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Posted 2/8/2022 10:19 AM (GMT -5)
sdarrah,

I saw you posted this:

“I am suffering severely and next Wednesday I am starting all over with a full workup from top to bottom to desperately get some idea of what the damage is, what damage is causing me to have progressively worse symptoms.”

I didn’t want to hijack Forest’s thread, so I started a new post for you.

I am interested in hearing what’s been going on with you if you are inclined to share.
Posted 2/8/2022 10:41 AM (GMT -5)
Thank you for respecting my thread WalkingbyFaith. It's okay.

sdarrah, I am willing to help if you need it. Like I have said, I am great with planning for others, but not myself. If you are confident in your issues (which I am not), then I have a lot of info that is up-to-date and considered for many a "last resort" for the very sensitive. This is the plan I am going for, but have yet to get out of my moldy home. I know it's hard to want to take advice from a person like me who's losing his mind most of the time, but I am always happy to help when I can, whether its with supplement names or order in which you should use them (and why that order is that way). I know you and others are there for me often, so I thought I would let you know.
Posted 2/8/2022 10:45 AM (GMT -5)
WBF, I would love to update you but please note I lost my fine motor skills and I type with one finger now, it took me almost 15 minutes to even type my post to Forest. (Lol)
It would take an hour to type an update unfortunately.



WalkingbyFaith said...
sdarrah,

I saw you posted this:

“I am suffering severely and next Wednesday I am starting all over with a full workup from top to bottom to desperately get some idea of what the damage is, what damage is causing me to have progressively worse symptoms.”

I didn’t want to hijack Forest’s thread, so I started a new post for you.

I am interested in hearing what’s been going on with you if you are inclined to share.

Posted 2/8/2022 10:55 AM (GMT -5)

Forest said...
Thank you for respecting my thread WalkingbyFaith. It's okay.

sdarrah, I am willing to help if you need it. Like I have said, I am great with planning for others, but not myself. If you are confident in your issues (which I am not), then I have a lot of info that is up-to-date and considered for many a "last resort" for the very sensitive. This is the plan I am going for, but have yet to get out of my moldy home. I know it's hard to want to take advice from a person like me who's losing his mind most of the time, but I am always happy to help when I can, whether its with supplement names or order in which you should use them (and why that order is that way). I know you and others are there for me often, so I thought I would let you know.


Forest, I can try to update you and WBF briefly, I had an OAT test results in Dec with many high markers, my LLMD specifically said definately Candida and/or possible Nasal coloniazation. Also 4th real time followup mycotoxin test showing steady decline in mold levels in system (almost at normal) but obvious symptoms continuing either from mold colonization or candida in intestines, major mitrocondria damage high markers. Intraconozole nasal antifungal spray, argentyn 23, sf722, increases nystatin dose and pulsing Diflucan, still progressing after much detoxing with slurred speech, balance % no change in fine motor. Take Quercetin, atp360 and many suppliments like nac, vit c , glutithione, meriva 500 cucrrmin, probiotics etc.
Posted 2/8/2022 1:07 PM (GMT -5)
sdarrah,

Sorry you have fine motor loss. So it sounds like your mycotoxin levels are going down and symptoms are slowly improving.

Fluconazole and Nystatin helped me for sure. I was just reviewing my notes from back then. I started Fluconazole first in late July 2019. Started Nystatin 1 Nov 19. I did 2 months of just Fluconazole daily and started low and worked up. Once I started Nystatin, I took Fluconazole Fri-Sat-Sun. I didn’t note symptom improvement until after starting Nystatin. I also had a lot of die-off skin reactions after starting Nystatin.

On 19 Nov, I noted the following:

- since getting to full dose Nystatin, I have noticed the following improvements: less chemical sensitivities, less pain, less cognitive problems, less food cravings
- still have worse exercise intolerance (ex. - when rolling up sleeping bag)
- when I first increased to full dose, I had gas, bloating at night and abdominal discomfort, irritability, worse sensitivities, increased pain especially feet and ankles
- last 2 days I noticed some increase in cognitive issues after having improved before that
- did have a flare of skin symptoms in the past week: tiny bumps on back and abdomen that itch, hurt, and scab; bart scratches on shoulder blade after shower
- have had migrating pain, especially feet and ankles, yesterday it was right elbow and hips, occasionally knees or neck
- have higher tolerance for other treatments since Nystatin

I did not have anymore real strong improvements again until adding TUDCA in Jan 2020.

My doc wanted me to take Amphotericin B (low dose oral). She said it was the only drug effective on the hyphal form. I still haven’t done it, but I may soon. I wonder if it might help my ropeworm problem.

Sorry if most of this is stuff I already told you before.

Have you noticed anything in particular being helpful symptom wise?

Can you tell when you’re being exposed to mold, like in a store or office building?
Posted 2/8/2022 1:32 PM (GMT -5)
WBF, I was exposed from my office; a water damaged building; for almost 10 msolid years 5 days a week, 8 hours a day. I take Tudca Complete, actually through your suggestion for last year. I previously took ampho B orally and oral i ntroconazole and still no improvement with the balance or slurred speech. I noticed some progress last year just before diagnosed with mold when I had started Liposomal Oregano capsules given by llmd Dr m R of WA when I was treating suspected Bart.
Posted 2/8/2022 3:47 PM (GMT -5)
Hi sdarrah, just so you know there are speech-to-text applications for both computer and mobile devices.
It might help you. You basically just speak and the words show up.
Sorry to hear that typing is so difficult right now.
Posted 2/8/2022 4:10 PM (GMT -5)
Thank you so much for that information. i never thought of that.

RainyCloud said...
Hi sdarrah, just so you know there are speech-to-text applications for both computer and mobile devices.
It might help you. You basically just speak and the words show up.
Sorry to hear that typing is so difficult right now.

Posted 2/9/2022 2:56 PM (GMT -5)
Yeah I’ve use speech to text and text to speech for a while. It’s gotten much better since early days. On apple devices it’s integrated into keyboards now. You just press the mic and talk and it types out what it thinks you’re saying.

I remember you mentioning a car accident before. We’re you in the mold damaged building before or after the accident?

One of the tests they said for me to do to see if I get better is gently try to pull my head up and see if anything gets better. It did not for me.
Posted 2/9/2022 3:37 PM (GMT -5)
Hi Bailey, I was in a car accident 6 years into mold exposure (of course I didn't know at the time) and went to several ortho doctors an physical therapy, and unfortunately I had the balance problems years earlier.
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