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Herb,EBV, Co Test, and Myco questions

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Lyme Disease
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Posted 2/2/2019 10:38 AM (GMT -5)
1. Buhner reccommends Andrographis to be taken in tablet form. Can this be taken with tincture. I think I absorb tinctures better. 1/4 tsp would be correct dosage?

2. I tested positive for EBV (very high titers). Will EBV resolve on it’s own once other infections are addressed? Is monolaurin recommended to take for EBV?

3. I don’t have enough money to see an LLMD right now. Right now I am just testing different herbs to see if I can hit an infection. Trying to self diagnose like that, but it is difficult because the same herbs can treat different infections. I was considering getting a DNA connexions test. Is it worth it?

4. I took a Myco test and tested positive for IGG. Does this mean I could have Myco. My GP said it was probably just a past infection.
Posted 2/2/2019 1:28 PM (GMT -5)
1. Don't know, probably fine hopefully others will chime in.

2. I suspect it will usually resolve with effective treatments of the lyme/coinfections, especially if these infections are the primary ones driving the immune dysfunction allowing opportunistic infections to thrive. That said, taking monolaurin as a stopgap measure is not a bad idea, especially if it can help bring some relief in pathogen load freeing up the immune system a bit more. My doc had me on it for a while. And the converse could potentially be true, maybe the ebv is driving the immune dysfunction, I've certainly seen that idea thrown around.

3. Eh, I think if money is tight it is better invested in treatments. But that truly depends on how much confirmation you'd like. I tend to go for broad coverage treatment approach because while we might test positive for certain infections, there are often occult infections lurking in the background that can sometimes also be primary drivers (and the tests don't always pick them up). Have you flared to any particular treatments? what infections do you currently suspect?

4. Given how these infections manipulate, distort, and evade the immune system I'd always be hesitant to rule out active infection based on antibody tests. Igg result doesn't mean it is active, but doesn't definitively mean it is not active.

Post Edited (sebreg) : 2/2/2019 11:52:07 AM (GMT-7)

Posted 2/2/2019 4:19 PM (GMT -5)
1. I always have to titrate doses of things, so I start with a drop of tincture and work up to the dosage of a tablet very slowly. Every tincture manufacturer is different, so you'll have to do the math yourself to determine what dosage is the equivalent, or contact the company to be sure.

2. EBV is tricky. Some people will have high IGG results forever. Cat's claw (in the Buhner protocol) will go after it, or monolaurin, olive leaf, and many other antiviral herbs. Keeping your immune system in good shape in general will help (vitamins C and D, elderberry, echinacea, etc.). Another option to attack EBV with EBV-specific antibodies is transfer factor. Researched Nutritionals makes a transfer factor formula with EBV antibodies (and antibodies to mycoplasma) called Plasmyc.

3. I feel the pull of confirmation psychologically, but I do agree with sebreg that unless you're trying to get a particular provider to take you seriously, then treatment is a better use of your money. I'm sure you've checked out Buhner's website. Try also RawlsMD.com and Marty Ross's site (https://www.treatlyme.net/lyme-disease-treatment-guidelines) for guidelines for various infections and issues. Much of this stuff can be figured out by symptoms and, as you mention, targeting infections with their treatments on your own.

4. There are lots of varieties of mycoplasma (and 30+ varieties of borrelia, for that matter) so I never assume that an IGG-only result means an infection can be discounted. Western medicine often isn't set up to test and treat for chronic infections.

Good luck!
Sara (ME, Lyme, POTS, HPA axis dysfunction....)
Posted 2/3/2019 7:39 AM (GMT -5)
I can speak to questions 3 and 4. DNA Connextions was 100% worth it for me. I treated for almost 5 with abx and Horowitz protocols - plateaued with my LLMD. I believe in it because (a) you stir up the immune system before taking it and the reaction I got from that alone let me know something was still very off (b) it doesn’t just show a positive or negative - it shows various strains of Lyme and co infections including some newer strains that blood tests don’t always detect. And if you have one even one sample come up with bacteria it will show as IND I think - meaning it was present in one sample, but not the second run of the test. So I like that it gave me more than a positive or negative. And I finally discovered what my untreated co infection is (Bart). Their customer service was also top notch.

On mycotoxins - I tested positive on various ones via blood testing a couple years ago. I did a retest recently via urine (I can’t remember which brand of test). It showed that I had some but confirmed environmental exposure (over say mold from foods) and it showed that levels are going down, so likely I’m no longer in that place with the mold.

All good details and I fully believe with the right LLMD and testing you can make progress.

I’m doing cowden protocol right now and liking it, but only on day 9. We’re assessing how I do after month 3 if we keep going or add abx back in.

If it were me, I’d start with Dna connextions and then second, find an inexpensive LLMD (mine is $300 for an hour visit, and be doesn’t charge a more expensive first visit fee) - and he’s very thorough. Follow the directions and get the deep tissue massage for the test.

I also get some of this reimbursed via blue cross (including the $500 for Dna Connextions) but I’m diligent and really a shark when it comes to this stuff
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