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Cause of very cold hands and feet

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Posted 12/13/2019 11:47 AM (GMT -5)
Cold hands and feet have happened for years with all the Lyme-related stuff. But this year it seems much more pronounced and consistent. Body temperature has dropped back down to 98 degrees or under most of day, then rises to a low-grade fever later in day.

Not sure if the fever is autoimmune or EBV, but also wondering if EBV can cause such cold hands and low body temperature. The only thing shows up on thyroid test is low T3, which I have been treating and have in low normal range. Or is it Lyme or a co-infection?

I live in Georgia. While it is colder than it has been, we have not experienced real low temperature for this area, yet all is worse. I believe autoimmune symptoms can cause the cold hands and feet, also. Any thoughts? I know a lot of those on this site experience the cold feelings. Thanks.
Posted 12/13/2019 11:54 AM (GMT -5)
You likely have autonomic nervous system damage. The autonomic nervous system governs all of the functions that we don’t think about (digestion, heart rate, circulation). It’s an established medical fact that it can be damaged by viral or bacterial infections as well as autoimmune disease. Both sides of the Lyme argument agree on this. Horowitz devotes a whole chapter to it in his book.

I have Small fiber neuropathy due to autoimmune Lyme. My body attacks my peripheral nerves, both the ones that sense things (hence the pain) and the ones that control things (hence the GI issues tachycardia and circulation problems). My circulation is AWFUL and one of my chief complaints. It’s gotten much better since i started IVIG and my nerves are healing. They can repair themselves.
Posted 12/13/2019 12:03 PM (GMT -5)
I hear ya on that.

Closest thing conventional medicine describes like this is Raynaud syndrome but- usually the cold parts turn blue to. My mother had this and hypothyroid (common together).

I had the cold feet and hands for years but not the blue.

It improved changing from synthroid synthetic t4 to pig thyroid. Still can happen (rare) but takes way longer and is not as bad. I shake my hands out if it starts.

When its super cold (near canada) my hole body gets cold and takes a long time to warm up- warm water over the wrists helps and vice versa if its hot outside. Your blood veins in the wrists are your "heat ex changers".

Cool cynane also helps heat you up... Natures way brand I think(?)..
Posted 12/13/2019 12:09 PM (GMT -5)
Also not implying you have an autoimmune issue. You probably don’t, there are plenty of ways to stress the autonomic nervous system. Only mentioned that because autoimmune issues do the most damage the quickest, and you end up w really obvious extreme symptoms, and the link between these symptoms and the ANS becomes obvious.

Often times modalities as simple as Ashok Guptas Amygdala retraining, deep breathing, or just a return to overall better health is enough to fix it. There have been studies done that show that those w traumatic stress, such as childhood trauma, end up w damaged ANSs through negative fight or flight feedback loops. It’s very interesting and plays a huge role in health, but have seen few people on this board mention it. Have been to see Dr Younger, one of the foremost experts on this who Horowitz mentions in his book.
Posted 12/13/2019 12:12 PM (GMT -5)
Agreed astroman. I have reynauds. My hands turn platinum white in the cold. Look exactly like the picture here:

https://en.m.wikipedia.org/wiki/Raynaud_syndrome
Posted 12/13/2019 2:46 PM (GMT -5)
Per the wiki link:.................".An affected part turning white, then blue, then red, burning "

At least its patriotic in color choice!

----------------------------------------------------

If it happens to me, my fingers skip the blue, go lighter , then red, which also resembles frost bite but isnt.

Ears do this too. Do I ware furry "bomber" / "trapper" hats? Well, yes I do lol!.

I also need to be one step further down in glove selection per temp range vs other northerners.

My feet vary rarly get this, hardy never nowdays.
Posted 12/13/2019 3:03 PM (GMT -5)
dcd - I have read the other long thread you started about autoimmune. Looking at different trains of thought are educating, and I learned a lot from your posts, as well as others.

What is mentioned about autoimmune as part of the cold hands and feet/body makes sense for all three you hit on - viral, bacterial and autoimmune. That is what makes it confusing as I have all three happening. There is no doubt about autoimmune because of vitiligo I am experiencing. EBV is just as sure as IgM and IgGs continue to stay high. Recent Lyme tests showed positive on band 23 and 41.

I've also wondered if the vagus nerve is causing syptoms, which fits the autonomic nervous symptoms. Something, recently, created an improvement for about 5-6 days then went back after pushing a little too much in yard. So that leads me to consider if the immune system can create problems with any of the things you mention.

There are a lot of people I have communicated with dealing with Lyme that have similar symptoms (cold hands and feet, fatigue, anxiety, especially in morning). How to treat is the big unknown. Had thought monolaurin was helping, along with rife. I still have a lot to learn about rife, so it could still help. But knowing which areas to concentrate on (viral, bacterial, autoimmune) is confusing. Throw in kidney concerns, and it takes out a lot of possible treatments.

That is what makes the posts about autoimmune/antibiotics/other treatments so interesting.
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