Hello all,

19 year old male, UK based, living with an unexplained chronic illness for 2-3 years. In that time I’ve had almost everything under the sun ruled out (diabetes, thyroid, ANA, IBD, celiac, lactose, nutrition, psychiatry, the full works), everything except for Lyme disease.

The diagnoses I have are:

Unspecified anemia (my iron and B12 are normal)
Low white blood count
Neutropenia
Low HbA1c (non-diabetic)
Small Intestine Bacterial Overgrowth (treated, improved diarrhoea)
Moderate depression

My symptoms

- Chronic daily headache (2+ years)
- Chronic nausea (2+ years)
- Paresthesia in all my limbs (since at least Jan, significantly worse in recent weeks)
- Heart awareness/palpitations (2+ years)
- TMJ type pain
- Dry mouth
- Recurrent balanitis (1+ year)
- Muscle twitching
- Muscle aches (recent months)
- Unexplained weight loss (since spring)
- Constant brain fog (2+ years)
- Anxiety sensations (2+ years)

I have also only now noticed I have red joints; strikes me as odd given I’m anemic; with some slightly “off” skin on one elbow (maybe unrelated). I don’t have any joint pain, which I understand to be a significant symptom, though the muscle aches have gotten more frequent of late.

My research tells me my presentation would be atypical. The lack of joint pain, I don’t remember any bite, I never had a rash, I don’t even remember an acute illness preceding the chronic stage. Yet the progression of my symptoms, above everything else the paresthesia, which has become severe (thankfully there is no nerve damage per testing), leaves me in no doubt as to a physical problem.

The possibility I have this illness has me wracked with distress. Circumstance means I am unable to get tested for the disease for another 2 weeks at least. With the rate my condition is deteriorating at the moment, on top of my reading of late Lyme, I have many concerns about my prognosis. Are my chances of a a full recovery good? Is the current delay in reaching diagnosis/treatment likely to have an impact on those chances? Could I be caused permanent difficulty? What I know for certain is simply feeling this sick without relief is very debilitating in of itself, let alone dealing with the mental stresses of a worsening future because I’m unable to act on my concerns sooner. Any insight is welcome.

This is JUST my opinion that your having an unexplained illness for 2-3 years isnt necessarily considered 'late'.

With that said, the question is, "HOW many years go by to consider it 'late'? I.M.O., 2-3 years is STILL early enough to treat and even heal.

Its best to RULE OUT virals that team up with the infections. Bacterium on their own do die with ABX, BUT the virals help them thrive! There are viruses that actually provide power for the bacterium survival.

I addressed the virals first, then went after the other infections.

IF you do NOT have to deal with virals, and your immune system is strong;you CAN beat the Lyme and co-infections.

Youre young, therefore much better chances...

Get in to see a Lyme literatr Dr., and good luck

Hey,

I have a few English friends who are suffering with lyme and chronic illness. They both see the same holistic doctor. I could give you the doctor's information in a PM, if you want?

Lymepiper - please could you forward me the name of the practitioner too

bluelyme said...
Imo prognosis has a great many factors ...proximity to legitimate treatment, treatments chosen , amount of money time and toil one is willing to spend . Level of infection ,number of pathogens ,current constintution and willingness to get better ...

Yes...agreed.

It's difficult not to get 'weary' when this becomes your focus in life....for years....

bluelyme said...
U started 1 year b4 i did girlie so i can only imagine .digital hugs!...would you ever consider injectable venom.?.guy makes it in your neck of the woods?

Yup, I would....consider.... not the real deal? no bees for me?



maybe when I get fed up with all this other crapppppppppppppp.