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Link to 4th. Annual Lyme Disease in the Era of Precision Medicine Conference

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Posted 10/26/2019 10:18 AM (GMT -5)

JovaLyme said...
@Girlie,

I don't know what to take with the minocycline or what infections it is supposed to hit. My worst symptoms seem to be from babesia and bartonella I think.

I know minocycline hits the brain pretty well and that is where my worst symptoms are. I really want to clear my head as much as I can. I'm taking disulfiram for as long as I can handle it and then I will probably take something to specifically hit babesia and then move on to bartonella.

Mino hits lyme and paired with another is good for bart.
Llmd’s often pair it with Rifampin or Rifabutin - or a quinolone (apparently very effective but several black box warnings)
Sometimes mino plus bactrim can help with bart - not sure if it’s enough in a longstanding chronic infection.

The Bart “guru” Dr Mozayeni likes Rifampin/Rifabutin plus Biaxin.
Posted 10/26/2019 11:04 AM (GMT -5)
> People whose neuro symptoms improve with minocycline probably had toxoplasmosis.

Nope(my exp).
Posted 10/26/2019 11:34 AM (GMT -5)

Dmitry said...
> People whose neuro symptoms improve with minocycline probably had toxoplasmosis.

Nope(my exp).

Nope as well
Posted 10/26/2019 11:41 AM (GMT -5)

JovaLyme said...

Girlie said...

JovaLyme said...
@Girlie,

I don't know what to take with the minocycline or what infections it is supposed to hit. My worst symptoms seem to be from babesia and bartonella I think.

I know minocycline hits the brain pretty well and that is where my worst symptoms are. I really want to clear my head as much as I can. I'm taking disulfiram for as long as I can handle it and then I will probably take something to specifically hit babesia and then move on to bartonella.

Mino hits lyme and paired with another is good for bart.
Llmd’s often pair it with Rifampin or Rifabutin - or a quinolone (apparently very effective but several black box warnings)
Sometimes mino plus bactrim can help with bart - not sure if it’s enough in a longstanding chronic infection.

The Bart “guru” Dr Mozayeni likes Rifampin/Rifabutin plus Biaxin.

I've got some Rifampin and Bactrim on the way and I've got some Mino in my cart ready to buy on ADC. I can't remember if they have Biaxin on ADC.

Why is it that Dr. J thinks targeting Babesia first is the way to go? What is his thinking behind it? I have a lot of time for him based on what I saw on Under Our Skin. It's making me want to stay with the Disulfiram based on the suggestion that it hits Babesia. Otherwise I'm going to try Alinia and Artemisinin together for it before I move on to Bart.

/////////////////////////////

Yes ADC has Biaxin

Re: Dr J and Babesia - I’m trying to remember if he said the reason why in his interview (video)... I’m thinking he just saw a correlation with treating Babs first and higher successes ?
I don’t think it’s based on studies - rather on results seen.

Have you seen the video?
Posted 10/26/2019 11:59 AM (GMT -5)
Watching this brought up a range of emotions for me. It made me ask why PCR tests for these infections aren't common place for people who present w/symptoms like ours?

I also realized this is super patient centered, cutting edge medicine that your run of the mill doctor HMO doctor isn't going to be aware of let alone practice.

I learned that just raising my blood pressure with salting my food has taken the edge of a lot my symptoms.

Post Edited (ElizKA26) : 10/26/2019 11:02:05 AM (GMT-6)

Posted 10/26/2019 12:09 PM (GMT -5)
So I listened to parts of his interview video - and he used the term “driver” to describe Babesia.

He then states that Bartonella is “a noble adversary

If you have time listen to this:



https://m.youtube.com/watch?v=wde0l-5ykvi
Posted 10/26/2019 12:12 PM (GMT -5)

ElizKA26 said...
Watching this brought up a range of emotions for me. It made me ask why PCR tests for these infections aren't common place for people who present w/symptoms like ours?

I also realized this is super patient centered, cutting edge medicine that your run of the mill doctor HMO doctor isn't going to be aware of let alone practice.

I learned that just raising my blood pressure with salting my food has taken the edge of a lot my symptoms.

PCR’s have a high rate of false negatives. Igenex labs do those tests.
But a positive is a positive - ie the DNA of the bacteria has been identified in the blood sample.
Whereas a WB shows antibodies - which means you have had lyme - but doesn’t show if it’s an active infection or one that is in remission.
Posted 10/26/2019 12:15 PM (GMT -5)
Jova - I pasted a link to the video for you to watch - previous post
A lot of info
Posted 10/26/2019 12:34 PM (GMT -5)
There’s another short video but utube won’t let me share it

It’s titled something like “Dr Jemsek Speaks the Truth”
I think it’s 11 minutes long
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