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Bart chest pain...Need some advice...

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Posted 2/14/2019 8:00 PM (GMT -5)
Hi everyone,

So as I continue to treat, (month 7 on abx) my symptoms have dwindled down to the last couple...one of them that is nagging is my chest pain (sternum area/hurts with certain movements/sometimes a dull ache) that has been present since late April of last year. It isn't one of my most debilitating symptoms but it's still there.

So recently my girlfriend talked to a doctor who is saying that the costochondritis could be an adverse affect to long term antibiotics? Sounds like a bunch of the usual bs to me but could this be possible? I know that the fluoroquinolones may cause tendinitis and so my doctor avoids those. But with my current combination (biaxin/rifabutin/malarone) are there any adverse effects I should be aware of?

Also, how much is enough for abx? Do you keep treating even if your symptoms have plateaued? for how long?

Obviously today has been a frustrating day for me ... I think it's because the original prediction my doctor and I made was that I would be feeling much better by the end of this month but I am still herxing here and there. On top of that, my safety labs came back slightly abnormal again...sigh (sl high ALT levels and left shift). Any encouragement would be welcome.

Thanks!

Lets keep fighting
Posted 2/14/2019 8:23 PM (GMT -5)
“. to a doctor who is saying that the costochondritis could be an adverse affect to long term antibiotics? “

Never heard of that - don’t know how abx would/could cause that.

How long have you been plateaued?

You’re still herxing - so the meds are still working - and you’ve only been on Rifabutin for about 3 months?

I had plateaued with my previous lyme doc - no improvements in many months - like a year or so.

Then I treated with my current LLMD and did Babesia for abut 5 months with Mepron and now on Persisters/bart trestment for the last 5/6 months.
I have dropped a few more symptoms.

I wonder if you might need to do a few months of Mepron (plus abx) and then follow that up with a few more months of Rifabutin (plus another abx)
Posted 2/14/2019 8:29 PM (GMT -5)
Something else I thought of:

Taking Rifabutin with atovaquone could decrease effectiveness of Atovaquone

Taking Biaxin with Rifabutin could decrease the effectiveness of one or the other.

Maybe that’s a factor
Posted 2/14/2019 9:24 PM (GMT -5)
I get a strange come and go pain to left of upper sternum. Stabbing dull pain that comes and goes like a flash that flashes on and off in a second. It does this for a day or a few weeks/ month or two then goes away for awhille then comes back.

Not sure if it's the same but I am not on antibiotics.
Posted 2/14/2019 10:19 PM (GMT -5)
I got costo after 8 days of taking cefdinir for strep throat, I was also on Buhner herbs. I had never had it before.
Posted 2/14/2019 10:20 PM (GMT -5)
Quote:I get a strange come and go pain to left of upper sternum. Stabbing dull pain that comes and goes like a flash that flashes on and off in a second. It does this for a day or a few weeks/ month or two then goes away for awhille then comes back.

I have this too and if also moves feels like a big mouse crawling sometimes when it moves. I noticed that the systolic pressure goes up when I have the tightness but all good with the heart so I think it is in the vessels of chest maybe. Hard to tell if lyme or heart attack sometimes
Posted 2/15/2019 7:41 AM (GMT -5)
I used to have dull pain in my sternum area for a really long time, occasionally it would go away, then come back. It wasn't stabbing, just dull and constant, with the intensity sometimes changing. It felt like pain in the cartilage. Yes, if I'd lift something heavy it would become sharp pain, as if my cartilage was going to snap.
I have no clue due to what it was, they say babesia can cause this, I'm not sure in my case.. EBV has flared then, and I had a big problem with mold (sometimes I literally feel my entire esophagus, I guess it's inflammed from mold), maybe this has got something to do with it.
As I got better, the pain kind of dissipated, but I can't remember now, perhaps it still sometimes comes back, low intensity. Warm microwave wheat bag sooths it.
Posted 2/15/2019 9:36 AM (GMT -5)
I have same problem. Severe pain in my sternum when i move that i thought it was a heart attack.... every day i have this feeling.... i'm on rifampin/minocin.
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