Where you told no Lyme in your area in 2018? Did this lead to a misdiagnosis?

Bay Area Lyme Foundation is looking for help for a study/story.
This is their Facebook post from yesterday:

Hey All - We're looking for a little help: Were you recently misdiagnosed by your doctor because you were told that there is no Lyme disease in your area? If so please like this post. let us know where you live and direct message us. We're working on a story, and may use yours. Please note, we'd like to speak with people who experienced this in 2018. Thank You!

If you are not on FB you can contact them through their website. They are looking for people all over the country. If you are not familiar with them they are involved with the funding of a lot of the research that is being done.

My daughter went to an Infectious Disease Doctor in Fort Worth, TX and first thing out of her mouth was "Lyme is not in this area!" She never even considered the possibility of Lyme although my daughter has all the symptoms. She said "Lyme Drs are quacks and all the want to do is take your money", but yet she wanted to send my daughter to a rheumatologist which she's already been to and a neurologist which she's already been to and told me she couldn't tell me what was wrong with her then charged me $549!

Tburd said...
I forgot to add her dr app was May 30, 2018

Tburd - did you find a LLMD for your daughter?

Yes, Girlie I have but not pleased with him as he had brain surgery a year ago and doesn't seem to remember one patient from the next. I'm concerned because he is repeating treatment on my daughter. Right now her WBC keeps going lower and I had to ask him if I should take her off of antibiotics. Now her symptoms are back and she feels horrible.