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MCAS - Does Cromolyn feel worse at first?

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Posted 5/23/2018 10:30 PM (GMT -5)
Hey, everyone. Jumped on the MCAS train and just started taking Cromolyn sodium, the water solution.

I'm reading it takes time to kick in, but does anyone have experience with feeling worse at the start? I've had horrible depression this past week, and other than Lyme just being a ****, the only thing I've changed is starting the Cromolyn.

I also feel MORE itchy and sensitive than usual.

So should I stick with it, because it will subside in a few weeks and start helping, or should I quit, because depression with Lyme is such a bad combination - I rely on those happy thoughts!

Was due to start Coartem next week, but I'm really afraid of a herx on top of depression!
Posted 5/24/2018 3:31 PM (GMT -5)
I don't know... I just wanted to say that at one point I seemed to react to everything, and it did go away after a while. I never had any allergies... until I got sick . My theory is that babesia plus Lyme can equal allergies. Have you improved since treating the babesia? That's just an idea I had.

Possibly if the allergy medicine continues to not work, maybe that is the case?

I really don't know much about allergy medicine, though. Taking garlic and andrographis seems to help my allergies, and I always tried to avoid taking allergy medicines in the past, I'm not sure why.
Posted 5/24/2018 4:10 PM (GMT -5)
im taking chromolyn sodium ocular drops. it helps.
have not noticed more itching.

are u planning to take h1 and/or h2 blockers too?
i take levocetirizine morning and cetirizine evening.
Posted 5/25/2018 4:47 PM (GMT -5)
I take Allegra, as I have for 18 years.

Most pills have some form of corn in them, which I cannot have, so I go the herbal route whenever possible.

I tried Pepcid for a while, but it wasn't really doing anything.

I switched to quercetin, nettles, bromelain, and vitamin C, and my acid reflux (the dragon breath I lamented about earlier) has mostly disappeared.

My MCAS, if present, is pretty mild. DIfferent triggers affect different things: mental, stomach, skin.

Mostly I was just looking for experiences with Cromolyn.
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