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Posted 6/25/2019 3:42 PM (GMT -5)
Hello! I’m new here! My fiancé just got diagnosed with Lyme disease about 3 months ago. He’s had it for about 5 years and didn’t know it. He has basically been eating a paleo diet and he has been taking herbs that his doctor has recommended. He’s also going to a infrared sauna and taking salt baths. He has doubled vision sometimes and is weak and can’t do very much other wise he gets worn out extremely easy. He’s on the brink of going on disability because he says he can barely function at work. We are getting married in a couple months and I worry that he will never get better and we won’t be able to start the family we have always wanted. sad Is there a doctor that’s part of the ILADS in Orlando FL?
Posted 6/25/2019 5:12 PM (GMT -5)
Hi Aleah - welcome to our forum. Sorry to hear about your fiancé , but I'm glad that you found your way here.
This is a great community - lots of support and knowledge here.

Hopefully someone will be along with some LLMD options for you.

You can also contact ILADS and they will give you a few options in or near your area.



https://www.ilads.org/patient-care/provider-search/

You can also contact me...and I'll look through my list of LLMD's and send you some options.
But, recommendations are best IMO.

I encourage new members to look through the information contained in the thread "New to Lyme?...Start Here!"
It is packed full of useful information.
Posted 6/25/2019 5:49 PM (GMT -5)
Blurry vision and chronic fatigue are also classic symptoms of CIRS from mold/exposure to water damaged buildings. Has he been evaluated for CIRS?
Posted 6/25/2019 5:54 PM (GMT -5)
I don’t think so. He has had these symptoms for 5 years and he moves probably every year and it hasn’t got better. Could he still suffer from mold exposure if he doesn’t live in a house with mold?

WalkingbyFaith said...
Blurry vision and chronic fatigue are also classic symptoms of CIRS from mold/exposure to water damaged buildings. Has he been evaluated for CIRS?

Posted 6/25/2019 5:56 PM (GMT -5)
Thank you for all the info! I’m excited to be apart of the community! What is the difference between LLMD and ILADS? How do I contact you?

Girlie said...
Hi Aleah - welcome to our forum. Sorry to hear about your fiancé , but I'm glad that you found your way here.
This is a great community - lots of support and knowledge here.

Hopefully someone will be along with some LLMD options for you.

You can also contact ILADS and they will give you a few options in or near your area.



https://www.ilads.org/patient-care/provider-search/

You can also contact me...and I'll look through my list of LLMD's and send you some options.
But, recommendations are best IMO.

I encourage new members to look through the information contained in the thread "New to Lyme?...Start Here!"
It is packed full of useful information.

Posted 6/25/2019 6:47 PM (GMT -5)

Aleah86 said...
Thank you for all the info! I’m excited to be apart of the community! What is the difference between LLMD and ILADS? How do I contact you?

Girlie said...
Hi Aleah - welcome to our forum. Sorry to hear about your fiancé , but I'm glad that you found your way here.
This is a great community - lots of support and knowledge here.

Hopefully someone will be along with some LLMD options for you.

You can also contact ILADS and they will give you a few options in or near your area.



https://www.ilads.org/patient-care/provider-search/

You can also contact me...and I'll look through my list of LLMD's and send you some options.
But, recommendations are best IMO.

I encourage new members to look through the information contained in the thread "New to Lyme?...Start Here!"
It is packed full of useful information.


ILADS has a list of LLMD's in different locations. ILADS = International Lyme and Associated Diseases Society.

To contact me via email - click on my screen name to the left of my post and my email should come up.
You can also put your email into your profile so others' can send you names of LLMD's near you.
Posted 6/25/2019 7:37 PM (GMT -5)

Aleah86 said...
I don’t think so. He has had these symptoms for 5 years and he moves probably every year and it hasn’t got better. Could he still suffer from mold exposure if he doesn’t live in a house with mold?

Yes. CIRS can occur from current or past exposure. CIRS doctors have patients do the ERMI or HERTSMI-2 test from Mycometrics lab. That’s the only type of mold testing that correlates to medical symptoms. You can learn more from these websites.

Dr. Shoemaker is the one who laid the groundwork for diagnosis and treatment of CIRS. There are doctors certified in the Shoemaker protocol.
https://www.survivingmold.com/shoemaker-protocol/certified-physicians-shoemaker-protocol
CIRS lab tests: https://www.survivingmold.com/diagnosis/lab-tests

There are some doctors who were certified and broke away from Shoemaker and now use a broader range of treatment options. They formed ISEAI:
https://iseai.org/find-a-professional/

If he was in a moldy environment and moved possessions that were in that environment with him and he has CIRS, he could still be reacting to toxins on the possessions. Toxigenic molds produce mycotoxins and microbial VOCs (mVOCs). These poisonous gases or vapors get on everything and can be difficult to impossible to remove. You can learn more about that here:
https://paradigmchange.me/wp/stuff/

You can get a free pdf of The Beginner’s Guide to Mold Avoidance here: https://paradigmchange.me/paperback/
Instead of testing for mold, some people buy clean clothes and a tent and go camping in a clean environment away from their house and possessions for a week or two and see how they feel. If they notice their symptoms improve and return once they return home, there’s a strong likelihood that mold is somewhere and symptoms are at least partly due to mold exposure.

Lyme and mold often go hand in hand. They both suppress the immune system and cause whole body dysfunction.
Posted 6/25/2019 10:09 PM (GMT -5)
Thank you! That’s good info!

WalkingbyFaith said...

Aleah86 said...
I don’t think so. He has had these symptoms for 5 years and he moves probably every year and it hasn’t got better. Could he still suffer from mold exposure if he doesn’t live in a house with mold?

Yes. CIRS can occur from current or past exposure. CIRS doctors have patients do the ERMI or HERTSMI-2 test from Mycometrics lab. That’s the only type of mold testing that correlates to medical symptoms. You can learn more from these websites.

Dr. Shoemaker is the one who laid the groundwork for diagnosis and treatment of CIRS. There are doctors certified in the Shoemaker protocol.
https://www.survivingmold.com/shoemaker-protocol/certified-physicians-shoemaker-protocol
CIRS lab tests: https://www.survivingmold.com/diagnosis/lab-tests

There are some doctors who were certified and broke away from Shoemaker and now use a broader range of treatment options. They formed ISEAI:
https://iseai.org/find-a-professional/

If he was in a moldy environment and moved possessions that were in that environment with him and he has CIRS, he could still be reacting to toxins on the possessions. Toxigenic molds produce mycotoxins and microbial VOCs (mVOCs). These poisonous gases or vapors get on everything and can be difficult to impossible to remove. You can learn more about that here:
https://paradigmchange.me/wp/stuff/

You can get a free pdf of The Beginner’s Guide to Mold Avoidance here: https://paradigmchange.me/paperback/
Instead of testing for mold, some people buy clean clothes and a tent and go camping in a clean environment away from their house and possessions for a week or two and see how they feel. If they notice their symptoms improve and return once they return home, there’s a strong likelihood that mold is somewhere and symptoms are at least partly due to mold exposure.

Lyme and mold often go hand in hand. They both suppress the immune system and cause whole body dysfunction.

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