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21 years old, I am losing it and fearing for my life

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Posted 11/2/2018 7:32 AM (GMT -5)
Hello, i am 21 years old (Male) and a (struggling) college student from Rhode Island. I have been dealing with lyme related symptoms for a little over two years now and was recently diagnosed with Lyme and babesia at the end of July 2018. I was actually diagnosed by another LLMD in 2017, roughly a year prior but she did not take insurance so we had to find another dr, who then told me that the test I got was false positive, causing us to go down the rabbit hole again to where I am at now.
This has been an up and down journery starting May 2016. I have had to quit my job, take time off of school (I go back and forth with this but lately my health is getting to me and I can barely keep up in my classes.

My symptoms are (starting from onset to now):

- Diarrhea/ digestive issues (this one comes and goes and was more prominent when I first got sick, I’ve only had it twice this year thankfully)

- Burning Pain in shoulders (on and off as well, went away for over a year and just came back recently)
- Blurry vision (minor, goes away after a minute or two, not a big issue)
- Fatigue (another rare one that comes and goes)
- Muscle twitching (constant)
- Not numbness but decreased sensation/fuzzy feeling that moves from jaw, to hands, to back of legs
- Urinary dribbling (constant)
- Stiff/burning back pain (went away for almost two years but has come back)

- Brain fog (almost constant, I feel spaced out regularly and often forget things/ catch myself doing things that make no sense such as putting food condiment containers in my medicine cabinet and putting my medicine in the fridge)

- Heightened anxiety / depression (almost constant)

- Burning knee pain / inflammation (almost constant but can deal with it)

- Horrible bipolar mood swings rivaling borderline malaria (happens when i get a flare up, i get black out angry)

- Became lactose intolerant

- OCD (especially during flare ups as I keep searching the internet for answers and dwelling on my current state of health to the point where it consumes me and I shut myself in my room for days)

- Recently and what I believe to be the worst of all of these symptoms started in July/ August (surprisingly just before I got diagnosed) is this constant ear pressure that feels like I am on an airplane, my ears keep clicking and popping and feel very inflamed/ irritated. I am an aspiring music producer and despite the slew of other symptoms I have had, I was able to make music and it was a therapy to me, distracting me from lyme and putting me in a great mood. However with this symptom I can hardly do that. My ears also twitch almost constantly and the pressure will move from right to left throughout the day. No matter how many times I “pop” my ears it doesn’t relief the pressure. My LLMD thinks this is allergy related or it could be lyme related. It started in July/ August and has been on and off before full on pressure at the end of September, I even got my ears cleaned out and it provided some relief only to be clogged back up again less than a week later. If it is allergy related, I’m not sure what I can do about it as I am taking antihistamines and nasacort that my LLMD prescribed and neither does a thing to it. Interestingly; I went to Florida with my family a week ago and while I was there it slowly started to go away again, only to come back within two days of being home (starting yesterday). It was very warm in Florida and I was outside at Disney World virtually all day every day that I was there. I was still dealing with other symptoms but fortunately my MAIN complaint (the ear thing) didn’t really bother me as much and I was able to enjoy vacation for the most part. Coming back home to Rhode Island the ear symptom flared up again within two days. I have seasonal allergies to Ragweed and mold spores so it could be that? I know they have been in full bloom since end of summer. I just don’t understand why it wouldn’t have affected me in Florida while I was outside all day. It is very raw, cold, and windy where I live so I’m guessing that could contribute.

I also have a dog (and am allergic to dogs) but never had this response from being around him/petting him, mostly would just get watery eyes every once and a while.

I have been reading up on toxic mold and I’m not sure if I have that but have been stressing out heavily because I don’t want to have my parents leave our house with me as we built this house when I was a kid. There is a small blotch of a wet patch on the ceiling in my room but that has always been there and has never caused me any problems.
I am thinking this ear thing is due to allergies because EVERY time it has returned it is usually preceeded by a sneezing fit a day or two before hand. It lasts about two-three weeks and nothing I do provides relief.

I’m sorry for the lengthy post I don’t know what else to do. I have talked to several lyme patients that go to the same LLMD as me and they are all improving but I feel like ever since maybe a month into treatment my health has on the decline.

Throughout this journery my symptoms would almost always disappeared and reappear after certain periods of time minus the ones I marked constant. Infact, there was times such as April - July of this year where I felt like my old self again minus a little muscle twitching and urinary dribbling. I was going to the gym 3-4 days a week and following a paleo diet. I felt absolutely fantastic. I hadn’t been able to workout in TWO YEARS!!

Again, sorry for the lengthy post. I am just at my wits end with this whole thing especially started with a flare up three weeks ago where all of my symptoms came back and multiplied in intensity. I guess I just wanted to come on here and vent. I really want my life back, this sucks so bad. I must sound selfish because this has only been going on two years for me where I know some of you it has been a decades long journey. If anyone has any suggestions or thinks they know what is causing my ear issues please feel free to let me know. I am in a bad shape mentally right now, I’m not sure treatment is doing anything for me.

My current meds/supps:

Mepron 2 x day
Azithromycin 1 x day (i know zith can cause ear issues but my LLMD suggested I stop it at one point and see if it went away and during that time it did not)
Japanese knotweed 3 x day
Tumeric 1 x day
Oil of oregano 1 x day
CBD oil 2 x day
Alpha lipoic acid 1 x day
green tea extract 1 x day
vitamin d & b 1 x day
magensium streate 1 x day

Again thank you for reading this :/
Posted 11/2/2018 8:06 AM (GMT -5)
Hi! First, I think this phase where you haven't figured out main pieces yet is especially scary. This part won't last forever. You are figuring things out bit by bit, and all of that is leading toward useful answers. You don't have to solve everything at once -- one step at a time.

It sounds like you're definitely onto something with either allergies or mold. If your body is mounting an allergic reaction, my LLMD said it's diverting some of the "fight" it needs for your infections. Ragweed has been bad this year. And you may need to consider finding another place for your dog, for now at least. Then you can deep-clean the house and see if that helps.

If it's mold, don't assume that your parents will have to leave their home. Talk to them and explore options together. They know more options than you do. Bring them into it. A wet spot on the ceiling where you sleep definitely sounds concerning.

Either mold or allergies could cause you trouble now that you have Lyme even if they didn't before. The seasonal aspect could point toward allergies, but it could also indicate mold if it's been as rainy where you live as it has here in VA. It has rained here pretty much since around April and I've felt the increase in mold at home and at work when water gets in places it shouldn't.

Are you still avoiding gluten/carbs? Are you detoxing?

Post Edited (Dahlias) : 11/2/2018 7:11:15 AM (GMT-6)

Posted 11/2/2018 8:10 AM (GMT -5)

Dahlias said...
Hi! First, I think this phase where you haven't figured out main pieces yet is especially scary. This part won't last forever. You are figuring things out bit by bit, and all of that is leading toward useful answers. You don't have to solve everything at once -- one step at a time.

It sounds like you're definitely onto something with either allergies or mold. If your body is mounting an allergic reaction, my LLMD said it's diverting some of the "fight" it needs for your infections. Ragweed has been bad this year. And you may need to consider finding another place for your dog, for now at least. Then you can deep-clean the house and see if that helps.

If it's mold, don't assume that your parents will have to leave their home. Talk to them and explore options together. They know more options than you do. Bring them into it. A wet spot on the ceiling where you sleep definitely sounds concerning.

Either mold or allergies could cause you trouble now that you have Lyme even if they didn't before.

Are you still avoiding gluten/carbs?

Yes I am avoiding gluten, dairy, and most carbs (minus fruits).

I can’t move my dog anywhere as he is our only pet and don’t really have anywhere to move him. As for the wet spot in my ceiling, is there a way i can get rid of that? Such as hiring someone to clean it? This whole ordeal is such a mess and I am stressing myself senseless about it
Posted 11/2/2018 8:16 AM (GMT -5)
Sorry I was editing a bit while you were responding.

Can a friend or family member take the dog while you figure out if that helps?

The mold can be addressed but you will need your parents' help. You do NOT need to solve all of this on your own. A lot of times kids (not that you're a child, but still) want to spare their parents and fix everything on their own, but that is not appropriate. You need the help and they likely want to help. They have more experience and more options, and three heads are better than one. Let them help with this burden.
Posted 11/2/2018 8:25 AM (GMT -5)

Dahlias said...
Sorry I was editing a bit while you were responding.

Can a friend or family member take the dog while you figure out if that helps?

The mold can be addressed but you will need your parents' help. You do NOT need to solve all of this on your own. A lot of times kids (not that you're a child, but still) want to spare their parents and fix everything on their own, but that is not appropriate. You need the help and they likely want to help. They have more experience and more options, and three heads are better than one. Let them help with this burden.

Unfortunately, no. No one can take the dog I am stressing about having to get rid of him because of this. He’s a bit older and I would never be able to live with myself if we had to let him go even if its for a short time, because if it turns out to be whats causing it we would more than likely never take him back. Like I said however I have been dealing with lyme symptoms for two years now and have had the dog for almost 9 years now. I do not think he is the problem to be honest. On top of that, he is only downstairs in my house (he can’t climb up the stairs) and I live upstairs so my interactions with him are not 24/7. We also vaccuum the house thoroughly about 2 times a week. I think it is either the ragweed or the wet circle on my ceiling. But even still, why would it go and come back on and off since late september? My LLMD said it could be a lyme symptom yet I notice for a FACT every time it comes back it is preceeded by a sneezing fit of some sort. I had one on our second to last day in Florida (Monday), and felt it coming back Wednesday/Yesterday (we came back to RI on wednesday) so it could be something here or it could be allergies, or lyme. This whole mess is confusing.
Posted 11/2/2018 8:31 AM (GMT -5)
If it's allergies, there's a theory called something like the bucket theory. Things you can tolerate normally can become too much when there are other allergens added to the mix.

But personally, I'd bet on mold. And btw, if that's what it is, it should be addressed not only because of you. It's not great for your parents either. And if they ever sell the house, the inspector will notice a big wet spot on the ceiling and it would have to be addressed then.
Posted 11/2/2018 8:34 AM (GMT -5)

Dahlias said...
If it's allergies, there's a theory called something like the bucket theory. Things you can tolerate normally can become too much when there are other allergens added to the mix.

But personally, I'd bet on mold. And btw, if that's what it is, it should be addressed not only because of you. It's not great for your parents either. And if they ever sell the house, the inspector will notice a big wet spot on the ceiling and it would have to be addressed then.

That makes sense. I am able to live fine with my dog and have been (even a couple months ago when i was pretty much asymptomaric for April - July) but maybe because the ragweed plus the spot on my ceiling my body as been constantly trying to fight off the allergies? Whats weird is that this ear thing goes away for a little then comes back, even if I am home all day. So could it also be a lyme symptom as well? I have spoken to one lyme patient on here that had an on and off ear problem similar to mine
Posted 11/2/2018 9:27 AM (GMT -5)

elymenate said...
Hello, i am 21 years old (Male) and a (struggling) college student from Rhode Island. I have been dealing with lyme related symptoms for a little over two years now and was recently diagnosed with Lyme and babesia at the end of July 2018. I was actually diagnosed by another LLMD in 2017, roughly a year prior but she did not take insurance so we had to find another dr, who then told me that the test I got was false positive, causing us to go down the rabbit hole again to where I am at now.
This has been an up and down journery starting May 2016. I have had to quit my job, take time off of school (I go back and forth with this but lately my health is getting to me and I can barely keep up in my classes.

My symptoms are (starting from onset to now):

- Diarrhea/ digestive issues (this one comes and goes and was more prominent when I first got sick, I’ve only had it twice this year thankfully)

- Burning Pain in shoulders (on and off as well, went away for over a year and just came back recently)
- Blurry vision (minor, goes away after a minute or two, not a big issue)
- Fatigue (another rare one that comes and goes)
- Muscle twitching (constant)
- Not numbness but decreased sensation/fuzzy feeling that moves from jaw, to hands, to back of legs
- Urinary dribbling (constant)
- Stiff/burning back pain (went away for almost two years but has come back)

- Brain fog (almost constant, I feel spaced out regularly and often forget things/ catch myself doing things that make no sense such as putting food condiment containers in my medicine cabinet and putting my medicine in the fridge)

- Heightened anxiety / depression (almost constant)

- Burning knee pain / inflammation (almost constant but can deal with it)

- Horrible bipolar mood swings rivaling borderline malaria (happens when i get a flare up, i get black out angry)

- Became lactose intolerant

- OCD (especially during flare ups as I keep searching the internet for answers and dwelling on my current state of health to the point where it consumes me and I shut myself in my room for days)

- Recently and what I believe to be the worst of all of these symptoms started in July/ August (surprisingly just before I got diagnosed) is this constant ear pressure that feels like I am on an airplane, my ears keep clicking and popping and feel very inflamed/ irritated. I am an aspiring music producer and despite the slew of other symptoms I have had, I was able to make music and it was a therapy to me, distracting me from lyme and putting me in a great mood. However with this symptom I can hardly do that. My ears also twitch almost constantly and the pressure will move from right to left throughout the day. No matter how many times I “pop” my ears it doesn’t relief the pressure. My LLMD thinks this is allergy related or it could be lyme related. It started in July/ August and has been on and off before full on pressure at the end of September, I even got my ears cleaned out and it provided some relief only to be clogged back up again less than a week later. If it is allergy related, I’m not sure what I can do about it as I am taking antihistamines and nasacort that my LLMD prescribed and neither does a thing to it. Interestingly; I went to Florida with my family a week ago and while I was there it slowly started to go away again, only to come back within two days of being home (starting yesterday). It was very warm in Florida and I was outside at Disney World virtually all day every day that I was there. I was still dealing with other symptoms but fortunately my MAIN complaint (the ear thing) didn’t really bother me as much and I was able to enjoy vacation for the most part. Coming back home to Rhode Island the ear symptom flared up again within two days. I have seasonal allergies to Ragweed and mold spores so it could be that? I know they have been in full bloom since end of summer. I just don’t understand why it wouldn’t have affected me in Florida while I was outside all day. It is very raw, cold, and windy where I live so I’m guessing that could contribute.

I also have a dog (and am allergic to dogs) but never had this response from being around him/petting him, mostly would just get watery eyes every once and a while.

I have been reading up on toxic mold and I’m not sure if I have that but have been stressing out heavily because I don’t want to have my parents leave our house with me as we built this house when I was a kid. There is a small blotch of a wet patch on the ceiling in my room but that has always been there and has never caused me any problems.
I am thinking this ear thing is due to allergies because EVERY time it has returned it is usually preceeded by a sneezing fit a day or two before hand. It lasts about two-three weeks and nothing I do provides relief.

I’m sorry for the lengthy post I don’t know what else to do. I have talked to several lyme patients that go to the same LLMD as me and they are all improving but I feel like ever since maybe a month into treatment my health has on the decline.

Throughout this journery my symptoms would almost always disappeared and reappear after certain periods of time minus the ones I marked constant. Infact, there was times such as April - July of this year where I felt like my old self again minus a little muscle twitching and urinary dribbling. I was going to the gym 3-4 days a week and following a paleo diet. I felt absolutely fantastic. I hadn’t been able to workout in TWO YEARS!!

Again, sorry for the lengthy post. I am just at my wits end with this whole thing especially started with a flare up three weeks ago where all of my symptoms came back and multiplied in intensity. I guess I just wanted to come on here and vent. I really want my life back, this sucks so bad. I must sound selfish because this has only been going on two years for me where I know some of you it has been a decades long journey. If anyone has any suggestions or thinks they know what is causing my ear issues please feel free to let me know. I am in a bad shape mentally right now, I’m not sure treatment is doing anything for me.

My current meds/supps:

Mepron 2 x day
Azithromycin 1 x day (i know zith can cause ear issues but my LLMD suggested I stop it at one point and see if it went away and during that time it did not)
Japanese knotweed 3 x day
Tumeric 1 x day
Oil of oregano 1 x day
CBD oil 2 x day
Alpha lipoic acid 1 x day
green tea extract 1 x day
vitamin d & b 1 x day
magensium streate 1 x day

Again thank you for reading this :/

Hmm mepron? Does your LLMD think you have babesia? Your symptoms are more indicative of bart imo than babs. So possibly lyme and bart. Are you addressing that?
Posted 11/2/2018 10:20 AM (GMT -5)
elymenate,

ALL water damaged buildings have mold. CIRS from exposure to water damaged buildings causes the same symptoms as Lyme/co plus some.

Your parents should not ignore water damage in their home for multiple reasons. I am in a living nightmare now because my parents ignored theirs for decades.

Strongly advise you and your parents to research CIRS and Dr. Shoemaker's work on the matter. CIRS has a rigorous diagnostic process and treatment protocol.
https://www.survivingmold.com
https://www.biotoxinjourney.com

You can have CIRS in addition to Lyme, babesia, bartonella, etc. Many of us do.

I agree with the other poster that bartonella should be considered. It is worth noting that CIRS and bartonella use the same cytokine pathways, so symptoms can overlap considerably.
Posted 11/2/2018 10:30 AM (GMT -5)

xpeetzax said...

elymenate said...
Hello, i am 21 years old (Male) and a (struggling) college student from Rhode Island. I have been dealing with lyme related symptoms for a little over two years now and was recently diagnosed with Lyme and babesia at the end of July 2018. I was actually diagnosed by another LLMD in 2017, roughly a year prior but she did not take insurance so we had to find another dr, who then told me that the test I got was false positive, causing us to go down the rabbit hole again to where I am at now.
This has been an up and down journery starting May 2016. I have had to quit my job, take time off of school (I go back and forth with this but lately my health is getting to me and I can barely keep up in my classes.

My symptoms are (starting from onset to now):

- Diarrhea/ digestive issues (this one comes and goes and was more prominent when I first got sick, I’ve only had it twice this year thankfully)

- Burning Pain in shoulders (on and off as well, went away for over a year and just came back recently)
- Blurry vision (minor, goes away after a minute or two, not a big issue)
- Fatigue (another rare one that comes and goes)
- Muscle twitching (constant)
- Not numbness but decreased sensation/fuzzy feeling that moves from jaw, to hands, to back of legs
- Urinary dribbling (constant)
- Stiff/burning back pain (went away for almost two years but has come back)

- Brain fog (almost constant, I feel spaced out regularly and often forget things/ catch myself doing things that make no sense such as putting food condiment containers in my medicine cabinet and putting my medicine in the fridge)

- Heightened anxiety / depression (almost constant)

- Burning knee pain / inflammation (almost constant but can deal with it)

- Horrible bipolar mood swings rivaling borderline malaria (happens when i get a flare up, i get black out angry)

- Became lactose intolerant

- OCD (especially during flare ups as I keep searching the internet for answers and dwelling on my current state of health to the point where it consumes me and I shut myself in my room for days)

- Recently and what I believe to be the worst of all of these symptoms started in July/ August (surprisingly just before I got diagnosed) is this constant ear pressure that feels like I am on an airplane, my ears keep clicking and popping and feel very inflamed/ irritated. I am an aspiring music producer and despite the slew of other symptoms I have had, I was able to make music and it was a therapy to me, distracting me from lyme and putting me in a great mood. However with this symptom I can hardly do that. My ears also twitch almost constantly and the pressure will move from right to left throughout the day. No matter how many times I “pop” my ears it doesn’t relief the pressure. My LLMD thinks this is allergy related or it could be lyme related. It started in July/ August and has been on and off before full on pressure at the end of September, I even got my ears cleaned out and it provided some relief only to be clogged back up again less than a week later. If it is allergy related, I’m not sure what I can do about it as I am taking antihistamines and nasacort that my LLMD prescribed and neither does a thing to it. Interestingly; I went to Florida with my family a week ago and while I was there it slowly started to go away again, only to come back within two days of being home (starting yesterday). It was very warm in Florida and I was outside at Disney World virtually all day every day that I was there. I was still dealing with other symptoms but fortunately my MAIN complaint (the ear thing) didn’t really bother me as much and I was able to enjoy vacation for the most part. Coming back home to Rhode Island the ear symptom flared up again within two days. I have seasonal allergies to Ragweed and mold spores so it could be that? I know they have been in full bloom since end of summer. I just don’t understand why it wouldn’t have affected me in Florida while I was outside all day. It is very raw, cold, and windy where I live so I’m guessing that could contribute.

I also have a dog (and am allergic to dogs) but never had this response from being around him/petting him, mostly would just get watery eyes every once and a while.

I have been reading up on toxic mold and I’m not sure if I have that but have been stressing out heavily because I don’t want to have my parents leave our house with me as we built this house when I was a kid. There is a small blotch of a wet patch on the ceiling in my room but that has always been there and has never caused me any problems.
I am thinking this ear thing is due to allergies because EVERY time it has returned it is usually preceeded by a sneezing fit a day or two before hand. It lasts about two-three weeks and nothing I do provides relief.

I’m sorry for the lengthy post I don’t know what else to do. I have talked to several lyme patients that go to the same LLMD as me and they are all improving but I feel like ever since maybe a month into treatment my health has on the decline.

Throughout this journery my symptoms would almost always disappeared and reappear after certain periods of time minus the ones I marked constant. Infact, there was times such as April - July of this year where I felt like my old self again minus a little muscle twitching and urinary dribbling. I was going to the gym 3-4 days a week and following a paleo diet. I felt absolutely fantastic. I hadn’t been able to workout in TWO YEARS!!

Again, sorry for the lengthy post. I am just at my wits end with this whole thing especially started with a flare up three weeks ago where all of my symptoms came back and multiplied in intensity. I guess I just wanted to come on here and vent. I really want my life back, this sucks so bad. I must sound selfish because this has only been going on two years for me where I know some of you it has been a decades long journey. If anyone has any suggestions or thinks they know what is causing my ear issues please feel free to let me know. I am in a bad shape mentally right now, I’m not sure treatment is doing anything for me.

My current meds/supps:

Mepron 2 x day
Azithromycin 1 x day (i know zith can cause ear issues but my LLMD suggested I stop it at one point and see if it went away and during that time it did not)
Japanese knotweed 3 x day
Tumeric 1 x day
Oil of oregano 1 x day
CBD oil 2 x day
Alpha lipoic acid 1 x day
green tea extract 1 x day
vitamin d & b 1 x day
magensium streate 1 x day

Again thank you for reading this :/

Hmm mepron? Does your LLMD think you have babesia? Your symptoms are more indicative of bart imo than babs. So possibly lyme and bart. Are you addressing that?

I forgot to mention i also get occasional night sweats as well as heart palpitations which my dr said is babesia
Posted 11/2/2018 11:28 AM (GMT -5)
I had the ear pain and pressure while on azithromycin and mepron/atovaquone for babesia, I was never certain if it was the meds or the herx. The effect lasted for more than a month after stopping those meds, but I was taking other meds like minocycline and herbs which also kill babesia. At the moment (3 years later) I'm taking mino and sida acuta, and have mild ear pain again.

The leak in the ceiling could be coming from an old flashing around one of the vent pipes in the roof, whatever it is that needs to be repaired.

There are a lot more supplements you could trial for the fatigue and brain fog. Methylation, mitochondria, and the adrenals need extra support during illness, especially if you have genetic mutations.

Methylation:
Riboflavin, P5P, methyl-folate and B12, TMG, B6, CoQ10, carnitine, lecithin, choline, electrolytes
Mitochondria:
Nicotinamide, carnitine, d-ribose, CoQ10, creatine (dangerous)
Adrenals:
Holy basil, rhodiola, ashwagandha, magnolia bark, reishi, tulsi, serine

Ask your doctor about supplementing, some of these could be harmful if you need less, and the dosing varies by individual. Magnesium sterate isn't well absorbed, there are other forms like malate which are.
Posted 11/2/2018 1:35 PM (GMT -5)

acarined said...
I had the ear pain and pressure while on azithromycin and mepron/atovaquone for babesia, I was never certain if it was the meds or the herx. The effect lasted for more than a month after stopping those meds, but I was taking other meds like minocycline and herbs which also kill babesia. At the moment (3 years later) I'm taking mino and sida acuta, and have mild ear pain again.

The leak in the ceiling could be coming from an old flashing around one of the vent pipes in the roof, whatever it is that needs to be repaired.

There are a lot more supplements you could trial for the fatigue and brain fog. Methylation, mitochondria, and the adrenals need extra support during illness, especially if you have genetic mutations.

Methylation:
Riboflavin, P5P, methyl-folate and B12, TMG, B6, CoQ10, carnitine, lecithin, choline, electrolytes
Mitochondria:
Nicotinamide, carnitine, d-ribose, CoQ10, creatine (dangerous)
Adrenals:
Holy basil, rhodiola, ashwagandha, magnolia bark, reishi, tulsi, serine

Ask your doctor about supplementing, some of these could be harmful if you need less, and the dosing varies by individual. Magnesium sterate isn't well absorbed, there are other forms like malate which are.

Is there a way i could contact u? I have some questions about this
Posted 11/2/2018 2:14 PM (GMT -5)
I don't mean to say that mold is not a big problem, but if you had the wet spot on your ceiling and your dog before you got sick, maybe the allergies might not be the biggest problem or maybe you are getting allergies from something else. I also have a cat I'm allergic to also.

That being said, you probably need someone without allergies to go up in the attic and look for mold or see what's causing it. If you just have a wet spot or a stain on your ceiling it might not be a big deal, or it might mean there is a leak. Sometimes you can get mold actually growing on the ceiling, which is something else.

Do you go to other buildings that might have mold in them? Going to a church that has mold in it for a few hours can give me symptoms (rage, brain fog, asthma) for a few days or a week.

Also the leaf mold has been really bad this year in the Northeast (I think). I think all the rain makes for more leaf mold. I was sneezing and sneezing this past week.

I think basbesia has made a lot of my allergies worse. The good news is that since I've been treating for babesia (with mimosa pudica and arteminisin), they have gotten much, much better (except for my mold allergy, which I had before I got sick).
Posted 11/2/2018 2:26 PM (GMT -5)

acarined said...
I had the ear pain and pressure while on azithromycin and mepron/atovaquone for babesia, I was never certain if it was the meds or the herx. The effect lasted for more than a month after stopping those meds, but I was taking other meds like minocycline and herbs which also kill babesia. At the moment (3 years later) I'm taking mino and sida acuta, and have mild ear pain again.

The leak in the ceiling could be coming from an old flashing around one of the vent pipes in the roof, whatever it is that needs to be repaired.

There are a lot more supplements you could trial for the fatigue and brain fog. Methylation, mitochondria, and the adrenals need extra support during illness, especially if you have genetic mutations.

Methylation:
Riboflavin, P5P, methyl-folate and B12, TMG, B6, CoQ10, carnitine, lecithin, choline, electrolytes
Mitochondria:
Nicotinamide, carnitine, d-ribose, CoQ10, creatine (dangerous)
Adrenals:
Holy basil, rhodiola, ashwagandha, magnolia bark, reishi, tulsi, serine

Ask your doctor about supplementing, some of these could be harmful if you need less, and the dosing varies by individual. Magnesium sterate isn't well absorbed, there are other forms like malate which are.

I've always wondered about support supplements. A few people I know said vitamins always make them feel better. But except for vitamin c and zinc, most other vitamins didn't help me too much. I wonder if it's a gene or something else that makes some people need to take vitamins more than others.
Posted 11/2/2018 2:33 PM (GMT -5)
Mepron 2 x day
Azithromycin 1 x day (i know zith can cause ear issues but my LLMD suggested I stop it at one point and see if it went away and during that time it did not)
Japanese knotweed 3 x day
Tumeric 1 x day
Oil of oregano 1 x day
CBD oil 2 x day
Alpha lipoic acid 1 x day
green tea extract 1 x day
vitamin d & b 1 x day
magensium streate 1 x day


----

stop taking vitamin D
stop taking Alpha lipoic acid
Maybe stop taking CBD oil. maybe stop taking "green tea extract" unless it is L-Thaimine
Take 3x more Tumeric
Buy Garlic extract with Allicin, take 6-8x/day Zhou brand seems to be cheapest

Buy Cat's Claw, Stevia, Teasel
Maybe stop taking Japanese knotweed or try stopping/starting to see if it makes you feel bad

Buy Sprulina, take 6-8 tablets a day.
Buy Pro-biotics and Pysillian Husk Fiber, take fiber every other day. Take pro-biotics at 2x rate. Buy 2% iodine, selenium, zinc, take everyday.

Not sure about your antibiotics. Everyone who complains they aren't making progress, it seems to me are on Mepron and Azithromycin. If it works so great why are so many people having problems? Why not just Amoxicillin and Doxycycline maybe Minocycline?

No LLMD/LLND will take insurance. You buy all this stuff in bulk herbs 1lb on amazon, goodrx.com or india/canadian pharmacy.

Ask your LLMD/LLND about Ivermectin and Alinia

Buy a 50lb bag of epsom salt and use 1 cup everyday in a shower and 1 cup in laundry. Use a cloth or bucket to get it everywhere.

Anyway that is my advice.
Posted 11/2/2018 3:15 PM (GMT -5)

oregonhay said...
Mepron 2 x day
Azithromycin 1 x day (i know zith can cause ear issues but my LLMD suggested I stop it at one point and see if it went away and during that time it did not)
Japanese knotweed 3 x day
Tumeric 1 x day
Oil of oregano 1 x day
CBD oil 2 x day
Alpha lipoic acid 1 x day
green tea extract 1 x day
vitamin d & b 1 x day
magensium streate 1 x day


----

stop taking vitamin D
stop taking Alpha lipoic acid
Maybe stop taking CBD oil. maybe stop taking "green tea extract" unless it is L-Thaimine
Take 3x more Tumeric
Buy Garlic extract with Allicin, take 6-8x/day Zhou brand seems to be cheapest

Buy Cat's Claw, Stevia, Teasel
Maybe stop taking Japanese knotweed or try stopping/starting to see if it makes you feel bad

Buy Sprulina, take 6-8 tablets a day.
Buy Pro-biotics and Pysillian Husk Fiber, take fiber every other day. Take pro-biotics at 2x rate. Buy 2% iodine, selenium, zinc, take everyday.

Not sure about your antibiotics. Everyone who complains they aren't making progress, it seems to me are on Mepron and Azithromycin. If it works so great why are so many people having problems? Why not just Amoxicillin and Doxycycline maybe Minocycline?

No LLMD/LLND will take insurance. You buy all this stuff in bulk herbs 1lb on amazon, goodrx.com or india/canadian pharmacy.

Ask your LLMD/LLND about Ivermectin and Alinia

Buy a 50lb bag of epsom salt and use 1 cup everyday in a shower and 1 cup in laundry. Use a cloth or bucket to get it everywhere.

Anyway that is my advice.


Ditto on the ALA and Vit d. Stop taking would be my recommendation.
Posted 11/2/2018 7:43 PM (GMT -5)
You can click on my member name to find my email address, if you feel comfortable asking publicly it might help people searching the forum in the future.
Posted 11/2/2018 9:52 PM (GMT -5)
Thanks again Mark for recommending to stop ALA and Vitamin D last week, I think they were making me worse.
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