Woodduck12 said...
I have been on Clarithomicy for approximately 3 weeks and intrusions are really bad. I am trying to titer up but can't seems to get to a tolerable dose. I have been having these intrusive thoughts and urges to harm my self and others, Is this Herxing?
2) Biaxin is Monotherapy can it cause psych herxing? I thought it doesn't cross the BBB well?
3) I am supposed to start Ceftin with the Clarotho. Is Ceftin a hard herxing ABX? My LLMD said I will feel better on Ceftin.
3)Is Claritho effective for ALL the B's ?
4) I have done 3 yrs of herbals and had my fair share of herxes but not like this. Can I stop treatment to find my baseline or should I push through?
What was your worst month of herxing?
Current Supplement list
Biaxin 2x 500mg
Nystain
8mg inositol powder
1000mg NAC
LOTS OF PROBIOTICS
Alkazeltzer Gold / Vitiman C and Lime juice
Chorella With Bragss Apple cider Vinegar
100mg coq10
Marty Ross Glutathione coming in the mail
Activated Charcoal'

T thinking of buying BURBUR/ PINELLA

Don't know what else to do? Before ABX treatment I stopped all herbals and focused on my gut and I did noticed better days and had more optimism. I still had Intrusions but not to this degree. Sometimes I want to just see a SSRI would work. My cognition has been a lot better for herbals. It took three years to get it back but I can type faster, think better, and do not need to search for words as much. My final nail in this is going to be ridding my self of these intrusions.

It certainly could be herxing - the timing is right.

Biaxin isn’t the best antibiotic for penetrating blood/brain barrier but I think it does somewhat...

I believe Ceftin is better for b/b barrier penetration.
I’ve not found Ceftin to be too harsh.
Biaxin is a good lyme antibiotic and also good for bart when combined with something else like Rifampin or Rifabutin.
For Babesia, you will need an antimalarial - Mepron or malarone are generally used.
Alinia, Artesunate, Clindamycin may also kill Babs.

If it’s bad - DO NOT push through.

I pushed through with my bart/Persisters protocol once and took my last dose of the cycle on the Friday night even though I was starting to feel bad late afternoon.
I almost went to the hospital - my arms started jerking, my temp was high , my heart rate was high, and my body and head hurt.
I was scared - and my husband was worried too - he called in sick the next morning - didn’t want to leave me alone.
So please don’t push through if it’s getting bad...

Woodduck, there are alternatives, ceftin is a good choice for Lyme, but you need an intracelular abx like doxycicline or mino to combine, if you have Bart like Girlie said.

Tinidazole for example is good but not everybody tolerates it.

Clarithtomycin messes with your gaba in the nervous system, its even used to keep people awake if they have hypersomnia. In other words it keeps you restless. Its on my black list. Others are fine with it, but since there are studies showing it messed with gaba receptors on the brain i would stay away from it. Some people tolerate azithromycin better and its a macrolide, but its messes with your heart if you use it long term. Of them all, um terms of intracelular abx doxy are safer to the heart and brain. Rifampicin is not good for the liver and interacts with tons of meds, rifabutin would be the one from rifampicin who have less interactoons. Go safe.

Things arnt as bad as day two. It could be a herx. It seems that I have been herxing to some degree everyday. On the other hand I think I could be herxing and on top of the herx I could be experiencing a nuero toxic effect from the drug as well. I hate to quit only after 3 weeks. What is left of my mental health is precious as well. I read alpt of drug reviews from users saying they had horrible side effects from the clariomycin. Hard to decide.

I dont know why she prescibed that particular abx? Most my symptoms are brain. Im stuck because it could a herx or interaction and even both. Its possaible that I was killing bugs and reacting at the same time. On the first day of using this med I was feeling like I was going to pass out. On the second day I had insomnia. I know she thinks bart! and wants to use Ramp as soon as she can. I almost want to ask for ABART. It seems effective and you have more controll over the dosing. Is ceftin a pill that can be cut in half? Does it touch bart at all? Maybe ill pair it with houutt and sida?

I read that exact study BTW. It seems that it binds to GABA A and glutamine increases.

Woodduck12 said...
I dont know why she prescibed that particular abx? .

Because it’s a good antibiotic for lyme/bart.
Dr M who specializes in Bart treatment prescribes Biaxin with Rifampin/Rifabutin

My LLMD also sugested biaxin / clarithromycin, but i made my homework first... Just because is good doesnt mean it will not hurt. Your insomnia is also consistent with what clarithormycin does, it dampens normal gaba receptors in the brain, wish help us sleep. The ones who are ok with it dont have a guarantee that it it will not do them harm slowly with time. The problem is some people react faster and although some are ok, they can react later and in the mean time it does the damage in the background. Every drug that inhibits gaba and stimulates glutamate is very bad news. Quinolones are one of those family of antibiotics who does that.

Covid 19 is a perfect example in that in the begining the medical authorities thought that Search Hydroxychloroquine was a cure for covid, the trials started, while on trials, a good number of people died from heart problems and other fatal side effects from Hydroxychloroquine.

There is some people who are ok with Hydroxychloroquine, but when you read what it can do to you, and even if it doesnt, it can and could do in the long term, you think twice before putting that poison in your mouth. Some LLMD will say to you Hydroxychloroquine is good for babesia, but what about the rest? They see you as a number and since the number of deaths are low, they suppose you are the perfect guinea pig and go ahead. Remember, they are not the person taking it, YOU are. So what i do is, search the studies available to the public, does it stimulate glutamate? Red flag, does it change electric conduction signals to the heart? Red Flag, does it mess with your liver too much? Red Flag. Are there abx wish are with less or even no known risks with that red flags? Yes there are, plenty. Are they as good for Lyme, Bartonella? Of course.

Just do you own research and better yet,let your brain/body be the best judge to say to you: "Hey! This is not good for me, this keeps me awake, keeps me restless, keeps me fainting"
One way to help you know if its an herx is to try another antibiotic wish kills Borrelia, if it doesnt give you the same reaction and its effective for lyme, than you had a side effect on the other antibiotic and not herx reaction. Hope it helps.

ChristianWithLyme said...
A quote on twitter from James Todaro, MD.

"A tale of two drugs...

Remdesivir & HCQ both show promise for COVID-19

HCQ is discredited w/ fraudulent data, FDA warnings & overdoses

Remdesivir is praised w/ tightly guarded data by the NIH and a task force of Gilead investors/employees

HCQ: Under $10
Remdesivir: Over $3000"

Yea its like one is patented and one is not. Its like a company invested millions of dollars in something and want money back. HCQ has been around since the 50s no one will research it theres no reason too theres no benefit in doing so. Is this going to become like the mask thread?

Multiple sides to an issue should be able to be discussed on a forum. People can make informed decisions when they hear both sides. I do believe there would be a benefit to researching Hydroxychloroquine for Covid. If it worked (and it sounds like it does when treating early with Zinc and Z-Pak), people would have a cheap treatment and could get it directly from their doctor.

The risks and benefits regarding Biaxin also need to be considered in order for a person to make an informed decision as to whether or not they want to use it. I wasn't aware of the gaba issues with Biaxin, so it is good to know since I am taking it.

I found it difficult to kill bartonella unless I first took something that would disturb it and cause it to come out of its dormant state. Atovaquone, valproate, or disulfiram would do this. Afterwards I could kill it with minocycline. When bart died, the herx was very obvious, diarrhea, dark urine (bilirubin) and smelled bad.

I did LDI in 2017, but it didn't work well for me. Early 2019 was when I started ABX treatment and was responding well with my first doctor, but she took me off ABX before I was even close to symptom free, and I relapsed. Since then, I've been off and on ABX and have been on pretty continuously since January of this year, I believe. Seemed like on Dr. J protocols, it was one step forward and two steps backward, so I am now trying Dr. M's protocol (with some modifications, probably). I just started it a few days ago with the Biaxin 500mg 2x day.

I was taking NAC and seemed to be tolerating it and then it seemed like it was causing me to flare at one point, so I stopped for awhile. It seemed to flare me more when all my Bart symptoms were coming out bad. I took 600mg again yesterday and may try to take it every other day or so now that I'm on ABX every day.

i can relate, sometimes i have to stop NAC too because its too much to handle but i love to see when the marks on my skin appear after using my combo with NAC. Even tough i am too ill, i feel happy to see its killing it by the marks on the skin..