New here!

Hello all,
I just recently found this website and it has given me tons of useful information. Here’s my background.

In 2011 I was diagnosed with lymes due to a very swollen right knee. I was treated with a 30 day round of doxy and that was that.

Over the years I have dealt with joint pain but nothing to serious. about two months ago I started to develop nausea and brain fog. I was treated for a uti. Fast forward a month still nauseas still having increasing head pressure. Fast forward to now I have head pressure in the forehead, pains in my head, nausea and still the foggy feeling. I have been to the ER on multiple occasions and have been told migraine. I am not someone who has dealt with many headaches in the past. I won’t be able to get into a neurologist til February and my doctor has ordered an MRI. Has anyone had the same experience with a new infection or even a flare up? I’m very new to this so please bare with me.

30 days of doxycycline is unlikely to cure Lyme disease. It's going to take a lot more than that.

Hi Sebreg! I have not had any further lymes tests since my initial diagnosis. My doctor treated me for a “flare up” last week due to muscle aches with a 7 day antibiotic. This hasn’t done much for the head pressure or pains. I am working on seeing a lyme literate doctor but most in my area are not currently accepting new patients.

It can be a lot to take in. If you aren't able to see an llmd, I do recommend checking out Stephen Buhner's website and/or books. They have a lot of great information. One thing you could even start implementing now is various detox methods and seeing if those help. Sometimes that can help provide relief from symptoms, as these conditions tend to be driven by toxins. This site has a good overview of detox ideas: https://www.tiredoflyme.com/detox-methods.html

Another thing that helps a lot of patients is diet. A couple of the more helpful things are cutting out refined sugars and processed foods. Some people also find it helpful to cut back dairy and gluten.

One thing I'm a fan of for getting more information is the provocation method. By this I mean you take an antimicrobial and you gauge response. If you get a flare in symptoms it can often be an indicator of underlying infection. There are various herbal antimicrobials one can try. It's a relatively cheap way to get more information.

It's often the case that improvement can take time, so 1 week of antimicrobials likely won't make much difference. The ideal would be to get to work with an llmd, especially given the heart issues you may have to be very careful in how you'd approach any treatment and it'd be great to do it with doctor guidance. Might you be able to travel to see an llmd? what part of the country are you located in?

Thank you all so much for your responses. I was planning to try some detox methods on my own until I can get into a LLMD.

Clynn09 said...
Thank you all so much for your responses. I was planning to try some detox methods on my own until I can get into a LLMD.

You should be employing several detox methods daily.
Some detox suggestions:

- drink plenty of water
- squeeze lemon juice in some glasses of water (drink with a straw to help bypass the teeth - lemon can be damaging to enamel)
- take warm Epsom salt baths
- dry brush your skin prior to bathing/showering
- take probiotics for gut health
- take something to support your liver
- take Nitramedix Pinella and/or Burbur
- Take Jernigan’s Neuro-AntitoxII
- light exercise - even if it’s just a short walk around the neighbourhood

Some more ideas here:
https://www.tiredoflyme.com/detox-methods.html

Quin said...
There's an awful lot of snake oil and "detox" treatments for Lyme disease out there that don't work.

I didn't find instant relief for most of them...except the exercising, and the epsom salt baths.

But, who knows if long-term they help by reducing the toxins.

Quercetin seems to help my pain...not sure if it's because of detoxing...or ?

Clynn09 said...
Thank you all so much. I have been drinking nothing but lemon water and started out with magnesium powder. It’s so scary feeling like your head is going to explode. And doctors only telling you you are suffering migraines. I’ve had the same migraine for two almost three months! Explain that.

Re - lemon water - it’s best to rinse your mouth out with clear water after as the acidity can damage the teeth.
Drinking with a straw helps bypass the teeth somewhat.

And best not to brush your teeth immediately after drinking it