head fog thrown in for fun. When I learned the reason(s) why lyme may cause these symptoms I addressed those possible causes. A lot of the time what is to blame is toxins that lyme creates and gets into the brain and CNS. So I went with this possibility and researched ways to combat the neuro toxins.

There's several toxins that lyme is directly or indirectly responsible for so I researched what toxin can create these particular symptoms when it comes to lyme. That research then led me to the fact that lyme is known to disrupt the healthy production and lifecycle of a compound called Acethycholine (ACE). It's this compound that is responsible for nerve health/nerve communication and the lack ACE can disrupt the nerve signal from the brain to the muscles.

Thus, parkison and ALS like symptoms. I took a chance that this was what in fact was happening to me and then researched what can help with this.

My conclusion was help the body produce more acethycholine and help it maintain healthy levels (for lyme toxins are excessively destroying it).

That protocol is Choline itself, and Huperzine A (precursor to acethycholine), and then EGCG and Fish oil to help detox and in theory aid in helping the body keep the healthy levels of Acethycholine.

The creepy shiny skin. That is know to be a subset of lyme symptoms called ACA. I had some going around the heels of my feet when I first got lyme. Treatment, plus daily treatment with coconut oil is what I did.

I think my cough was mycoplasma. I did cordyceps for it.

I should say -- I did cordyceps and my cough slowly went away.