Bartonella or lyme

MedicalNerd said...
Blood tests for tick bite testing r useless. I would think a spinal tap looking at cerebral spinal fluid would be a lot more helpful?

So you don't have a diagnosis of lyme yet?


re: spinal fluid. It's hit or miss. i wouldn't do a spinal tap unless there was a necessity.

Blood tests for diagnosing lyme aren't useless. They're not the best...but they're worth a try to back up a clinical diagnosis...or if you don't have a clinical diagnosis yet.

For $250 you can get the Igenex Lyme WB IgM and IgG. maybe worth a try.


Edit: I read an older post of yours'. and you did have lyme bands show up. So, you're wondering if you have bartonella as well?
Is that your question?
"So I came out positive for bands 39, 41 and 42 if not mistaken for igm bt only one or none for the igg ."


Band 39 specific to lyme...41 "almost" specific to lyme.

MedicalNerd said...
I've been tested for Lyme and have had multiple different bands come back positive each time CDC and docs say u need 5 out of 10 but that's a crock of u know what . Ive heard if you've had Lyme for so many years and your immune system is so suppressed it will come back negative. My son had huge bullseye rash sweats headache stomach u name it with negative tests so it is possible. I'm herxing like a mother****** off the herbs and oils so def something that I have . I'm currently doing bartonella protocol 1st before anything else

so why you want to test again?
for bartonella?

just ignore the CDC 5 out of 10 bands.

Do you have a lyme literate dr treating you?

MedicalNerd said...
I found my tests results on my online portal saying I was positive for Lyme in 2015 and my docs NEVER informed me omg. So now they try to say i may have been exposed to Lyme in the past and that's y antibodies show bt that's bull impossible because I was NEVER treated for Lyme back then docs make no sense and swear they know it all

But why do you need to prove to them? The regular docs won't treat you properly anyway...

..... a llmd won't expect re-testing....

Girlie said...

MedicalNerd said...
I've been tested for Lyme and have had multiple different bands come back positive each time CDC and docs say u need 5 out of 10 but that's a crock of u know what . Ive heard if you've had Lyme for so many years and your immune system is so suppressed it will come back negative. My son had huge bullseye rash sweats headache stomach u name it with negative tests so it is possible. I'm herxing like a mother****** off the herbs and oils so def something that I have . I'm currently doing bartonella protocol 1st before anything else

so why you want to test again?
for bartonella?

just ignore the CDC 5 out of 10 bands.

Do you have a lyme literate dr treating you?

Was told by doc to treat bartonella as all the pain sound like bartonella . My test was positive enough for Lyme to start treating . My other doc had never even heard of bartonella and didn't even know code to test for. I self treat based on symptoms . The CDC don't matter as they don't know how many bands ppl should HV to be considered positive obviously.....I'm in school to become an alternative medicine doctor I already work in med field and come to these forums to hear as many stories and experiemces as possible it helps learn a lot more

" I would think a spinal tap looking at cerebral spinal fluid would be a lot more helpful?"


I was responding to that.

Definitely if you're needing one because of encephalitis or meningitis...
just not if it's for lyme/bart testing.

Really trying to test for Bart.... Most docs DNT know WTH I'm talking about it's so annoying I live in connecticut and no good docs out here and need referral to see an infectious disease doc it's ridiculous

Yes well that's what I was meaning to say mind as well since the needles already in lol

Girlie said...
Hope it goes well...... let us know what the results are okay?

Thanks very much wil let you know asap!

Girlie said...
Btw - there are some llmd’s in the Connecticut area. One very experienced one that some members here see... maybe he’s not taking new patients now.

But I do have a few listed in case you’re interested.[/quote


I'm very interested pls list them I was going to see JM and her husband both llmds way too expensive so I had no choice they wanted $2000.00 for 2 hrs

Post Edited By Moderator (Girlie) : 7/27/2019 3:45:32 PM (GMT-6)

Girlie said...
I edited your post to remove the LLMD name - for protection/privacy - we only use initials unless they are already well known - for example Dr Horowitz who is on the news, and writes books.


The one I see in Washington DC - initial consult is way less than that for 2-3 hours initial consult.

He is also an Infectious disease specialist ... and you don’t have to revisit the office monthly - so u save $$ that way.

Send me an email if you want more info... on appt costs plus how far apart appts are.

.


I'm so overwhelmed I totally forgot not to use names. if you can message me some info and all thanks I appreciate it and Washington DC is a few hrs drive from me

Post Edited By Moderator (Girlie) : 7/27/2019 4:04:58 PM (GMT-6)

I had terrible headache and neck pain last night tried to sleep it off totally forgot to shoot u a message to remind u about the info @girlie

MedicalNerd said...
I had terrible headache and neck pain last night tried to sleep it off totally forgot to shoot u a message to remind u about the info @girlie

Well, I forgot until I read your post...lol.


shoot me one now if you like.