Posted 9/21/2018 9:32 AM (GMT -5)
Relapse. 5 years 8 months 20 days of being in remission until I heard that dreaded word. I had been recently diagnosed with lipedema (post lyme complication? brought on by trauma lyme does to how your body functions?) and had also begun noticing some symptoms (numbness, headaches, joint pain, racing heart, ect.) so I went to my LLMD. He was unfamiliar with the lipedema but said he would look into it before we began discussing the possibility of relapse.
I feel like an old warrior-I fought the battle, I won the war; then I spent the years of peace trying to rebuild and erase the scars of war...yet the enemy rears its ugly head and so I must dust off my armor and sharpen my sword. This time the battle will be different. This time I know which enemy I'm fighting from the start and not being forced to endure 10ish years of misdiagnoses and playing ding dong ditch at death's door. This time I am ready. True, I may be battle worn and scared from my first clash with the enemy but this just means I survived...I did it once and I will do it again and again and again; until I am declared victorious.
Last year I had thought I might be relapsing (turns out I don't process folic acid and so had to take meds) and I was hysterically sobbing for days. Yet here it is...confirmed relapse and I am calm. I've started the lyme protocol my doctor and I already had planned in this event (herbs and antibiotics) and now I'm just trying to find a way to tell my family. My husband knows (he was by my side the first round back when we were just friends in college) and has been my rock. I'm so thankful to have him with me, but I know it is still hard for him to process all of this because it is a little mind blowing for me to deal.
Ok...so questions--any new tips or tricks to help deal with symptoms / herx? Also what are some types of herx from the antibiotics? I remember stomach issues/ nauseous, headaches, and being zombie tired but I'm having a hard time remembering exactly what I need to look out for. Burbur and parsley for the nausea, probiotics, and milk thistle to help protect the liver....and that's it I'm drawing a blank. Any help would be greatly appreciated.
Keep fighting the good fight. #remissionbound #needMOREspoons