Good evening everyone. I’m new as of tonight.

I’m just restarting my CIRS protocol after finding out I was living in a moldy house, which meant two years of treatment time and a whole lot of money down the tubes; plus I got worse. I’m herxing at 1/8 tsp (2x a day) of activated charcoal and betonite clay mix bought from my doctor, which I’m pretty much against purchasing supplements and treatments from doctors offices now. I’ve never liked doing it.

I wanted to start a bit of a mix of Buhner’s protocol for Bartonella now as well. According to Buhner, his protocol for Bartonella does not create a herx. Has anyone else with CIRS treated for Bartonella at the same time? CIRS and Bartonella are my two worst diseases, followed by EBV, and then Lyme disease.

I appreciate any thoughtful advice. Thank you!

bluelyme said...
welcome ...the inflammation may be caused by bart and mold....maybe in for a roller-coaster...did u move /remediate? binders rarely herx imo ....drink lots of water ,lots

consider rife or other modalities, bvt has effect on both and ebv

Thank you bluelyme! I moved 4 weeks ago into a brand new apartment building. That doesn’t mean there isn’t mold though. I sent of a dust cloth sample from my apartment to Mycometrics for HERTSMI testing, just as I had with my house. Waiting for results. I know VOCs were a huge problem in the beginning, so I bought an Austin Air Healthmate air purifier.

I drink so much water through the day that I’m so sick of having to go to the bathroom so frequently.

I’ve tried BVT. It wasn’t for me. It made me more sick. A reknowned doctor that used it in his practice told me to stop. He said it was absolutely causing havoc I didn’t need with my immune system.

I don’t know much about rife, but have heard both positives and negatives.

I also have CIRS, bartonella, and Lyme, and other stuff. I started Buhner's protocols 9 months after leaving my moldy house. I have been on the protocols 14 months now and have made little progress. I still have some mold exposure. It is very difficult to find a non-moldy house where I'm from in the southeast. I'm house hunting now, and it's wreaking havoc on my health due to mold and chemical exposures.

I still have strong sensitivities to both mold and chemicals. I do not detox well at all. I can only tolerate tiny doses of herbs and pretty much most other stuff, because it makes my symptoms worse.

I have been told that sauna is one of the best ways to detox mold and other toxins, but I have not had the opportunity to do it. If you have access, I would highly recommend it.

My advice to you is to not start treatment yet. Honestly, it took 7 months before I felt like I'd gotten most of the mold toxins out. Once you verify you are out of mold exposure and feel like you've gotten the mold toxins out and are less sensitive, then consider treatment.

Also, do everything you can to minimize exposure to chemicals. Use non-toxic products with no fragrance, use air purifiers, etc.

As for binders, cholestyramine is the best binder for CIRS, but many have trouble tolerating it because it makes symptoms so much worse (herxing).

Bottom line, I would confirm no mold first, work on detox and any gut issues second, and then consider treatment for bart/Lyme/etc.

I forgot to mention about herxes. Buhner's protocols cause herxing for many, if not most on this forum. Start at 1/8 to 1/4 of Buhner's starting doses and increase slowly.

Post Edited (WalkingbyFaith) : 8/9/2018 3:08:28 PM (GMT-6)

WalkingbyFaith said...
I also have CIRS, bartonella, and Lyme, and other stuff. I started Buhner's protocols 9 months after leaving my moldy house. I have been on the protocols 14 months now and have made little progress. I still have some mold exposure. It is very difficult to find a non-moldy house where I'm from in the southeast. I'm house hunting now, and it's wreaking havoc on my health due to mold and chemical exposures.

I still have strong sensitivities to both mold and chemicals. I do not detox well at all. I can only tolerate tiny doses of herbs and pretty much most other stuff, because it makes my symptoms worse.

I have been told that sauna is one of the best ways to detox mold and other toxins, but I have not had the opportunity to do it. If you have access, I would highly recommend it.

My advice to you is to not start treatment yet. Honestly, it took 7 months before I felt like I'd gotten most of the mold toxins out. Once you verify you are out of mold exposure and feel like you've gotten the mold toxins out and are less sensitive, then consider treatment.

Also, do everything you can to minimize exposure to chemicals. Use non-toxic products with no fragrance, use air purifiers, etc.

As for binders, cholestyramine is the best binder for CIRS, but many have trouble tolerating it because it makes symptoms so much worse (herxing).

Bottom line, I would confirm no mold first, work on detox and any gut issues second, and then consider treatment for bart/Lyme/etc.

I forgot to mention about herxes. Buhner's protocols cause herxing for many, if not most on this forum. Start at 1/8 to 1/4 of Buhner's starting doses and increase slowly.

Thank you for the heads up on Buhner’s protocol. Perhaps he didn’t factor mold into the equation? I’m non-toxic: food, household supplies, bath products, etc. in a week I’ll receive my results, hopefully as negative.

I’m sorry it’s been so hard to find a mold free home. My Dad has a winter house in SC, and has come back to mold.

CSM is not at all doable for me. 1/16 tsp once a day puts me into a constant herx, and my herx reaction is pain and lots of it, if it happens.

Thank you kindly for your advice!

WalkingbyFaith said...
I also have CIRS, bartonella, and Lyme, and other stuff. I started Buhner's protocols 9 months after leaving my moldy house. I have been on the protocols 14 months now and have made little progress. I still have some mold exposure. It is very difficult to find a non-moldy house where I'm from in the southeast. I'm house hunting now, and it's wreaking havoc on my health due to mold and chemical exposures.

I still have strong sensitivities to both mold and chemicals. I do not detox well at all. I can only tolerate tiny doses of herbs and pretty much most other stuff, because it makes my symptoms worse.

I have been told that sauna is one of the best ways to detox mold and other toxins, but I have not had the opportunity to do it. If you have access, I would highly recommend it.

My advice to you is to not start treatment yet. Honestly, it took 7 months before I felt like I'd gotten most of the mold toxins out. Once you verify you are out of mold exposure and feel like you've gotten the mold toxins out and are less sensitive, then consider treatment.

Also, do everything you can to minimize exposure to chemicals. Use non-toxic products with no fragrance, use air purifiers, etc.

As for binders, cholestyramine is the best binder for CIRS, but many have trouble tolerating it because it makes symptoms so much worse (herxing).

Bottom line, I would confirm no mold first, work on detox and any gut issues second, and then consider treatment for bart/Lyme/etc.

I forgot to mention about herxes. Buhner's protocols cause herxing for many, if not most on this forum. Start at 1/8 to 1/4 of Buhner's starting doses and increase slowly.

We sound very similar, Walking. I too have bartonella that made no progress with Buhner's and i suspect CIRS due to my mold issues and a few tests that according to Shoemaker, validate biotoxins. However, my c4a and a few others are normal so that is always where they get strung up. I'm hoping the new mast cell treatments on top of the bart antibiotics may hold some promise. I just passed 7 years and im completely exhausted of this