I’ve been told I have symptoms of Lyme disease. When I was 38 I was diagnosed with fibromyalgia
I read here a lady was having itching of nipples, I’ve had this since 2011 . No doc can figure out why. I also have interstitial cystitis which isn’t related and cfs with centralized pain from adhesive arachnoiditis. I’ve read dr Rawls site for healing program that he beat Lyme disease with. I did grow up in mn and moved to ax after I graduated my RN degree. I can no longer work, I’m disabled since 2013 and finally won my ssd in 2016. Most of my pain is from arachnoiditis which I got from getting epidural steroid injections in my back. I do not recommend anyone get these or myelogram. I had back surgery in 2015 to remove a large arachnoid cyst in my upper spine and double laminectomy. I get waves of allodynia which is skin sensations I flush the burn and chill all at the same time. My insides feel like I could actually combust. I can’t tolerate extreme hot or cold temperatures. Please can anyone tell me if this sounds like Lyme. Thank you

Hi Chase, welcome to our community.


i have/had sweating, burning skin, flushing and shivers (not sure if it's considered chills)

- I am cold all the time.

I don't think you want me to list all my symptoms here...I have/had a lot.

But here's a short list: Nerve pain, head pressure, fasciculations, joint pain, short-term memory issues, Bakers' cysts, frozen shoulder, tailbone pain, back pain, neck pain, swollen/tender lymph nodes, weight loss, weakness, foot pain, rib pain, tremors, weakness

I'll stop there...

Hi and welcome to our forum Chase269,

Sorry that you are having these issues and symptoms. We have a list of symptoms that you might want to check out. Its on our"New to Lyme"start here thread at the top of the page.

We ask new members to check it out anyway and it has information on Lyme, detoxing, testing and more.

Many members here have Lyme and various co infections.

Many of the symptoms can overlap between the different infections but some of the co infections have specific symptoms that are attributed to them.

If you need to find an Lyme literate Md that can help make a clinical diagnosis, you can do that here but you would need to enable your email in your profile. That way members can send you recommendations. Then you just start a new post"Searching for an LLMD in your area"

You can also email Girlie are head moderator and she can check her list for your area.

You can also go to ilads.org and do a physician referral search for your area.

I am truly sorry that you are going through this and I understand how it feels to be searching for answers to what is going on, many members here also have been through this.

You will find a great group of caring and knowledgeable people here to answer questions and offer support.

Others will be along soon, Take care, Jo

"Most of my pain is from arachnoiditis which I got from getting epidural steroid injections in my back. I do not recommend anyone get these or myelogram. I had back surgery in 2015 to remove a large arachnoid cyst in my upper spine and double laminectomy. I get waves of allodynia which is skin sensations I flush the burn and chill all at the same time. My insides feel like I could actually combust. I can’t tolerate extreme hot or cold temperatures."

Were those symptoms present before your surgery? (The skin sensations/ burn/chills/flushing)

..and why were you getting the epidural steroid injections in your back? To ease the fibromyalgia pain?

Lyme may have gave you systemic pain and neuropathy ,fibro is a bs dx btw . I saw and confirmed mine with a simple microscope at 1200x . The id doc was gunna let me die .....start herbs or bvt or find a llmd stat if you wannna save yourself ...scott forsgren had the exact same symptoms ...see betterhealthguy.com