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Is Muscle Twitching Pretty Common in Lyme (Fasciculations)

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Posted 7/30/2018 10:46 AM (GMT -5)
I've been having a serious flare the past week or so and it's got me anxious. They are mostly in my calves and feet. But depending on the day, they can be anywhere. Today is calves, feet, thighs, and rear end. The calves are nearly nonstop.
Posted 7/30/2018 10:53 AM (GMT -5)
It's a question i have asked many times. I do know i have twitching everywhere and not just one type. I will say that mine started in my calves over 3 years ago now. Spread to my feet first, and then migrated everywhere else (arms, face, torso)

There is a medication section in Buhner's book for lyme(not bart) that talks about treating twitching specifically.

Also others like Missouri has mentioned that twitching has been greatly improved with lyme specific treatment (mino and ceftin). Even though mine has not imroved at all( rifampin, mino and then cefdinir)
Posted 7/30/2018 10:55 AM (GMT -5)
Have you changed anything? Gone up/down on your medications or changed your diet or medications?

It does happen, specially with Bartonella.

For me, most of my symptoms in my legs and feet are Bartonella related. They have been so bad at times that when they twitch I feel like my knees will kneel/fold over for a second.
Posted 7/30/2018 11:16 AM (GMT -5)

Healing98 said...
Have you changed anything? Gone up/down on your medications or changed your diet or medications?

It does happen, specially with Bartonella.

For me, most of my symptoms in my legs and feet are Bartonella related. They have been so bad at times that when they twitch I feel like my knees will kneel/fold over for a second.

I actually think it's a flare. But not sure. I finished up 40 hyperbaric treatments 6 weeks ago and started going downhill 2 weeks afterwards. I have been changing my diet up and doing heavy dose probiotics. I just started bvt Saturday, and it started before then. I had this before while I was treating.

I think mine is bart as well. Hopefully the bvt will get it. It bugs the everliiving heck outta me.
Posted 7/30/2018 4:51 PM (GMT -5)
I had twitching in many places in my body....

It went away with treatment.

Came on again for a few days during my latest babesia treatment. Is it because babs is causing the twitches....OR is it because I'm now not treating bartonella?
I do think it's the latter - because I inserted some rifampin into my protocol last cycle and they're gone again.
Posted 7/30/2018 5:00 PM (GMT -5)
I had some twitching and jerking briefly when I started antimicrobial herbs for bart.
Posted 7/30/2018 8:30 PM (GMT -5)
Your post reminded me of something interesting that happened to me that I'll share with you.

A few years ago, when my infection was at its worst, my wife and I flew to visit some relatives. At the airport I had to go through the new scanners where they can see your whole body. Well, when I got scanned, it showed that I had something dense and foreign in both of my quadriceps/front thighs. The scanner doesn't show detail like an x-ray machine, it just uses color to show density. Both quadriceps showed red to indicate an alarm.

I was pulled to the side and the TSA person did a physical pat of my things and ran the hand-held metal detector over my front. There was nothing there, just my jeans and legs. Nothing in my pockets either. When I was pulled to the side I saw the image and my frontal thighs were colored in red where the rest of the body was green. I asked them what it had shown and they said that the machine had detected an anomaly so I had to be manually scanned.

Up to this day I wonder if the machine actually detected my Bartonella infection.

At that time I was having such awful Bartonella symptoms. I remember that at night I had to sleep in a fetal position because my legs would hurt being stretched out. When I walked, my thighs would feel burning pain at the muscles/nerves.
Posted 7/30/2018 10:59 PM (GMT -5)

Healing98 said...
Your post reminded me of something interesting that happened to me that I'll share with you.

A few years ago, when my infection was at its worst, my wife and I flew to visit some relatives. At the airport I had to go through the new scanners where they can see your whole body. Well, when I got scanned, it showed that I had something dense and foreign in both of my quadriceps/front thighs. The scanner doesn't show detail like an x-ray machine, it just uses color to show density. Both quadriceps showed red to indicate an alarm.

I was pulled to the side and the TSA person did a physical pat of my things and ran the hand-held metal detector over my front. There was nothing there, just my jeans and legs. Nothing in my pockets either. When I was pulled to the side I saw the image and my frontal thighs were colored in red where the rest of the body was green. I asked them what it had shown and they said that the machine had detected an anomaly so I had to be manually scanned.

Up to this day I wonder if the machine actually detected my Bartonella infection.

At that time I was having such awful Bartonella symptoms. I remember that at night I had to sleep in a fetal position because my legs would hurt being stretched out. When I walked, my thighs would feel burning pain at the muscles/nerves.

Wow, that is very interesting. I'm travelling again in a week...maybe they'll show something when I'm scanned too!!!
Posted 7/31/2018 9:01 AM (GMT -5)
I believe twitching is a common symptom of TBI's.

There is always a lot of talk about twitching here on this forum, almost every LLMD's symptom questionnaires contain questions about twitching, and if you read through the BFS (Benign Fasiculation Syndrome) forums many, many of the BFS'ers suspect / or are diagnosed with Lyme eventually.

As my Lyme knowledge continues to accumulate, I am more and more suspicious that my infection was one of the Relapsing Fever Borrelias, and Ehrlichia. Plus I think I have carried Bartonella for a long long time. Lots and lots of cat bites and scratches through the years.
Posted 7/31/2018 9:10 AM (GMT -5)
Thanks Missouri.

Ellie Lobel, founder of bvt for lyme, says that Bartonella is an opportunistic infection. Many people carry it, but it isn't until lyme, or some other immune lowering infection comes around and allows it to thrive.

I believe this exactly what happened to me. I've always had cats. Been bit and scratched. And had to go to the er for an infected bite in 2012. I believe it's been chilling out in my body waiting to explode. And the tick in 2016 lit the fuse.

Honestly, I think I was lucky the tick bit me and left a rash. I was already having some weird symptoms leading up to the tick bite. Had it not been for researching lyme and coming across Bartonella, who knows when bart would have reared his head and what types of diagnoses I would have received.

Post Edited (Hoagie) : 7/31/2018 8:14:08 AM (GMT-6)

Posted 7/31/2018 9:16 AM (GMT -5)
Ive had twitching that scared the life out of me. Magnesium did nothing for me and I was starting to get to that 'point' with it... Had the negative EMG and NCV, neurologist said I was perfect.

Then I read about the way that the body uses vitamin d in conjunction with calcium... Went back to some old bloodwork, saw low D levels and started supplementing it - huge difference. Im not a week in to D and Calcium but the fasiculations have dropped by 3/4 at least and I am one happy ****ing camper.

Magnesium and Calcium are tricky to test for because they dont stay in the bloodstream very long and the body starts to 'steal' them from muscle and bone structure if you're not getting enough. Run out of magnesium and you run out of heart beats so the body keeps taking it to maintain vital processes rather than worrying about whether or not you're having a panic attack or twitching like a fish thats just been landed.

So do as much research as you can, and push your doc for as much blood work as s/he will allow.

Good luck, keep faith, heal well!
Posted 7/31/2018 9:56 AM (GMT -5)

Hoagie said...
Thanks Missouri.

Ellie Lobel, founder of bvt for lyme, says that Bartonella is an opportunistic infection. Many people carry it, but it isn't until lyme, or some other immune lowering infection comes around and allows it to thrive.

I believe this exactly what happened to me. I've always had cats. Been bit and scratched. And had to go to the er for an infected bite in 2012. I believe it's been chilling out in my body waiting to explode. And the tick in 2016 lit the fuse.

Honestly, I think I was lucky the tick bit me and left a rash. I was already having some weird symptoms leading up to the tick bite. Had it not been for researching lyme and coming across Bartonella, who knows when bart would have reared his head and what types of diagnoses I would have received.

Dr Mozayeni contradicts this statement. He says that bartonella is itself immunosupressive and not oppurtunistic. He says that because both bart and lyme live in collagen that they cause similar symptoms. I tend to believe him given his stature with bartonella.
I thought for the longest time that there's no way i just have bartonella but I've tested negative for lyme so many times i guess i have to settle it
Posted 7/31/2018 10:29 AM (GMT -5)

Hoagie said...
Thanks Missouri.

Ellie Lobel, founder of bvt for lyme, says that Bartonella is an opportunistic infection. Many people carry it, but it isn't until lyme, or some other immune lowering infection comes around and allows it to thrive.

I believe this exactly what happened to me. I've always had cats. Been bit and scratched. And had to go to the er for an infected bite in 2012. I believe it's been chilling out in my body waiting to explode. And the tick in 2016 lit the fuse.

Honestly, I think I was lucky the tick bit me and left a rash. I was already having some weird symptoms leading up to the tick bite. Had it not been for researching lyme and coming across Bartonella, who knows when bart would have reared his head and what types of diagnoses I would have received.

Haha me too!

I think I carried Bart a for many years until my tick bite lit my fuse too. My reaction to the tick bite concerned me, but it wasn't a bulls-eye rash. It was a lump with a small reddish rash about the size of a coin. It lasted for 4-6 weeks if I remember right... Oh I wish it would have been a bulls-eye and a little bigger...
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