Thanks for replying.No I have not had symptoms since I was a baby .I started having problem with my neck about
a year after my baby was born.just mild sore neck.Over the course of 3 years it got worse.when I turn it sounds like gravel or sand in it and sometimes crack.Its sometimes very painful if I turn it to far to the left.Dec 2018 is when I had the MRI and the syrinx was there .The Neurologist said it was benign.I also had 2 spots that the neurologist claimed MS and 2 other neurologist said no MS.I am currently taking Clarithromycin,Rifampin,plaquenil and 250mg disulfiram.I have been on abx for 11 months just started disulfiram in Jan.I have tight muscles all over sometimes at night in my sleep that makes me stiff while laying on my back .I sweat and feel hot. This doesn’t happen often. I have twitching that is finally slowing down.But my legs and arm go to sleep And feel numb when I hold them a certain way or if I let my leg dangle from the bed but when I move out that position it stops.I also have Parasthesis.Stiff neck that cracks and pops.Some days I feel like it’s getting better then other days I don’t.like a viscious cycle.One of the Neurologist did say she wonder if the syrinx could be causing the symptoms but some of my symptoms like the joints popping and joint pain and occasional BO such as onion sent or wet dog scent I don’t think the syrinx would cause that.
saraeli said...
Canker sores are common and underarm odor in kids happens more than people think, especially if they eat animal products. It's entirely possible to pass Lyme and other infections in utero and in breastmilk, but if your child isn't having symptoms other than canker sores and stinky pits, then I would not worry about him. He also could get bitten by a tick or other vector for this illness (some mosquitoes and mites carry it, too) in the future, so it's a good idea to keep him as healthy as possible - probiotics, no sugar, healthy ways of handling stress, etc. Keep in mind that contracting Lyme bacteria and getting sick with Lyme disease can be two different things. These are opportunistic pathogens, so they patiently wait for the system to weaken before taking over. (Half of Martha's Vineyard and most timber industry workers test positive for Lyme, but very few of them are sick.) But really, from what you have said here, don't worry about him.
Your rash sounds like a Lyme bullseye, which would most likely appear right after being bitten, but it is possible that you had Lyme before that as well. Many people do not have a bullseye rash or do not notice it. My guess would be that you contracted Lyme well before that bite.
I don't know enough about your cerebrospinal abnormalities to make an educated guess, but you say that you have had some of these symptoms since you were a baby. Symptoms that progress are to be expected, right, as the cysts grow? Have you considered surgery for the syrinx, or are you thinking that you've had Lyme your whole life and therefore the syrinx might be reversible? Has Lyme treatment reduced your symptoms at all? Do you take any neuroprotective herbs, anti-inflammatory compounds, or anything else that helps? Does your LLMD agree that this strategy might help? If your condition is being exacerbated by Lyme, then of course it makes sense to treat the Lyme. I'm just curious how much difference it can make if the condition is caused by a structural issue. Some folks with myalgic encephalomyelitis (chronic fatigue syndrome) are found to have a structural abnormality that is reversible with surgery and completely eliminates their symptoms. https://www.healthrising.org/blog/2019/05/21/jennifer-brea-chronic-fatigue-mecfs-recovering-story/
Post Edited (Familymatters) : 4/18/2020 5:57:14 PM (GMT-6)