In Need of Advice

Forest - many many of us on this forum have been in a very dark place with this disease including myself.
You have to keep fighting - and push on in order to get well.
It’s not easy - but do not give up!!

My go-to detox was warm Epsom salt baths - I sometimes just sat in the tub and cried.

Forest said...
Hello everyone,

I am new here. I am looking for advice. I want to get as much information as I can possibly get. I am suffering greatly. At this very moment, I am herxing so badly. Right now it's shakes, vertigo, and anxiety, which are almost always happening anyway, as I never get any breaks but I do get lots of wax and waning. I just got supplements from my doc to help, but I am scared t take anything. I have had constant symptoms that haven't let up since mid-May. One of the very worst things is anxiety, as many of us have. I tried one the "Cortisol Manager" he suggested, but I am not sure that does anything. Then,

I am just looking for advice from stories of yours. Anything you wanna share to help me and various others who read this. I am doing my best to listen to my docs (I have many) but this is so tough and I have been dealing with this "mystery" illness for years. It's just gotten to the point where I am figuring this all out.

Looking for hope. I feel like I'm losing it.

You are in the right place if you are looking for hope
My anxiety was REALLY bad. My doctor discovered my Vit B was low. They put me on a B Vitamin and it has really helped. B Activ by Xymogen

AIM Barley Grass, AIM JusCarrots, Aim Redibeets, Kyolic Garlic 103. These things have changed my life. It takes a couple of months for it to impact your system, but once you make it a part of your regular routine, your body will thank you

As your body starts to kill off all the bad stuff, you need to make sure you are flushing it properly. The lymphatic system plays the central role in building immune response. It enables the body to rid itself of bacteria and viruses, filter foreign substances and cell debris from the blood and produce lymphocytes. It removes toxins. My lymph nodes were swollen and I took AIM Herbal Release Lymphatic Health.

I am not paid to endorse ANY of this. I was guided these things from the testimony of people right here on this forum. I am just paying it forward. Hope it works out and I am praying for you. Trust me, it gets better.

bbailey423, that is great! But I have been on all kinds of vitamins and such for a long time. As mentioned before, I was juicing and that is probably one of the best ways to get vitamins especially B vitamins from dark leafy greens. The only fruit I would juice is apple, cucumber or lemon. Then there's the spray1500 mcg of B12 I take daily, alongside 10000 IU of D3 and now I take 1 cap of 500 mg Turmeric, which comes to about 85 mg of curcuminoids. Now I take a larger dose based on other stuff, but I did this to build up.

I assume you've been treated or have been being treated? For me, I have yet to start and we don't know if I got this in 2007/2008 or 2017 or 2020 or even this year in 2021. I am unsure, especially based on my history of issues. But at this point in my life, everything is near unlivable. My vision has been so weird for many months and everything is crazy. I just can't quite understand how people can work during this? I can barely make it to the bathroom. I can't do things at all. My vertigo is so severe. It's not that things are spinning, it's that every movement I make, things feel like an earthquake underneath me. This is every few seconds to minutes. I wonder if anyone else has/had this. It is probably one of the very worst things a human being can experience, especially alongside anxiety, since that makes it worse.

I wish vitamins made me feel better though. I am jealous! I suppose this really is because I have yet to treat this. Never even did the ER visit where they would diagnose and give me Doxy or anything like that. Never showed up there. Only have a positive and active Babesia FISH test. There is too much conflicting info out, so it is hard to know how long I have had this. All that I know is that I am not doing good and I am fearful of this being my life. I have spent years tired and sick before this, but I got through. Now this is something else.

Saraeli, thank you for this. Yes, that is exactly what is happening. Mine never stops, although it does slow down and feel like "the boat" is hitting smaller waves, but it also comes with this internal vibration that feels like a small earthquake, but I always feel like things are moving 24/7 no matter what. I can imagine my inflammation is pretty bad, especially since this is always happening. It does seem like other's have this constant inflammatory response too. I just wish there were times where it felt better. I have been feeling "out of body" and gone for so long, so it's just insanely frustrating. I guess the next step is to start treating this with the serrapeptase and the A-BAB. I really hope it workso ut and I see good results.

If anyone has anything else, I am always listening. I want to be as prepared as possible. Seems like I am alway in this mode, so anything is really helpful. Thanks!

I typed this up earlier and forgot to hit submit, oops!

I have not had a time without this symptom. I just started to get it out of nowhere one day and it got increasingly worse and worse. That is why it scares me so much. Sometimes it waxes and wanes, but overall there is always something prominent happening and it is usually that alongside my vision being messed up, feeling like I am in an alternate universe. I am glad you understand because it truly sucks doing this alone. I barely have anyone to talk to. My family isn't willing to help and I have no friends willing to see me, except for one, and that is tricky on its own. Oh, and I love essential oils. I was using them, but I don't remember seeing much benefit, but that was when I was in the "mold room", which I have recently moved from and blocked off. The plan is to have my family and my friend help clean it, but I don't see that happening anytime soon. Luckily, the room I am in now is much better. Chances are, there is not much mold now since the moldy air conditioner I had is gone now. I do not believe it got into the walls and if so, it's minimal. I see nothing and to be extra safe, I am getting multiple tests to check. A professional is gonna come in and help with that.

Now, are you talking about CT in your entire second paragraph? Yes, I have been meaning to try CT but I have had a hard time finding it in my area. I found someone today, but it can be expensive to do. I may give it a try though. Money is no good if my health sucks, and I will do absolutely anything to feel better. However, it seems everything makes me feel worse, no matter what I do. The only times I feel a little better (it's not much) are out of random. Probably because I am consuming something that helped and after the die-off, I ended up feeling better. That would be my assumption.

Yes, I use turmeric in my treatment. I added this before I even met with my docs, as I knew that it was really the first step. I m currently on 500 mg, with 85 mg of curcuminoids. I am going to be doubling that soon. My detox supplement also has curcuminoids in it as well, but not much, just 40 mg, and that is spread across 6 capsules throughout the day, 2 at a time. It all adds up though.

Night time is one of the only times where things cool down. I notice I will have the shakes in small amounts and y body won't feel so driven. I am not sure if anyone relates to this, but I can only assume this is because cortisol is at it's lowest during the late evening, especially during the wee hours. Of course, this all depends on genes, but naturally, this is how it goes.