Welcome to the forum!

I have POTS, as do many other members. Have you tried usual treatments - lots of salt, proper hydration, compression stockings, etc. - or any meds for it? Anything helpful? Is there a pattern you have found for when it flares? These days mine only appears when I am dehydrated, when there's a sudden barometric pressure drop or very hot weather, when I've over-exerted myself over a period of time, when my MCAS gets triggered, or when I'm menstruating. Since I focused on neurological health a lot a couple of years ago, my only noticeable POTS symptom has been the tachycardia itself, which I don't notice unless I think to take my pulse (not lightheaded, woozy, faint, dizzy, tired, nauseated, anxious, etc. anymore). Most people improve as their overall illness improves with treatment. I hope this flare passes soon for you! POTS can be so limiting!

I do not have Gilbert's, but I know what it is because I have other biliary tract stuff going on - namely pain and pale stools. Bloodwork is mostly normal, though. A lot of my treatment right now is geared toward liver and biliary tract health, so I'm interested to hear more from you about how you are tailoring treatment to support your liver.

I wish you luck with your treatment pivot!

Clledl3 said...
Hello all! This is my first post, though I’ve sick 3.5 years. My life changed in June 2017 and hasn’t been the same since, I’m sure you can all relate.
I have Gilbert’s (“benign” liver condition causing elevated bilirubin) as well and was diagnosed with POTS 2 years ago. My POTS symptoms have gotten worse and are especially terrible right now, I don’t have a cardiologist, but do have a LLMD.

My question is, does anyone else here also have Gilbert’s and POTS? If so, what tips and tricks do you recommend?
I’ve had many, many ups and downs the last 3.5 years and am currently in another very low point, I believe exacerbated by the heavy antibiotics. I had to stop all treatment because of my liver, we’re going to try a natural approach.
Just looking for some support and/or insight from others who are there/have been there themselves.

Thanks all, take care

I was told I had Gilbert’s syndrome when I was in high school. I had gone to the Dr because of yellow tinge on the whites of my eyes.
Liver tests were done and I had high bilirubin.
All my other liver tests have been good - except a few times over the past 5 years when they have temporarily raised due to heavy antibiotic use.
My bilirubin is often low now - making me wonder if it had been lyme/bart causing it - prior to treating it the past few years.

I did have pots but that didn’t start until 2013 (when other lyme symptoms started) - it has resolved since lyme and bart treatment.