*UPDATE* I avoided protocole termination by LLMD; here is my new protocole

So your liver function tests not looking good.

Have you not been taking something specific for liver support?

When my liver enzymes climbed early on in lyme ONLY treatment (no confections) I switched from milk thistle seed extract to one of the Pekana products...for the liver. I'd have to look it up.
It's not cheap...and I think you have to purchase only off Pekana site...(not amazon...etc)

Also, when my liver enzymes normalized....and I started Bartonella treatment...they have not gone up since.

So, I think in my case it could have been the bartonella causing the liver enzymes to go crazy.

Have you had your GFR (kidney) test done?

Can you take a break from treatment for several days...and focus just on detox...and let the kidney/liver function normalize?
then retest.

Alxander said...

I take Malarone and I know that milk thistle reduce it effectiveness.. well so what if Im about to ruin my whole treatment anyways? You guys think I should add Milk Thistle?

Is this true? I just started Malarone and I regularly take milk thistle... any published papers/data on that? My LLMD did not mention anything about that although she said that Rifampin will reduce it's effectiveness.

Dandelion and burdock root are 2 I know of. Check for interactions and contraindications.

Thank you all for your replies. I will add the Alpha logic acid.

Girlie: i sent a message to my llmd to propose what you described.. I wish she would say yes. I’m shattered at the idea of stopping my treatment.

For the record, heres what my 2 main detox product contain:

Cognease detox tincture, 2x a day:
- Spirulina
- Dandelion (leaf)
- Fresh skullcap (leaf)
- irish Moss (Chondrus crispis)
- Hops (Strobiles)
- Fresh Valerian (Root)
- Wood Betony (herb)
- Peppermint (leaf)
- Eucalyptus (Leaf)

Deotx Powder (1 a day with dinner)
- L-Glutamine
- L-Glycine
- Taurine
- Artichoke 5%
- Burdock Root
- Curcumin C3 Reduct
- Milk Thistle 80%
- N-Acetyl Cysteine
- Red Beet Root
- Chlorella
- L-Methionine
- Choline
- Absorbic Acid
- R Lipoic Acid
- Brocoli Extract
- Mixed Berry flavor


I’ve also started taking Turmeric Capsules today...

D-limonene is the best thing out there for your liver detox. Jarrow gel caps, 60 days for $10 cant go wrong.

Thank you so much for making me see it that way.
Friday was one of the most emotionally challenging day for me because of all this.. and I was seeing this as the end for me to seek full remission.

You guys made me feel different.
I’m supposed to have a phonecall with my llmd this week.
Ill pitch ideas everyone here gave me, and if she shut down the lyme war using abx forever, ill find a new LLMD.

Thanks for giving me strenght.

Update in my case, after having my monthly phonecall with my LLMD.
I played it a little bit like all of you mentioned (thank you so much for being there, all of you);
I said that I would be more confortable remaining on ABX, even if it meant to go slower.
She agreed, and here are the changes to my protocole:

PAST:
Nystatin 1,000,000u 1 cap 3x/day
Hydroxychloroquine 200 mg 1 tab 2x/day
Clarithromycin 500 mg 1 tab 2x/day
Bactrim DS 1 tab 2x/day
Doxycycline 100 mg 2 tabs 2x/day
Malarone 250/100 mg 1 tab 2x/day
Naltrexone 1.5 mg 1x/day

NEW PROTOCOLE:
Nystatin 1,000,000u 1 cap 3x/day
Hydroxychloroquine 200 mg 1 tab 2x/day
Clarithromycin 500 mg 1 tab 2x/day
Naltrexone 1.5 mg 1x/day
*NEW* Minocycline 100mg BID
*NEW* Alinia nitazoxanide 500mg BID
*NEW* 3. Rifampin 300mg BID
*REMOVED* Doxycycline 100 mg 2 tabs 2x/day
*REMOVED* Malarone 250/100 mg 1 tab 2x/day
*REMOVED* Bactrim DS 1 tab 2x/day

From what I understand I'm supposed to start by removing the 3 medications all at the same time, and add the new one gradually over a week period of time.

The idea for this protocole is to target Bartonella harder, which seem to be the biggest symptoms I have so far (joint pain, feet pain, jaw pain, calve twiches)
I'm curious to have you guys opinion on this protocole...

My LLND had already warned me about it, but it did hit me like a brick when my LLMD said I was now considered chronic. Can't believe how fast that disease is!

Wonderful, so glad your doctor was willing to work with you. And with some of these meds you remove, like malarone, they can always be revisited and reintroduced down the line. Sometimes it helps lowering the load of one pathogen then wheeling around and hitting the other one subsequently.

The protocol seems good. It makes sense to stop the 3 you are removing, and then add in each new med one at a time. That way you can gauge reaction and response to each new medicine. It is quite an aggressive protocol imo, but hopefully you can keep detoxing as much as possible which should help.

Def heard of alinia being pulsed that way, I don't think it is uncommon. It's a good med, supposedly has some broad coverage: good antiviral, hits lyme cysts, and anti-babesial as well, at least it's suspected to have activity in those areas.

I understand in regards to your response with the word chronic. But at the same time, I never think about these diseases in that framework, something about the word "chronic" I just find offputting. It's merely an established infection, what's fascinating is some people are "chronic" and yet asymptomatic. It doesn't mean it is hopeless, some of us just have more difficult immune responses to the pathogens/toxins which is often what causes symptoms.