WalkingbyFaith said...
I had perpetual herxing when I was on my version of Buhner’s protocol for a long time, and for a long time it was like Lymie24 described -systemic, rotating symptoms. For me, it felt like a never ending merry go round. I used to imagine a parade with a menagerie of animals that would shift places as some would move to the front and others would drop back and on and on they marched.
At some point, I felt like I was stuck in a perpetual herx, but it felt different. That was when I decided to try Rx antifungals, and finally got a breakthrough.
Lymie24,
Can you describe your chest symptoms? Do you ever get widespread soreness to the touch - upper chest, ribs below the armpit, or edges of hip bones? Do you ever get hot spots - random areas that feel hot and feverish to the touch or burn like they’re on fire? I get hot spots on my shoulder sometimes or a knee and burning sensations in my face or scalp or pelvis.
I don’t know if these things are from bartonella, mold, or inflammation from MCAS, but I have it bad right now, and it scares me.
Hello there!
My physical chest symptoms are simply one of pain. However, I don't have any pain to touch. My pain is usually along my sternum, and seemingly mostly along the lower left side of my sternum. The pain does not usually come up to my upper chest. Occasionally I feel it in the right side of my chest. When I was having the worst symptoms I would sometimes get "lightening bolt" pain that zapped across my left side of my chest upward towards my left shoulder. I get hip pain, but again, don't get it painful to touch.
All of these symptoms have improved with herbal therapy, and few other interventions. My LLMD told me I didn't need to worry about
it. He thought this was inflammation and likely costochondritis. I believed him, but since I was having cardiac issues, as well as being ill for quite some time now, I recently went to get checked out by a Cardiologist. After holter test and echo everything checked out fine. So my LLMD was likely right. When I do get chest pain now, it's accompanied with a flare which intensifies all symptoms. I am quite confident that Bart is a primary issue since I get some tell tale signs of it. Ex. Marks during flares, shin pain, occasional arch pain, painful joints, muscle twitching (it's insane how much this has improved since herbal therapy), all over joint pain, with intense flaring extreme agitation to noise/light and anxiety (there have been times that I've had to lock myself in a room with the door closed listening to some kind of soothing music (ex. classical) while performing concentration meditation on the breath just not to freak out), aching lymph nodes (not swollen), and feeling of sore throat coming on that never materializes into a full blown sore throat (this symptom has also improved greatly with herbal therapy)
There could be other problems tacked on, but I'm highly suspicious Bart is my main foe these days. My symptom profile seemed to change after my first course of Disulfiram. I do wonder if DSF cleared Lyme, and Bart took over after that.
Post Edited (Lymie24) : 10/11/2021 12:51:48 PM (GMT-6)