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Quitting ABX for now...thoughts?

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Posted 10/20/2019 4:15 PM (GMT -5)
Hi,

So about two years ago after finishing late stage Lyme treatment in 2015, I gradually started developing stomach problems and by January 2017 I had full blown IBS.

My problems finally eased up by November 2018 this was a prelude to my current Lyme recurrence which hit me beginning of May.

Now after a good month on ABX (Bactrim & Bicillin), I'm seeing a reappearance of the IBS symptoms, despite taking two different probiotics and digestive enzymes.

I've decided to be on the safe side, and stop the ABX for now and will follow up with my LLMD.

Thoughts or suggestions. Don't want to risk a C Diff situation. Now it's just a mild dysbiosis.
Posted 10/20/2019 4:43 PM (GMT -5)
I think this makes a lot of sense, but I know it's a hard and demoralizing decision to stop a promising treatment because it's too hard on your body. Fortunately, there are many other types of treatment that a good LLMD should be familiar with, which you also can find on this forum and elsewhere online easily. Does anything particularly appeal to you - herbs, rife, IVIG, homeopathy, traditional or classical Chinese medicine, etc.? Have you tried anything other than pharmaceuticals so far? What are your current Lyme symptoms?

Let us know what you try for repairing your gut and how it all works out!
Posted 10/20/2019 5:04 PM (GMT -5)
Hi,

So I've been spared diarrhea or constipation thank goodness...it's just abdo cramping. And it's painful.

To be honest the Bactrim wasn't doing jack for a pharyngeal spasm but it was helping with weakness which kind stalled and is mild. That eases up with an aceytlcholine supplement called huperzine.

The weakness may actually be linked to a rising myasthenia gravis antibody. Doc says one of my markers is high normal & my dad has it. Probably courtesy of the Lyme. Know someone with Lyme that also developed MG after treatment.

And the Bicillin regimen I had just started.

Yes, this is a bummer. I was taking Banderol and Mora...Lyme herbs but those don't seem help.

I don't know if I'm sick enough to qualify for IVIG. But am going to yoga tonight and there's massage and reiki. Also going for a Myer's cocktail & glutathione cocktail tomorrow, so this helps! Thanks for your options!
Posted 10/20/2019 8:20 PM (GMT -5)
Did you take fluoroquinolones ever?

One of the black box warnings is worsening of myasthenia gravis.
Posted 10/20/2019 11:19 PM (GMT -5)
I took Levaquin once years ago and Cipro in my 20's, but never for Lyme. Well maybe for a few days back in 2014 for the Lyme but stopped. Not recently and not long enough to do any damage now, at least I hope not.
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