Hi Charlie, thanks you for that detailed reply.

I'm chronic lyme, 1 year post infection. I am at 70% as we speak.

Maybe I should consider going on ABX again... that's true.
I have an appointment with LLMD J. in DC June 24th...
We'll see what my options are :-/

Alxander said...
Hi Charlie, thanks you for that detailed reply.

I'm chronic lyme, 1 year post infection. I am at 70% as we speak.

Sorry to hear that!!!

Alxander said...


Maybe I should consider going on ABX again... that's true.
I have an appointment with LLMD J. in DC June 24th...
We'll see what my options are :-/

Look Alxander, what you're doing take a break, there's nothing wrong with that, there really isn't. I've done it so many times I can't even count.

It may be worth a try, maybe herbs will be able to hold the infection back. But considering how many pathogens one contracts after being bit by a tick, it might be hard just using herbs in early stages.

But there's no reason why you cant do herbs and antibiotics too if you want to try that.

But I think it's good you're taking a break, trying to learn more about why your liver enzymes could be up along with C-Diff.

And just so you know, fecal matter transplants have basically cured C-Diff. So really many shouldn't be worried as much as they used to be about this resistant bug, however, not every hospital uses fecal matter transplants. So it's still a must to use lots of probioitcs and yogurt to keep it in check.

Girlie said...


If you're not planning on doing abx, I don't see any reason to be a J Clinic patient.
That is his expertise. You may want to seek out an herbalist or LLND if you're going to do herbals.

And yes listen to Girlie, not all LLMDs are created equally.

If I had originally gone out of state, having the knowledge what I know now, I might've of been in remission by now.

There's a lot of Doctors that aren't educated in coinfections like Babesia, which has become a large part in keeping Lyme Disease chronic. Without a doubt the Dr. J Clinic uses the recent and most effective drugs and protocols against Babesia.

If you decide to not go to the J Clinic, you should definitely listen to what drugs, herbs, and biofilm busters Dr. J uses in his clinic... So you can apply them to your own protocols, if you decide to self-treat! Biofilm busters like Stevia or Xylitol/Lactoferrin can be used even with herbs like cats claw, teasel root, A-Bab, and CSA formula.

Post Edited (Charlie55) : 6/5/2019 4:08:47 PM (GMT-6)

Alxander said...

Non Lyme literate doctors here are telling me that I'm going to run my body/life if I keep pushing ABX...

It's funny they say that considering the amount of doctors overprescribing opioids and hundreds of thousands Americans dieing from opioids these days.

Hypocrites? The way they treat us lyme patients, acting like antibiotics are so dangerous meanwhile prescribing other dangerous drugs like candy...

Look, many Doctors just repeat what they hear from the IDSA and CDC. The truth is there's acne patients that stay on antibiotics for years on end, this was mentioned in the Under Our Skin documentaries as a counter-argument, many patients with bad acne have been on doxycycline for years, along with dapsone.

And not to mention the amount of antibiotic and antiparasitic drugs the food industry saturates their cattle and fish with so they can keep up their profits. So why aren't they criticized? As Dr. Rawls stated, one of the reasons why Babesia has a growing resistance to Mepron (Atovaquone) is it's overuse in livestock.

https://rawlsmd.com/health-articles/understanding-babesia

Dr. Rawls said...
Atovaquone is associated with high incidence of side effects; some people are very sensitive to it. Because of extensive use for prevention of babesia in livestock, resistance to Atovaquone is becoming common.

But hey, I'm not going to lie, antibiotic resistance is a growing problem, as are biofilms which is one of the major reasons for antibiotic resistance.

"550,000 fatalities each year are attributed to these biofilms in the US"
https://www.dailymail.co.uk/health/article-5821197/applying-tea-tree-oil-extracts-surgical-tools-kill-deadly-bugs.html

I'm not sure how brushed up you are on the politics behind Lyme Disease, but there's currently two major lawsuits against the CDC and the IDSA. Dr. Lee who's suing the CDC for suppressing his diagnostic test. And the 28 patients suing the CDC for conspiring with Insurance Companies.

Bottom line is, the medical system is corrupt and has failed treating many diseases due to greed, lobbyism and conflicts of interest. Amongst other things...
https://www.healingwell.com/community/default.aspx?f=30&m=4125075

So far everything thing ILADs and scientists like Dr. MacDonald and Dr. Sapi have said about persister cells, biofilms and coinfections for the reason of chronic lyme has come true. While everything that the CDC/IDSA have said about chronic lyme to be false, claiming chronic lyme to being psychosomatic and no underlying infection. Nowadays they're claiming it's PTLDS, aka autoimmune. But here we have numerous studies in modern day showing a chronic infection due to persister cells.

"Lyme Disease May Linger for 1 in 5 Because of Persisters"
https://www.scientificamerican.com/article/lyme-disease-may-linger-for-1-in-5-because-of-persisters/?redirect=1

So if I were you, I'd take the side of ILADs and LLMDs, rather than listen to what the Infectious Disease Doctors are being told to repeat from big pharma and the CDC like parrots.

Chances are, if you just mention the word of Lyme Disease to a regular doctor they're going to roll their eyes or just say it doesn't exist in your state. Truth is most the Doctors have bought into all the propaganda surrounding this disease, I suspect it's going to take a very long time to reverse their way of thinking.

My personal opinion, as long as you're using enough probiotics to replenish your good bacteria in your gut to keep C-Diff in check, along with biofilm busters like stevia and xylitol or lactoferrin with your antibiotics, and alpha lipoic acid/milk thistle to keep your kidneys/liver healthy, you should have nothing to worry about. And again, they've basically cured C-Diff with fecal transplants.

I've been on antibiotics for 8 years and still just fine!

Sorry to say, most Doctors you've probably seen aren't educated or up to date with anything I've basically stated in this post, along with the links and articles.

They get out of college with their degree, they're financially in debt, and all they do is see you and see dollar signs. They're more interested in treating your symptoms so you keep coming back to their office rather than curing you. As the pharmaceutical rep Gwen Olsen stated in the documentary Prescription Thugs, big pharma is not in the business of curing, but in the business of disease management and symptoms maintenance. Sorry to say, a lot of Doctors just think the same way nowadays.

Post Edited (Charlie55) : 6/6/2019 12:39:13 AM (GMT-6)

Girlie said...


Well, I'm willing to take the chance as I was going downhill fast....and it was getting scary. I really felt at times that this disease (s) could kill me....I know it sounds dramatic but I was in pretty bad shape at times.

Well here's the thing, in the first couple of years, I went downhill too, everybody does, but we all must remember a lot of those increase in symptoms aren't from the antibiotics, but from the increase in toxin overload from the herxing along with your immune system responding after you start killing the bacteria. Your immune system is responsible for most of your inflammatory pain!

But can some antibiotics cause serious damage, yeah, avoid the fluoroquinolone antibiotics which should be off the market anyways and you should be fine. Floxed is a serious side affect from fluoroquinolone antibiotics, it's kind of funny too, because it took years for the medical system to acknowledge the severe side effects from these particular antibiotics.

I mean until drugs like disulfiram and Curza's C-Z-199 become available to chronic lyme patients, we're left treating with traditional antibiotics or herbs longterm. If you don't, you will die.

And a side note, other than the supplements that keep your liver/kidneys clean, I found cannabis to be a very valuable plant for detox too. As studies are starting to show, those that drink alcohol and smoke cannabis, cannabis was shown to protect their liver.
https://www.healthline.com/health-news/marijuana-may-protect-the-liver-from-alcohol-but-experts-urge-caution

And yet another thing the medical system and our lovely government said there's no medical bennefits too for decades and were completely wrong about!

There's new studies showing that even cannabis and its cannabinoids can kill antibiotic resistant bacteria and its persister cells. There's numerous pharmaceutical companies making drugs from the plant as we speak.

Post Edited (Charlie55) : 6/6/2019 12:58:12 AM (GMT-6)

Charlie55 said...



Well here's the thing, in the first couple of years, I went downhill too, everybody does, but we all must remember a lot of those increase in symptoms aren't from the antibiotics, but from the increase in toxin overload from the herxing along with your immune system responding after you start killing the bacteria. Your immune system is responsible for most of your inflammatory pain!

But can some antibiotics cause serious damage, yeah, avoid the fluoroquinolone antibiotics which should be off the market anyways and you should be fine. Floxed is a serious side affect from fluoroquinolone antibiotics, it's kind of funny too, because it took years for the medical system to acknowledge the severe side effects from these particular antibiotics.

I mean until drugs like disulfiram and Curza's C-Z-199 become available to chronic lyme patients, we're left treating with traditional antibiotics or herbs longterm. If you don't, you will die.

And a side note, other than the supplements that keep your liver/kidneys clean, I found cannabis to be a very valuable plant for detox too. As studies are starting to show, those that drink alcohol and smoke cannabis, cannabis was shown to protect their liver.
https://www.healthline.com/health-news/marijuana-may-protect-the-liver-from-alcohol-but-experts-urge-caution

And yet another thing the medical system and our lovely government said there's no medical bennefits too for decades and were completely wrong about!

There's new studies showing that even cannabis and its cannabinoids can kill antibiotic resistant bacteria and its persister cells. There's numerous pharmaceutical companies making drugs from the plant as we speak.

Good Stuff Charlie,
Regarding Canabis, that's an interesting topic to me.
I actually never smoked in my entire life but starting doing so after getting lyme.

I "thought" that smoking increased my liver enzyme at some point.
I've been taking bloodwork to measure ALT/AST level every 2 week, and try to pinpoint the change I make that have an impact (good or bad).

I **thought** that smoking weed increase my level, but it might just have been a coincidence.
Like you mention here, I saw online that canabis could help protect the liver, which makes me feel like giving it a second try.