LDN for Lyme and Autoimmune

After a few years trying a naturopath but feeling worse, I went back to an LLMD I had seen before about 3.5 hours from my house. I would have kept going to him but was coaching in college and traveling all the time, so tried to work with Lyme situation locally.

He ordered about 70 blood tests. Until results come back and can meet with him again, I will be starting on LDN (1.5), a low dose of monolaurin (I can get even more anxiety using it), a Bart blend herb mix (sida acuta, Japanese knotwewed and houttuynia), two new probiotics, Agrentyn 23 and continue with Bicillin shot once a week. I will slowly add in each one. A concern I have is sida acuta, which might add to existing renal problems I have.

Of the most interest to me is the LDN. I am also dealing with two possible autoimmune conditions - vitiligo and Grover's Disease. Vitiligo cause white patches on your body and Grover's is a mild rash, mainly on my back and abdomen. Since LDN is being used to boost immune system, I asked him if it will cause problems with the autoimmune conditions. He said he believes the infections with Lyme are causing the autoimmune problems and LDN can help build the immune system to fight the infections.

I have also read some researchers now believe that autoimmune conditions are caused by a dysfunctional or unbalanced immune system, and LDN can help balance that.

Has anyone had experience in that area and tried LDN? My first thought is Astroman.

Post Edited (running wild) : 8/13/2019 3:19:40 PM (GMT-6)

Girlie - if I remember right, LDN did not do anything for you?

I took LDN for a while. Didn't do anything for me

I feel it did help me pain wise. It also worked wonders for my HSV2 infection. Prior to starting LDN I would have at least two outbreaks a month, since starting LDN I haven’t had a single outbreak!! It’s been since November. I think it’s worth trying, it definitely boosted My Immune system and did help me pain wise.

I never tried LDN. Wanted to see what my autoimmune would do after
1)lyme was controlled/healed/remission and
2) after eliminating foods found to be inflammatory for my immune system.

So yes those two improved thyroid med need, thyroid autoimmune antibodies, and nodule elimination, but did not heal it.
Did nothing for vitaligo which is very obvious with a summer tan (lack of in those patches) and still obvious in winter (I'm not pale lol).

LND seems like another RX drug, not a "curing agent"..........so thats why I didnt do it (yet). I hate supporting the Rx industry.

I am now on 4 mg LDN. I worked up from 0.5 mg. It did affect my sleep at first. You may be on too high of a dose if that happens. When I first started, I saw my thyroid antibodies drop from over 100 down to 45 within two months. They've since gone up, but I know it's what caused the decrease. It has potential. I have to re-check my antibodies Monday. It'll be interesting to see what the readings say since I just recently within past few months went up to 4. It's hard for me to tell visible improvements from it, as my thyroid is still struggling, but I can tell if I miss it for any period of time.

You’re right running wild and since it’s a pretty cheap drug I think it’s worth at least trying. My doctor started me on 4.5mg, I was super nauseous for a few weeks but then I feel it did help me.

running wild, it mainly affected the autoimmune part of the thyroid disease. I didn't notice a lot of effects on the actual thyroid levels minus the TPO antibodies. I wish it helped thyroid function. Because my thyroid hasn't been stable for quite a while. But I think it just helped more with the autoimmune issues.

running wild, I think the biggest thing it does for me right now is helps me wake up in the mornings. That's a huge plus. I'm not as groggy when I take it the night before.

My anxiety happens more towards mid-morning. But I haven’t noticed a difference in anxiety levels with LDN. Still struggling a good deal with that. Babesia is flaring.