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Herxing timeline, Path to recovery?

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Posted 2/8/2018 7:19 PM (GMT -5)
After 6 months of frightening symptoms:
Chest pain, shortness of breath
Paresthesia (painful stabbing all over my body), Muscle Twitches
Head pressure, brain fog, drowsiness, fatigue
Blurry Vision
Anxiety/depression
Headaches
Tinnitus

and after going to my PCP, Two Rheumatologists, Hematologist, neurologist, cardiologist i was told by my primary care provider that it was anxiety causing all my symptoms....shortly after I became aware of LLMD's in my area (NJ) and immediately booked an appointment. I began treatment the first week of January 2018 with Bactrim given to me from my LLMD, since i had a positive western blot test.

Two weeks into the medicine i believe i began to herx as my symptoms especially the paresthesia increased to a very painful point. It then calmed down for a week and the pain returned soon after. I visited my LLMD and told him what had happened and he responded by saying the medicine is working.

I have become worried as to when and if the herxing will become less severe. I also am worried that the medicine isn't helping and i am just become worse with my symptoms. The pain keeps me up at night and goes on throughout the day, it will usually last a week and then calm down. I am a little over a month in and the herxes seem to happen every other week. Has anyones herxes happened that frequently?

I am wondering how often people herx? and the severity of the herxes

Thanks to whoever reads and/or replies!
Posted 2/8/2018 7:55 PM (GMT -5)
Hi and welcome to our forum ltc1225,

Glad you are here but very sorry that you are fighting these infections. Its good you have found an llmd, that is important to have a Lyme literate MD.

Herxing can be different for everyone. Have you begun any detoxing? If not Epsom salt baths, drinking water with lemon juice all day, and dry brushing are a few methods to start.

I seem to herx with any changes or increases in treatment.Some of my worst neuro herxs happened from certain herbal tinctures.

Has your llmd suggested to back down on the doses you take, that way your body can have some time to recover from the herxing.

Also binders like activated charcoal, zeobind by biopure can help when herxing., but need to be taken a few hours away from any meds or supplements as it will bind those too.



We also encourage all new members to read our New to Lyme start here thread at the top of the page. It has good information on detoxing, symptoms, testing, Lyme and more.

Well take care and I wish you the best of healing, Jo
Posted 2/8/2018 9:11 PM (GMT -5)
your symptoms sound like you're at least dealing with good olde babesia which is rampant in the NJ area. in fact if you tested 100 people with no symptoms i'd hazard a good 20-30% have this pathogen but are asymptomatic.

bactrim will help some with all lyme, babesia and bartonella esp if you are just treating but it will not eradicate it. its 2 abx in one so good for preventing resistance but you really need to be on an anti-malarial and probably another abx.

have you only been taking bactrim since you started? what are the initials of your LLMD in NJ? (you can't post names here).
Posted 2/8/2018 10:00 PM (GMT -5)
I started with only bactrim and i have added Transfer factor Lyme plus from research nutritionals this week. My llmd recommended it for me. My doctor from from NJ is SS.
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