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Changes in IgG results after 3 weeks

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Posted 12/24/2019 8:56 PM (GMT -5)
So I’ve been in treatment (Oral Ceftin 1000mg) for about three weeks with no signs or feeling of improvement. My ID is looking to do IV if I have no signs after 6 weeks of oral antibiotics. Two months ago I had 3 reactive igg bands (18, 23, 41) Highly correlated with Bb/Lyme. Symptoms for nearly two years moving onto neurological/nervous system. I’m not positive when the bite occurred.

My ID retested me to include tests for coinfections. This time I had Only 2 reactive IgG bands (18, 41) and negative for all coinfections.

I know only my ID can really advise, but with the holiday I’ll be left confused for a little while. Have any of you had similar experiences? Is it possible I’m being cured or do these go reactive and non reactive on and off?
Posted 12/24/2019 9:20 PM (GMT -5)

Klhmed said...
So I’ve been in treatment (Oral Ceftin 1000mg) for about three weeks with no signs or feeling of improvement. My ID is looking to do IV if I have no signs after 6 weeks of oral antibiotics. Two months ago I had 3 reactive igg bands (18, 23, 41) Highly correlated with Bb/Lyme. Symptoms for nearly two years moving onto neurological/nervous system. I’m not positive when the bite occurred.

My ID retested me to include tests for coinfections. This time I had Only 2 reactive IgG bands (18, 41) and negative for all coinfections.

I know only my ID can really advise, but with the holiday I’ll be left confused for a little while. Have any of you had similar experiences? Is it possible I’m being cured or do these go reactive and non reactive on and off?

Are you seeing a LLMD?
(Unless the ID dr is lyme Literate- he won’t be knowledgeable in lyme treatment)
Are you only taking the one antibiotic?
To treat these infections two or more antibiotics are needed.

Testing can’t be used to determine whether you’re in remission.
Remission is when you have symptom resolution.

Three weeks isn’t long enough for chronic lyme.
Hang in there - it’s a marathon!
Posted 12/24/2019 9:24 PM (GMT -5)
That’s one of the complaints about the tests. Most people don’t know this but the way the test works is that a technician reads the bands by eye. They’re trained to spot a
40% density in the band. Anything less is negative, more is positive for that band. Obviously this is vary subjective and can very from technician to technician for the exact same specimen. This is why a lot of smart drs now use MDL labs, because they use spectroscopy to measure the band density, so it’s not
subjective, but quantifiable. So to answer your question, it’s most likely due to flaws in how the test is measured

Post Edited (dcd2103) : 12/24/2019 10:01:27 PM (GMT-7)

Posted 12/25/2019 12:00 PM (GMT -5)

Girlie said...

Klhmed said...
So I’ve been in treatment (Oral Ceftin 1000mg) for about three weeks with no signs or feeling of improvement. My ID is looking to do IV if I have no signs after 6 weeks of oral antibiotics. Two months ago I had 3 reactive igg bands (18, 23, 41) Highly correlated with Bb/Lyme. Symptoms for nearly two years moving onto neurological/nervous system. I’m not positive when the bite occurred.

My ID retested me to include tests for coinfections. This time I had Only 2 reactive IgG bands (18, 41) and negative for all coinfections.

I know only my ID can really advise, but with the holiday I’ll be left confused for a little while. Have any of you had similar experiences? Is it possible I’m being cured or do these go reactive and non reactive on and off?

Are you seeing a LLMD?
(Unless the ID dr is lyme Literate- he won’t be knowledgeable in lyme treatment)
Are you only taking the one antibiotic?
To treat these infections two or more antibiotics are needed.

Testing can’t be used to determine whether you’re in remission.
Remission is when you have symptom resolution.

Three weeks isn’t long enough for chronic lyme.
Hang in there - it’s a marathon!


I’m testing out the ID before dropping the money for Dr. J unless I really need to. The ID is luckily quite Lyme literate, but I’m not sure if he’s specifically an LLMD through ILAD or to that extent. If it doesn’t work out I’ll be making my way to an LLMD but he takes my insurance so I figured it can’t hurt to try.

I am on just the one antibiotic. I’m taking a number of vitamin supplements on the side. In the new year once I’m back from out of town I’ve decided to take up the gluten/processed sugar free diet and check out my local infrared saunas if you have thoughts on either of those!
Posted 12/25/2019 12:02 PM (GMT -5)

dcd2103 said...
That’s one of the complaints about the tests. Most people don’t know this but the way the test works is that a technician reads the bands by eye. They’re trained to spot a
40% density in the band. Anything less is negative, more is positive for that band. Obviously this is vary subjective and can very from technician to technician for the exact same specimen. This is why a lot of smart drs now use MDL labs, because they use spectroscopy to measure the band density, so it’s not
subjective, but quantifiable. So to answer your question, it’s most likely due to flaws in how the test is measured

WOW I had no idea thats how that worked! How do we know if a place uses spectroscopy to measure? I had it done this most recent time at Quest Diagnostics rather than the hospital where I previously had it done.
Posted 12/25/2019 12:09 PM (GMT -5)
This article talks about what I mentioned, go to the Testing Methods section

https://goop.com/wellness/health/rise-chronic-lyme/

Assuming Quest does it by visual inspection
Posted 12/25/2019 12:47 PM (GMT -5)
“ I am on just the one antibiotic. I’m taking a number of vitamin supplements on the side. In the new year once I’m back from out of town I’ve decided to take up the gluten/processed sugar free diet and check out my local infrared saunas if you have thoughts on either of those!“

One of the reasons two or more abx are used is to prevent resistance.

Gluten and sugar free can be helpful - especially if you react to those.
Posted 12/25/2019 4:22 PM (GMT -5)
When I was telling my current PA (works part time for Dr. J) about a previous doctor giving me Rifampin by itself, she told me to never let a doctor do that - prescribe one ABX alone. She said it can cause resistance and basically render useless what could have been a very useful drug. At this point, I don't know whether my use of Rifampin by itself will hurt its effectiveness for me if I use it in the future or not.
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