Dapsone anyone

tcoach1

Regular Member

Joined : Dec 2014

Posts : 258

Posted 2/27/2018 8:40 AM (GMT -5)

I am taking Dapsone, with tindemax and clarimyocin (not sure of spelling) now. Stress outbreak as usual has caused both ankles to hurt. No swelling butrally hurts. Has anyone here used dapsone?

NicHostetler

Veteran Member

Joined : Mar 2017

Posts : 867

Posted 2/27/2018 9:26 AM (GMT -5)

I know LymeSick is and the last time he posted he said he wasn't feeling well. This was about a week after he started I believe.

Are you making sure your iron levels are ok throughout treatment?

We are all curious to know how this works for people so please let us know if you see improvement!

Girlie

Forum Moderator

Joined : May 2014

Posts : 48577

Posted 2/27/2018 12:56 PM (GMT -5)

bumping for more views - people taking Dapsone.

LymeSick 🌟

Regular Member

Joined : Aug 2017

Posts : 234

Posted 2/27/2018 1:43 PM (GMT -5)

Thank you for remembering me NicHostetler.

I have picked it up from the pharmacy but have been feeling too bad to actually take it.

I'm going to take it very soon though. Will keep everyone updated.

Rikky1

Veteran Member

Joined : Jun 2015

Posts : 3153

Posted 2/27/2018 2:45 PM (GMT -5)

i was supposed to start dapsone yesterday along with daraprim but i'm taking a week off and will start monday. i'm sure its going to kick my butt ;o)

tcoach1

Regular Member

Joined : Dec 2014

Posts : 258

Posted 2/27/2018 5:07 PM (GMT -5)

Yes I am taking my first blood test tomorrow. This apparently is strong stuff and can cause anemia

bluelyme

Veteran Member

Joined : Nov 2015

Posts : 6219

Posted 2/28/2018 5:45 AM (GMT -5)

my friend had a bad delayed sulfa like reaction after being on it for a few months setbacks worse than gains reported ...one of dr h patients did small dose for a bit the moved to rife ..i had script filled and yet thought bee venom to be safer and more effective for me ....

LymeSick 🌟

Regular Member

Joined : Aug 2017

Posts : 234

Posted 3/1/2018 9:29 PM (GMT -5)

Ok guys, I think I'm starting next week, just wanted to let you all know.

Girlie

Forum Moderator

Joined : May 2014

Posts : 48577

Posted 3/1/2018 9:32 PM (GMT -5)

Good luck.....and please report back how it goes!!!

Rikky1

Veteran Member

Joined : Jun 2015

Posts : 3153

Posted 3/1/2018 9:36 PM (GMT -5)

bluelyme i've been on bactrim for over 18 months. though its in the sulfonamides class and dapsone is a sulfone they are distinct but similar so hopefully i'll be fine on it.

Lapis_29

Veteran Member

Joined : Sep 2017

Posts : 1777

Posted 3/1/2018 11:00 PM (GMT -5)

for the ankles, try dmso, its a fantastic anti inflammatory and pain reliever, works great for joint and tendons.

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