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Low cortisol

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Posted 10/18/2018 8:40 AM (GMT -5)
Hey guys.

Just got a call from my llmd saying my cortisol is on the low end 7.8. Wants me to start taking hydrocortisone (I think that’s what they said).

Anyone have any experience with this? This is the first time my cortisol has been low (which my lab results say it’s normal range so who knows)

Thanx.
Posted 10/18/2018 10:55 AM (GMT -5)
I think very low dose is fine.

When we say no steroids were referring to the doses used in testing autoimmune diseases.

Question - have you been testing for cortisol levels frequently with DrJ?

I was only told to test it initially.
Mine was fine.

Do you have fatigue as a symptom?
Posted 10/18/2018 11:05 AM (GMT -5)
Hey girlie,

well i initially tested for it back in april...came back normal...then again in july...came back normal... and now i just tested again next week and its at 7.8 (says in normal range on the results but the clinic says its low). i dont have crushing fatigue.. i think i have normal fatigue from working 8am to 230pm.. then coaching from 3pm-6pm every single day then going home to a 4 and 2 year old.. so yeah im tired but not terribly. the clinic wants me to test it again in 6 weeks...so i have an appt the day after Thanksgiving... i dont know if i wanna take the meds... im iffy about it.... what you think?
Posted 10/18/2018 11:14 AM (GMT -5)

physedgirl09 said...
Hey girlie,

well i initially tested for it back in april...came back normal...then again in july...came back normal... and now i just tested again next week and its at 7.8 (says in normal range on the results but the clinic says its low). i dont have crushing fatigue.. i think i have normal fatigue from working 8am to 230pm.. then coaching from 3pm-6pm every single day then going home to a 4 and 2 year old.. so yeah im tired but not terribly. the clinic wants me to test it again in 6 weeks...so i have an appt the day after Thanksgiving... i dont know if i wanna take the meds... im iffy about it.... what you think?

Interesting - it came back normal in April...but they continue to test you....
Do you do a lot of other tests regularly...ie more than just the Safety Labs (Hematology, liver/kidney function tests)

I would call them and ask why it's prescribed since you are and have been in normal range. Plus you're not suffering with fatigue...
Or instead of calling...just wait for your next appt. It certainly isn't something that can't be put off for a bit longer IMO.
Posted 10/18/2018 11:28 AM (GMT -5)
Yeah thats a good point... back in april my dhea and testosterone were low so she put me on dhea supplement. Then in july my dhea came back super high and my testoterone completely normal... and now my testosterone is low, dhea normal, and cortisol low... all this is insane... one minute its high one minute its low..like what the hell
Posted 10/18/2018 11:48 AM (GMT -5)

physedgirl09 said...
Yeah thats a good point... back in april my dhea and testosterone were low so she put me on dhea supplement. Then in july my dhea came back super high and my testoterone completely normal... and now my testosterone is low, dhea normal, and cortisol low... all this is insane... one minute its high one minute its low..like what the hell

After the July results showing high dhea - were you kept on it?
Posted 10/18/2018 12:04 PM (GMT -5)
Sounds like you have the beginnings of adrenal fatigue so just be concious of it. I've been on hydrocortisone, 20-40mg for almost 6 years. Its very mild, i never had any issues with it.
Posted 10/18/2018 12:13 PM (GMT -5)

Aerose91 said...
Sounds like you have the beginnings of adrenal fatigue so just be concious of it. I've been on hydrocortisone, 20-40mg for almost 6 years. Its very mild, i never had any issues with it.

Aerose - That does seem a bit high to me. Is that prescribed by a LLMD or your 'regular' Dr.?

I thought it was generally 5 mg or less .

Wondering what physedgirl was taking ie dose.
Posted 10/18/2018 12:32 PM (GMT -5)
after my july appointment she had me taking the dhea every other day instead of everyday... the dhea dosage was 25mg 1 time a day
Posted 10/18/2018 1:16 PM (GMT -5)

physedgirl09 said...
after my july appointment she had me taking the dhea every other day instead of everyday... the dhea dosage was 25mg 1 time a day


Oh right - you're not on the cortisone - DHEA instead.

Darn lyme brain.
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