Yes, treating the infections can cause histamine response. Treating biofilms is still treating. In fact, I wouldn't bust open the biofilms if I wasn't taking something to treat what comes out of those biofilms.

Why are you treating biofilms and nothing else?


I'm pretty sure I have histamine response when I am on the abx....and it's the cause of my increased pain...and other symptoms.

jb1994 said...
I don't know...he says he wants to bust open the biofilms before treating them, which does seem odd. I'll ask him about that. The only other supplement he has me on is berberine and I'm pretty sure that's unrelated.

Is this a Lyme Literate Dr.?

I know my LLMD does not bust open biofilms without something to kill what comes out.

Yes he is an LLMD. Hmm that really kind of irks me now because it seems self explanatory. I don't know why he isn't killing stuff. I see him on Wednesday. I'm just scared this weight gain is not all water. God knows I hardly eat anything nowadays.

As far as the other things, I've tried cutting out all potential food allergens, the only thing I can think of that causes histamine is fish but then I'm left with no protein options. I don't exercise much except physical therapy so no heat or exertion either really. I really hope this inflammation is just vasodilation or capillaries leaking fluid or whatever other medical things explain it, than fat gain. I'm not sure my electrolytes are in balance lately, if anything though I thought I was getting rid of sodium, but I guess I might be getting rid of potassium too, because I was doing enemas to help with constipation. My hormones are very strange...everything is low except pregnenolone which is really high. Estrogen is either high or low depending on blood or saliva tests... And yes it is disconcerting :'( thank you for understanding.

Ah yes, that is helpful, well I did have a stool test and it showed some imbalances but nothing that explained chronic weight gain other than low IGg (or one of those IGs) and high firmicutess I think. One other thing I don't remember. My cortisol is low which usually causes weight loss so it's a puzzle. I'm going to ask about all of those. Aren't they for parasites? My stool didn't detect any parasites surprisingly.

Those herbs work for any sort of gut dysbiosis - parasite, viruses, and pathogenic bacteria. My stool test did not indicate parasite activity, either, which honestly I find unlikely (my understanding is that anyone who has eaten a berry from a bush, a salad, etc. has some degree of parasites). I was taking the herbs for pathogenic bacterial overgrowth. But I hear you that your gut tested well, so your issue is likely different from mine.

Good luck figuring all this out!

This is going to sound like a dumb question but since I see my doc tomorrow, what should I be taking along with the biofilm busters? Herbs, supplements, antibiotics? Anything specifically?

Questions are not dumb. What's dumb is that we have to ask strangers online for medical help because our medical industry is so unreliable. ;)

Biofilm can contain all manner of uglies - viruses, bacteria, protozoa, parasites, fungi, metals, etc. So detox however works best for you, combat inflammation and herxes, and take some broad-spectrum supplements or drugs. Tailor them somewhat according to symptoms that arise. Are you looking for recommendations for herbs, pharma, something else?

Parasites, Candida, SIBO, heavy metals, mold.

https://chriskresser.com/could-your-histamine-intolerance-really-be-mast-cell-activation-disorder/

Yeah that would be nice...but he is the 4th doc I've seen for Lyme, I don't think I have any other options. Unless I go back to my old one who's over twice as much and 3x as far...she kinda gave up on me though

I remember reading on survivingmold that weight gain is common in mold toxicity due to leptin resistance (I am not sure if I remember correctly, you do have some mold issues?).
There is a good article on leptin reset on biotoxinjourney.com http://biotoxinjourney.com/aga-diet-detox/#leptin_reset

jb1994 said...
Yeah I've mentioned I previously had some mold but it doesn't explain the sudden spike in symptoms so I think it is the biofilm stuff. Yes Girlie, well this doc is an LLMD, and the expensive doc was one, then I saw two other ones who pretty much knew nothing about it so they didn't help obviously. Now my sleep is all messed up too. Honestly how much water can the body keep storing? I didn't think water retention kept accumulating week after week for months...where is it even being stored?

As for Dr. J, I don't think I'm nearly close to able to afford going there...if only

My only regrets is not going to see him sooner...

You do know that after the first couple appointments, they are usually 4 months and then 6 months apart. And if you have to travel a long distance...then you can do some phone consults.
For instance my first appt. was Feb, 2018. April was phone appt. August was in person. December was phone...and this past March was in-person.

My next appt in person will be March, 2020.

So in two years of treatment, I will have travelled 4 times only.

Not trying to convince you - just didn't know if you had that information - ie phone appointments and how far apart the appointments are.

jb1994 said...
This is Dr J with the protocol right? And the Hansa Center? I'll definitely put him on my list next if this doesn't work out.

My doctor sympathized and really wants me to start moving in the right direction. He didn't tell me why he didn't do antimicrobials but he's put me on minocyclline and Ceftin now, I'm not familiar with that combo. I see you're on them? Or were?

This is Dr. J in DC - not the Hansa Center (the other Dr. J)

This Dr. J prescribes antibiotics, Dr. J does more natural healing....balancing systems that are out of whack, detoxing..etc.

Yes, I had taken both mino and Ceftin prior to seeing Dr. J. I'm on them again - with Rifabutin for Bart.