I posted this but not sure if I put it under the correct heading, forgive me if this is a repeat.
Hello all. I have not posted here in years, due to the fact that my very sick son was told by a very ignoramus doctor that "he was of age and did not have to listen to mom or allow mom to talk to doctors or manage anything in his medical life" Son, then 17 seized on this and angrily told me that I had invalidated his life by defining him down to an illness and refused to think about
treatment so I had to butt out. He then shut me out completely, though he knows zero about
what is going on with his body. He has bart, lyme and probably any number of other infections for most of his life. Many treatment trials. Now 20 and getting sicker by the day, CFS,POTS new gastro distress. Finally we convinced family to help us financially to get him to an LLMD, and he is now willing to cooperate. We were set to go see Dr. R but he got sanctioned (gggrrr)
I am very aware of how we must protect our doctors.
I am reaching out to get any personal perspectives anyone might share on positive or negative experiences with their doctors and those doctor's names and if they are getting well.
I know how different people have different experiences with our doctors. And do know that it all "depends"
If you know MR (and if you don't you might want to check him out- he has many wonderful web nars, and a monthly "zine" subscript
ion for a tiny fee) you will understand the kind of "fit" I was looking to find. Of course HOW the doctor treats is paramount, but I need someone my son will respect and cooperate with.
So, I had chosen Dr. M in MD. Now am hearing a lot of negatives on the office - reasonable complaints regarding difficulties with communications, doctor rigidity, Lyme educated people saying that they feel serious symptoms that they call to report on are not being answered.
I come here today to ask for ideas, suggestions, opinions on doctors.
One of the members on the Beating Bartonella FB group (Sebastien Millon) suggested that he had seen some folks here who'd worked with Dr. J and also with Dr. SP.
I am looking for someone who knows bart well, and who will be communicative and understand how to get cooperation from someone who has had neuro bart and lyme involvement since early childhood.
Thanks and blessings to all in advance.
Post Edited By Moderator (Girlie) : 9/1/2018 2:59:52 PM (GMT-6)