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Posted 4/25/2022 6:22 PM (GMT -5)
My protocol includes flagyl. All I read is how flagyl sucks. Has it helped and reduced symptoms for anyone in their protocol?
Posted 4/25/2022 6:46 PM (GMT -5)

bro123 said...
My protocol includes flagyl. All I read is how flagyl sucks. Has it helped and reduced symptoms for anyone in their protocol?

I can’t attribute any improvement with the Flagyl or Tinidazole.
I also don’t recall it helping with symptoms .
But it is taken with the Lyme and Bart abx - so difficult to say if/what it did.
Posted 4/25/2022 6:59 PM (GMT -5)
I'm taking it on my protocol, but infrequently. On a 2 week on 1 week off protocol I'm only taking it 2 days in a row at the end of the second week treatment cycle. My first round I was definitely herxing towards the end of the second week coinciding with Flagyl use but can't say with any confidence whether that's causation or correlation.
Posted 4/25/2022 7:26 PM (GMT -5)
Flagyl put me into a huge herx, and I don't know if it really helped me beyond stirring up the infections. I use Tinidazole now, and it is more mild for me.
Posted 4/25/2022 7:31 PM (GMT -5)
Lymie24, how is your course going with Dr. J? Feel any improvements yet?
Posted 4/25/2022 9:43 PM (GMT -5)

bro123 said...
Lymie24, how is your course going with Dr. J? Feel any improvements yet?

Didn’t he start with Dr J clinic just two months ago?
If so, I wouldn’t expect improvements yet - but would be awesome if he has improved already!!!
Posted 4/26/2022 4:09 AM (GMT -5)
in his video's Dr J talks about using conventional relatively easy to tolerate abx like doxy, cephalosporins etc as the mainstay for borrelia treatment in the early stages - but these are known to drive borrelia into encysted forms - and so then he uses a pulse or two of one of either flagyl or tinidazole to kill/burst the cysts.

there is some support for this in the literature

its a gradual process of chipping away at the levels of infection a little at a time through each cycle - though - so i wouldn't expect to feel any benefit that i could attribute to flagyl in the early stages - mostly i would expect herx and feeling rough for the first few months

that pretty much the stated aim of the treatment approach - to chip away at the infection at a rate the patient can just about tolerate

hang in there - i think you are in good hands - its just a tough condition to treat
Posted 4/26/2022 10:51 AM (GMT -5)

bro123 said...
Lymie24, how is your course going with Dr. J? Feel any improvements yet?

I am on the second week of treatment in my second round. MWF

The answer to your question is............YES! lol

Obviously there hasn't been a huge change, but I have noticed some improvements. In areas in which some of my of my worst symptoms reside such as neurological and heart/chest pain stuff I have already seen some positive progress. This has been great as constantly feeling like nervous system is on fire with tremors and overreactive along with feeling like you are going to have a heart attack every day can be quite anxiety inducing.

Some additional changes I have made myself that have seemed to help recently are:

*Checking out this guy's leaky gut protocol. GI/Leakt guy has been an issue for me for a long long time.

https://goodbyeleakygut.com/

I haven't followed it strictly yet, but just referencing it in my food choices has made a positive differnce. Some things I have slowed down on that have seemed to help with is decreasing bananas, whole grain bread, Peanut butter sandwiches w/bread), stopping snacking on empty calories (saltine crackers are a big problem for me). In addition I have added in L-Glutamine, a supplement that contains beneficial gut compounds such as slippery elm, aloe vera, etc, digestive enzymes, and betaine hcl w/ pepsin.

I've been doing bone broth daily to break my fasts.

A supplement called "Cytokine Suppress" has seemed to work decently for inflammation for me lately. It has helped me reduce NSAID intake. In that same respect I've tried drinking more green tea.

On my own I added in some herbals for more support over the last two weeks. Hottunyia, Chinese Skullcap, and Cordyceps. I think I pushed too hard last week in addition to my regular protocol and know I've set myself into a pretty good flare. Trying to calm it down now.
Posted 4/26/2022 11:23 AM (GMT -5)
“ I am on the second week of treatment in my second round. MWF

The answer to your question is............YES! lol“

That’s great! So soon!
Posted 4/26/2022 11:25 AM (GMT -5)
In my appointments with Dr.J he has told me flagyl and Tindamax are used for cystbusting, chipping away at the cysts and that many patients herx heavy from them, he prefers flagyl over tinda. I’ve herxed intensely from flagyl but it’s gotten steadily more tolerable over time, seems like I can tell it’s chipping away at them since it’s getting easier
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