Girlie said...
"I'll start by saying I still have no idea whether I have Lyme/Bart but have done enough research to know it's a clear possibility. Leaning far more towards Bart"
Have you consulted a LL Dr.? And have you been tested with a Lyme WB?
It's likely that you have both lyme and bart. (any maybe babesia, too)
Yes, I have an LLMD who tested me via DNAconnexions all came back negative. He then tested for MTHFR where I was heterozygous A1298c, its a super common DNA mutation from my understanding. He trusted the DNAconnex test and just went down the path of trying to improve my health. Got me on daily glutathione, a multi vitamin, and B12 shots every other day. Never did the B12 shots but the other two didn't help much.
I actually just pleaded my case to him for Bart a few days ago when I saw him again and he said we could try testing again or I can try taking the meds for it. He offered a "Bart Mimosa" or some sort of daily concoction I believe he called it.. He's very deep-rooted asian so I don't pick up everything unfortunately.
I also tested myself through IGenex WB IgG IgM. My only non negatives were 41:IND on IgM. 39:IND, 41:++, 66:+ on IgG.
A guy I spoke to on the forums before told me this:
"Anyhow, I am of the opinion that any IND is a weak positive as they're detecting something just not enough to give you a full positive. 41 is flagellin of all spirochetes, so you absolutely have a spirochete infection. 39 is a major protein specific to Lyme / Borellia, therefore this indicates you have Lyme disease. 66 is a cross reactive with a variety of spirochetes and is either Borellia or a co-infection spirochete.
39 IND matched with your symptom profile would indicate a strong likelihood of a chronic Lyme disease infection. However, only a Lyme literate doctor would diagnosis you with chronic Lyme with this test result. Most MDs will tell you this test result is not definitive and that you don't necessarily have Lyme, some might even tell you that you're negative. I personally don't agree, but again I'm not a doctor."
But I've gotten so many mixed messages that I don't know what to believe. My LLMD doesn't trust IGenex as he believes they're too inaccurate and seems to only use the pee test. He had me do deep tissue massage, did ultrasound on 5 different gland areas, Then had me pee in a bottle for the day, swirl it around, and send a little cup of it out.
Post Edited (Darwayne) : 3/4/2019 5:18:17 PM (GMT-7)