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Can someone give me an opinion on this

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Posted 11/27/2018 11:23 AM (GMT -5)
Hey guys,

So there is this wellness center not far from me.. they do bee venom therapy (they extract the venom and inject it). heres the link, can someone give me an opinion on something like this?

if not, are there any bee venom places in NJ where they sting you? i cant stink myself, i dont have the courage lol

www.chunginstitute.com
Posted 11/27/2018 12:53 PM (GMT -5)
hopefully bluelyme will read this and advise you.


BTW - you said you can't 'stink' yourself... lol. (sorry- but it did make me giggle)
Posted 11/27/2018 3:40 PM (GMT -5)
Omg girlie hahaha!!! Autocorrect!!!
Posted 11/27/2018 3:58 PM (GMT -5)
Reviews seem alright. Could be worth a shot, see how it goes. So long as they don't constantly upsell, that's always grating.

I'm like you, if I pursued bee venom therapy I couldn't do it on my own. I'd want the help of medical professionals, at least initially. Are you thinking of starting bvt soon? that would be exciting!
Posted 11/27/2018 7:40 PM (GMT -5)
Sebreg,

I’ve been thinking about it. But I’m too scared to lol. Something in me today said to suck it up buttercup cuz it could possibly help... so here I am, searching about it lol
Posted 11/27/2018 7:50 PM (GMT -5)

physedgirl09 said...
Sebreg,

I’ve been thinking about it. But I’m too scared to lol. Something in me today said to suck it up buttercup cuz it could possibly help... so here I am, searching about it lol

Ive thought about it too...but I have a fear of insects...especially stinging ones.

I did ask my husband if he would sting me....and he wasn't sure he'd want to...(I'm thinking because I'd probably screech each and every time he did it)
Posted 11/28/2018 10:13 AM (GMT -5)
The more I read about it the more intrigued I am. I just emailed a local Dr that supposedly does apitherapy, I hope they still do it. I'd love to try it out in a controlled setting. I'm leaning towards pursuing bee venom therapy as a maintenance therapy once I'm done treating babesia.

The other thing is getting an epipen is a bit of a hassle. I'd have to go see my GP (whom I'm a bit miffed at, always a bit of tension with the whole lyme thing)... tell them I'm becoming a beekeeper or something and ask for the generic epipen... wish I could just get it over the counter.

Girlie, I was wondering about that. I'd have to do the stinging on my own, I don't think anyone would help me with that. Seems a bit tricky doing the stings on the back oneself, although I think it is doable with the long tweezers and a bit of practice...
Posted 11/29/2018 2:06 PM (GMT -5)
Sebreg:
I doubt if you'd be the first person to self-sting.

Maybe bluelyme has some pointers. long tweezers sounds interesting...lol

You should do a cartoon of you doing your first sting with these really long tweezers.... smile
Posted 11/29/2018 4:19 PM (GMT -5)
Maybe an intense sting from something like a tarantula hawk would expedite the process, haha. I'd do it

Related note- is there any such thing as snake venom therapy? Does snake venom have similar effect as bee venom but possibly work quicker because (i imagine) it's stronger?
Posted 11/29/2018 6:23 PM (GMT -5)
Ha, Aerose91 makes me think of this video I saw a while back! https://www.youtube.com/watch?v=mnexgq81fhu

Hoo boy Girlie, I've often thought I'd love to do an autobiographical comic about this lyme journey. I think it might be more feasible once it is more in the rearview mirror... need a bit of time to lighten the emotional baggage!!!
Posted 11/29/2018 7:14 PM (GMT -5)
".....in my quest to find the most painful sting in the insect kingdom....."


#lifegoals
Posted 11/29/2018 7:15 PM (GMT -5)
Sebreg - I know what you mean about the baggage...I wonder how I'm going to recover from the trauma...sheesh.
Posted 12/1/2018 3:20 AM (GMT -5)

1000Daisies said...
I have no doubt that it helps some people, and that's truly amazing.
But IRL around here from those I talked to, BVT (in general) has not helped more than it has helped. However, for one person with MS like symptoms, BVT was the only thing to help that person. For many others, it did not help.

As with nearly any treatment, we just don't seem to understand who it will help the most or not help the most. I see this type of response from pretty much every treatment (helps some, doesn't help others).

Daisies - what is IRL?

So, are you saying that there are mixed reviews on the effectiveness of BVT?

Good to know...as I've only heard the pros on this forum....not heard anyone say it hasn't worked.

So true about other treatments, as well...ie LDI, LDN, CBD, etc. etc.
Posted 12/1/2018 9:26 AM (GMT -5)

1000Daisies said...
I have no doubt that it helps some people, and that's truly amazing.
But IRL around here from those I talked to, BVT (in general) has not helped more than it has helped. However, for one person with MS like symptoms, BVT was the only thing to help that person. For many others, it did not help.

As with nearly any treatment, we just don't seem to understand who it will help the most or not help the most. I see this type of response from pretty much every treatment (helps some, doesn't help others).

It seems to help some people but it's hard for me to gauge the overall success rate (as with most therapies). I follow the BVT facebook groups. Most people there only have good things to say about it, but I imagine those who didn't have success stop posting in those groups. There is a bit of a cult-like atmosphere which makes it hard to ask challenging questions. It's hard not to get sucked up into the hype.

They say that those for whom it didn't work didn't do it correctly or gave up too soon... I'm still very intrigued by BVT, it does seem effective for borrelia and biofilms. The Eva Sapi in vitro study on lyme/biofilms and bee venom is promising https://www.mdpi.com/2079-6382/6/4/31/htm. It'd be great if they also researched the effectiveness of BVT on babesia/bartonella/other infections.
Posted 12/1/2018 9:41 AM (GMT -5)
So true 1000Daisies. I think we have to keep as level-headed as possible. Glowing testimonials sometimes throw off my critical thinking, less so now than in the past when I was more desperate. But I'm still prone to it at times.

It's very important to talk about pros and cons in a fair dialogue. It gives people more information to work from and make decisions. I think insecurity and emotions can make people angry when a concept they deeply believe in is challenged. I mean, it happens to me all the time, and I try to be self-aware about it and try to listen even if I don't like what I'm hearing. And then try to gather myself to carefully respond in the most logical and respectful manner I can.

Post Edited (sebreg) : 12/1/2018 7:44:30 AM (GMT-7)

Posted 12/1/2018 9:42 AM (GMT -5)

Aerose91 said...
Maybe an intense sting from something like a tarantula hawk would expedite the process, haha. I'd do it

Related note- is there any such thing as snake venom therapy? Does snake venom have similar effect as bee venom but possibly work quicker because (i imagine) it's stronger?


Man if that’s the cure to Lyme disease ima go lay in my bed and get comfy......... 😧😐
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