Need Support and Thoughts

Forest,

I don’t know if you will find relief with A-Bab and Serrapeptase or not. Treatment is a lot of trial and error. I would start with extremely tiny doses of A-Bab. The Byron White formulas are highly concentrated and contain a large number of herbs. Some people put 1 drop in a glass of water and drink that one glass over a period days. No kidding!

I think I have read posts in the past where people had no issues tolerating the BW Formulas, but more people have reported it was very potent and required care with dosage.

With any treatment, it is advisable to start very low and slow. The more toxic and sensitive you are, the more important it seems to be.

The fears are real and understandable. Still, you had enough courage to seek out a practitioner for help. You decided it was time to do something. The fear of staying the same became greater than the fear of trying to do something about it. You have the courage. Get your toes wet.

Post Edited (WalkingbyFaith) : 10/12/2021 7:58:57 PM (GMT-6)

Hi Forest,
Since you know you have issues with mold, you may need to get that under control before you will be able to make much progress in healing other infections. I'm sure there are people that have treated the other infections before treating the mold, but most seem to need the mold issues at least settled down before they are able to make much progress healing other issues.

I don't know if people here still urge others to detox or not - but it's what saved me, literally. I don't detox well, so every treatment has huge herxes for me, some treatments made me herx so bad that I was having seizures and other serious health issues. I couldn't get through even the gentlest of treatments until I learned how to detox my body well. Again, everyone is different.

For me, detoxing well meant that my symptoms eased - never went away, of course because I had an ongoing infection - but even the easing of some of my symptoms was a good start! I will assume you don't know my story - I was infected at 7 yrs old, diagnosed when I was in my 40's. The LLMD that diagnosed me said I likely had every infection that ticks carried due to the number and severity of my symptoms - it was bad, but I not only survived, I went on to heal. There were a ton of ups and downs, and this forum helped me survive all of that.

Be sure that you don't push yourself too hard or fast through treatments. The body can only handle so many toxins in the blood stream at a time, and if your body doesn't detox easily/well, then you will need to work at a snail's pace and detox heavily to keep an even keel so you don't end up bed-ridden. As hard as it may sound, you can do this. It's a matter of listening to your body and learning when enough is enough, and to slow down treatments, or increase the amount and methods of detoxing. It's a balancing act that we must help the body perform.

I think we can all relate to your frustrations - at least those of us that have struggled for some time with these infections. Hang in there, and don't stop until you find a treatment that you tolerate and works for you, no matter how slowly you may have to move through said treatments. I wish you the very best in this!!

Forest,

I think you will find many here completely understand what you are going through. Many change in life, especially medical changes for the worst, are freaking anxiety producing!!! Ughhh.

I would just echo fundamental advice. Get on treatment (seems you are already doing that), fix your diet, make sure you get movement/sweating when you can, implement a detox plan, and make sure you are finding and using strategies that can induce relaxation and mitigate anxiety/stress.

Personally, I think Dr. Rawl's book called Unlocking Lyme is a great easy to understand guide to dealing with Lyme. He uses herbs, and a lot of his book is about herbal usage, but, he also has great chapter after great chapter of easily digestible practical advice on how to live and heal from chronic illness. Check it out!

Oh, and I would strongly suggest you work towards acceptance. Acceptance doesn't mean that you give up, and don't try to improve your condition. Acceptance means that what has happened to you has happened to you. Things might never go back to the way they were. That's okay! Change/Impermanence is a fundamental fact of the universe. You are an animal and animals change. They are birthed, they grow, they peak, they decline and they die. That's if they are lucky! Animals get sick and experience illness. Fighting this with unmitigated desperation will only lead to stress which in turn will have a detrimental effect on your immune system making you sicker and less likely to heal. Acceptance means that you don't stop striving for improvement, but you accept the reality of where you are in the current moment. This is easier said than done, but it's powerful and necessary in chronic illness in my opinion. You can do it!

Post Edited (Lymie24) : 10/13/2021 1:52:51 PM (GMT-6)

I feel like I am dying 24/7. I need treatment for sure, but I am not actually on anything that acts to kill the babesia, etc. I may be a worse case than most, as I am bedridden and have 30+ symptoms that have been there since May 15, 2021, and have had this untreated infection possibly since 2007/2008, or the more hopeful 2017, but it makes better sense that it was 2007/2008 that this all started. I am dealing with the "MS-like" symptoms a lot of the time. My anxiety is certainly through the roof. I have truly bad dysautonomia. I cannot think straight, etc. I am pretty sure I am someone who needs to be back on the benzos asap. I have always had issues since I was little, so this amplifies those issues. It's hard for others who don't understand, so it's nice to be a part of this forum. I appreciate the responses. I have dealt with wayyyyyyyyyyyyyyyyyyyyy way more than most people, let alone people under 30 years of age (I'm 28, almost 29) and have already experienced 4 major "flares" that have lasted 3-16 months at a time.

I do agree with detoxing, but it seems that doesn't do much for me. I did months of juicing, and that is one of the most powerful ways to rid toxins from the body, and now I am taking Multiphase Detox on top of it, so I reduced the juicing to once a day. I am probably pretty clean compared to what I was in May 2021, that is for sure. I am not around the mold now. Part of me believes this really is the Babesia and that the mold is not contributing and much as it was. Things have improved in one department, but not in another. I am just feeling uncertain of this treatment right now until I have some diazepam to help control my issues, which I believe that most of them can be helped by the diazepam. I mean all of my stuff is mostly vestibular. Is that really going to get in the way of clearing this from my body? I have detoxed the hell out of myself already, but regardless of what I put in my body, I have constant anxiety that just doe not stop. Believe me when I say I am a difficult and possibly severe case. I don't know what makes me so bad, but I have it really bad. Scares me, as if I am always stuck like this. I have so many freaking goals. One day before this all hit, I had trademarked my record label too. Things in life weren't amazing but they were going okay. Now, things are so bad. I accept things, mentally I am great, I have done that, and live by positive thinking, don't get me wrong. But I also accept that I am not the usual case and I guess I need something to keep my anxiety/vertigo under control. Otherwise, I am going to go quite literally insane while I herx.

I wish there were truly SOMETHING that helped me at least feel a little better. It seems ALL herbs mess with me. Ever since I found that smoking cannabis causes me panic attacks, I have had issues since 2011 with all of this. The entire time I covered it up with benzos too, completely untreated. I don't even understand how I have been living this long either. Then I came off of the things thinking that it was withdrawal when the reality was I may have had this infection this entire time, simply because of negative Lyme tests and never really checking for any of the co-infections. It's hard to not resent doctors because of all of this.

And not the tables have turned. They put me as more of a serious case now, they know this is serious. I just need to get in with a doc soon who can give me some freaking valium! Ironic, since I hate the stuff and was never even addicted, maybe dependant, but never addicted. Very different. Truth is, it got me by all of these years, so why not now when I need it most? Why not while I treat the infection? Can anyone object to what I am saying? Or do I have a good reason? Just curious. Maybe I am just crazy.

Thank you for the link btw. I always enjoy this information. Unfortunately, most of the time it seems I am my own doctor in this and I just need someone who is at least as intelligent as I am to help manage me. That is not to sound cocky, it's just that I find myself correcting a lot of the loose mistakes the many practitioners have put me through. Ugh, I'm just so frustrated. I need to stabilize.

This is still new to me. I got diagnosed with Babesia and 2 strains of mold on September 1, 2021. This all started on May 15, 2021, when I woke up to not being able to move my legs, having extreme anxiety with a 150-170 BPM heart rate for a month straight thinking, "This again? This has to be MS or something like that" I have been mostly bedridden since, but there were a couple of months where I tried to fight all of this with exercise. That only did so much. Honestly, I think it hurt me more than it beenfitted me.

I still have not started treatment, except for some detoxing. I am in too rough of shape to do anything due to my current issues. I feel like a complete mess. Especially since I have had this for so long, and things have gotten worse. I do not feel comfortable doing anything until I have something that can better manage the anxiety, and nothing works. I have tried everything, except getting back on a prescription, which I have been talked into so I may just do it.

I do have an LLND. Actually, I have two. One is a well-known LLND who has her own book on Lyme prevention, and the other is a doctor who is being overseen by her. Currently I have been taking mainly Multiphase Detox by DaVinci Labs. I actually live in the same state where this is made. I also juice often, as well as eat an extremely clean diet, probably cleaner than most. I believe diet is HUGE in this whole thing.

I assume having this whole thing taking over my entire body has beem a lot. I can;t beleive I am just figuring all of this out. Now I have to treat it but I fear the reaction I will have will be too much for me. Do you think it'spossible for me to see quick results if I am really bad? I wonder if just a couple of doses will actually make me see soem kind of improvement, but I know it's different for everyone. I understand this isn't something that is easily fixed overnight, but I wonder what it's like for those who had a solid active infection and what its like once the head is cut off from the Babesia and/or Lyme, etc.

Hi Forest,
I have experience with Benzos. I read your post and signed up just to be able to tell you this. Benzos are not a good choice in my opinion. Benzos can be super addictive and cause more problems and anxiety and be nearly impossible to get off of. Might I suggest alternatives before you go that route. . Look up Trudy Scott, A Mind of Your own (book), Mood Cure (book). In addition, With all of the gut issues, detox problems and mitochondria you are probably deficient in vitamins and minerals as well as not converting. The amino acid GABA does wonders for anxiety. The folks and books above discuss this. Genetics can play a role. Functional Medicine doctors can do tests to identify the pathway that isn't working. This can be from mold, parasites, metals etc. It will be unique to you and can target support. Sending you healing energy