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Anyone with full on MCAS taken Disulfiram?

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Posted 3/4/2020 6:30 AM (GMT -5)
If so, how is it going? Has MCAS decreased or increased, gone away?

Any experiences would be helpful, I'm considering trying Disulfiram, thank you!
Posted 3/4/2020 10:12 AM (GMT -5)
I did. I had no issues with it either way.
Posted 3/4/2020 3:21 PM (GMT -5)
Great to hear, thank you! Are you in remission from the TBI's or still taking the drug/working on it?

Has MCAS improved along the way or stayed the same?

Thanks for your reply, I hope you are feeling great these days and that Disulfiram has helped you.
Posted 3/4/2020 3:54 PM (GMT -5)
Yes me, it went up first, now it's going down.
Posted 3/4/2020 4:01 PM (GMT -5)
RainyCloud, that is great. Thank you. Glad its improved for you.
Posted 3/4/2020 4:03 PM (GMT -5)
Thank you sunny40. Don't be scared for the red rashes on your body. It will get pretty crazy at first. But it goes away. It's harmless in my opinion.
Posted 3/4/2020 9:00 PM (GMT -5)
Disulfiram actually didn't do anything for me. I think I may have cleared the infections abehile ago and MCAS and autoimmunity are my largest issues now. I do things to keep the MCAS in check but it hasn't improved unfortunately
Posted 3/5/2020 8:55 AM (GMT -5)
Thank you Aerose91. I am glad you are doing so well with TBI's, fantastic! Perhaps in time the MCAS will heal. I am hopeful that this will be the case for me!

Have a great day!
Posted 3/20/2020 6:18 PM (GMT -5)
sunny40 did you end up trying it?
Posted 3/21/2020 7:49 AM (GMT -5)
No, with the current virus situation I don't feel its a good time to be ramping up any symptoms and to be needing blood work every few weeks.

Later this year perhaps.
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