so what do we do when nothing is working?

I think the reason why some dont get better is because each tick has different viruses and bacteria in it and they cant always figure out what they are much less how to heal them/ I have been getting sicker and sicker for 6 years.
I feel I am suffocaitng all the time. Whatever tick infeciton I have has gotten into my electrical nerve system so my nerves and muscles in my respiratory system are squeezed all the time. I am also depleted exhausted weak and sick.,
It is hell.
I did 9 month of antibiotics at first- and then have tried various herbs. A buch of different dr's bbut no one protocol. I stayed on some for months., I tried magnet therapy. And last 5 months a new dr sho has helped others with lyme and didnt seem to htink lyme was my isse. but I think it is, Not lyme but some tick illness maybe a rare one.
My next try will be chinese medicine. I am going to see someone new next week.
The problem is, if it doesnt work- I know I need to get this infection out of my body it has taken me over. But I dont know what it is nor how to figure it out. I ahve had so many blood tests. But actually not co infection igenex ones. My veins are tired of giving blood too
I am so sick and have this one step but after that if it doesnt help I feel like I am goign to suffocate to death.
any ideas?

And some how in SIX YEARS and thousands of dollars and clinics and drs and travelling-- I NEVER got COINFECTIONS TESTING
I got dozens of blood tests for this and that useless hting but I have no idea why I neevr got tested for all the coinfections???I feel so stupis about that.
Maybe if I can figure out WHAT I have I can know how to treat?
I have no idea - I went ot the ER and they took my blood for useless htings 3X, and doctors took tests for no good results. but no co infections test.
I should get the whole IGENEX co infections panel already!
If this chinese medicine doesnt help next week the next step will be a full co infections test.
Have you all gotten co infecitons test? does it help? I feel so dumb for not doing it have no idea why??
Girlie I dont know who those dr's are you refereed- can oyu give me more info on them as much as you can so I can figure out who they are? like names of the towns they are in or can you private message me their neames? I amdesperate and will do anytihng right now.

I am just so sick of being sick. I tmay be a tick infection or something else but I cannot figure it out. the last person I went to for last 5 months was what I thought a rare find as he figures out weird stuff for ppl/ He thought i had n inhaled chemical;? but 5 months in no change.

I just dont know if the chmical thing is on- the guy uses kinesology=- he is a very good guy and has helped a lot of ppl. At first Ithought the chemical thing was probably but he said it takes 1-3 mnths to clear dependng on chemcial. But we are 5 and a half months in. At first I was having a ittle improvement yet in past month severe again.
He also supposedly knows lyme and said lyme wasnt my cause so I truested that. but now I am doubting him.
I am stil taking the chemical cleairng protocol ( it is a mild one with minerals and vitamins) in case but hoping the chinese medicine accupuncturist can actually help me. I am so desperate and have NO idea why I am suffocating all the time.

I have tried to find a good llmd but cant find one can anyone find one and tell me? I can go anywhere in the northeast usa

I mean I have seen LLMd's and llnds and it didnt help. were they good ones? I dont know./ I mean I may have something totally other than a tick infection. No one can figure me out!
I went to a dr in albany first when I got tick bite who dr H's office recommended- he put me on massive amounts of antibitoics. then since then I went to hansa clinic. I went to local llnds. Last summer I found a llmd I thought would be good cause he is an MD who specializes in lyme. he said since I cant breathe maybe its babesia so lets do cryptolepsis. I did that a few months no change.
I recently went to a guy who is a naturopath I dont want to say his name- but I read a ton of reports about him he is in the NY area- where poeple were getting healed from lyme where others couldn't. he said I had lyme but he said it wasnt causing my problem. he said he cleared the lyme in the first month of treatment but I didnt feel any different.
I very well may have something totally else- definitely something scary., So I found a chinese accupuncturist ( born raised and trained in China, been practicing over 30 years, was the head of accupuncture at a hospital in Shanghai, people come from all over the world to him, am traveliing next week to see him). I guess it gives me a little hope- he has diagnosed and healed a lot of people form major things such as neurological issues ( cerebal palsy, parkinsons) and many other things- has amazing reviews. Whether he will help me with my mystery illness? I dont know. I am constantly being squeezed form the inside out and suffocated- and a huge bloat like my abdomen to my chest and including diaphragm is constantly squeezed and blaoted and tight and I cant breathe. I keep thinking it is a nerve thing but I have no clue. I started to not be able to breathe after the tick bite but it has only been the squeezing severtiy about 3 or 4 years. so I have no idea. either the tick infection totally destroyed my nerves and electrical system., or something totally else happens. I really need someone to figure it out.

Have you explored mold? Are you sensitive to chemicals? Allergies?

I feel like these docs need to be even more comprehensive. Vitamin/mineral panels, immune system testing, complete coinfections, yeast/fungal, metals, parasites, viruses. Have you explored all that?

Did the antibiotics ever help? I think that’s a big clue if the abx helped at all. You are on the right path then. Most docs cycle through meds to hit the main coinfections. Did you try antimalarials? If abx did help, then maybe consider disulfiram?

Can you guys elaborate more on Dr SP in Connecticut?

You need the right antibiotic combination to get you on track. 9 months on abx with 6 years of being sick isn’t enough especially if you haven’t been properly tested for coinfections.

Doxycycline/Azithromycin/Malarone would be a combo that would provide some coverage for all 3 B’s while you try to find out the exact specifics. The Zith can be pulsed every other day (or 4 days on 3 off) if you wanted given its long half life.

TM and JM are a husband and wife team who are osteopaths. I was going to a chiropractor in central CT when the thing about uranium toxicity came up.

My current naturopath is really good, but they currently seem to have switched their focus to anti-aging medicine so I don't know. I really don't know which doctors are the best .

All I can say is try to find someone who seems knowledgeable and you are comfortable with. The red flag for me was when a doctor seemed to think that I was somehow imagining or causing my own illness.

flowergarden, I don't remember if you have mentioned which tests you have had done, but I am wondering if you have had any imaging tests done of the vasculature in your abdomen. Seems worth ruling out an abdominal aortic aneurism and MALS (median arcuate ligament syndrome). There is some overlap between MALS and POTS (you mentioned high heart rate and nervous system issues), and Lyme can weaken and inflame ligaments (leading to or exacerbating MALS). Just a couple more ideas for you.

I very much hope that you find some relief and some answers soon!

saraeli I had an abdominal ultrasound 2 yrs ago and a bunch of chest x rays and an abdominal x ray this past year-- nothing in particular was found but who knows!~ I do have a hiatal hernia too that comes up and supposedly my chiro/dr pulls it down I also haveno idea how much to trust that. the current person I am seeing for 5 months can supposedly pull them down and he says its only come up twice in the 5 months I have seen him ( I see him twice a month) and it didnt help with this main issue so dont think that is it- though I think my diaphragm being weak enough to have the hernia is part of this whole thing. for a while I was considering if my diaphragm was actually paralyzed which totally scared me- found a fb group of ppl with that but dont totally match the symptoms- but I was wondering if my nerve messed up the diaphragm,. I am just all over the place.

when your tired of guessing use direct microscopy, kinsio or klinghardt testing to narrow down and confirm pathogens. i had 9 detrimental infections! read the ellie lobel story, she was where your at maybe worse ... bvt doesn't care if its bacterial, viral or fungal it just kicks biofilm butt and doesnt take names ..: when extreme circumstances call for extreme measures the constitution of a human is surely tested......not many step up...