If you were healed from Lyme but relapsed...

DaCarte's positive news post from yesterday got me thinking.

I'm looking for information from those of you who've gotten into "remission" but then relapsed, how exactly did you know you were relapsing (eg recognized symptoms or new symptoms)? How long did you ignore symptoms returning? How long did it take to get back to "remission"? What did you do to get well again? Did you treat all infections or just the one that was flaring?

What things did you quit doing before you got sick again? Were you taking supplements or still detoxing at that point? Sleeping well? The getting enough sleep thing is what I think has kept DS well this year.

What advice do you have for staying in "remission"?

I'm thinking ahead to DS as he becomes an adult/leaves for college, hopefully, in several years and would like to know how to start brainwashing, just kidding, prepare him for the future. I don't envision him ever doing detox or taking supplements regularly - he just won't which could be a challenge. He's one of those charge ahead types and has a new ADHD diagnosis (definitely had before Lyme which worsened it - he just was able to get by until now-he's much better and realized the ADHD symptoms didn't go away).

Thanks for any insight!

I thought I was "cured" for about 18 months, maybe twice. Each time I started having more and more of the same symptoms, and I went to a doctor not knowing that it was Lyme (I should have considered it sooner), and I got a positive test and started treating again. I don't think I would have relapsed if I had got on the right antibiotics the first time.

Both times I wasn't on any treatments at all when I relapsed. I had the most success taking herbs until they don't seem to help any more. Getting more sleep never helped me. I would sleep all day, but I would still feel tired.

@ RDXtransplant - I did but it's been awhile. I'm hoping to get DS to try some HBOT or something after he finishes his abx to try and knock everything off. It will be so hard to get him to do any herbal support. He is over it all at this point!

I will report back what I find when I have time to do some more sleuthing on the internet about this topic. I also plan to ask at DS's next LLNP appointment in a few weeks.