For Walkingbyfaith

It has taken me years, literally, to decipher this phenomenon, and I still am not an expert at it.

Now that I am mostly out of mold exposure and stabilized, I can decipher things more easily. I still have a measure of exposure in my car, though, which keeps me in a state of inflammation. I just verified this last week after spending 4 days and nights in a clean rental car in the backyard.

Here’s what I typically experience.

1. My immediate impression of the first breath of air I breathe in an environment is almost always accurate.

2. If my first breath tells me the air is not good, I have two choices - stay or leave. If I stay, I wait to see if symptoms arise. If it’s a typical moldy environment, I might feel burning in my face or scalp or numbness somewhere. If it’s really bad, I will start to feel stiff neck and muscle soreness in my shoulders, upper arms, etc.

3. Sometimes, if I sit down and talk or engage in something, I won’t notice much until after I leave. I get back in the car and then I start having burning and pain. It’s like a delayed reaction. For years, I couldn’t figure out if I was reacting to the last place I went, the car, something in the car, something in the air outside, etc.

I still am not completely convinced these delayed reactions are to the place I just left or also a hypersensitivity to the toxins in the car due to the new exposure or a combination of both. It’s probably both, because outside, I might not have those reactions. They seem to always occur after I get back in the car.

4. Particularly bad exposures or repeated exposures can create an avalanche effect after the fact. If I decontaminate (wash face, head, arms or shower and change clothes), I might recover pretty quickly after exposure. However, the next day, I may have increased inflammation and body pain that continues for days to a week or more.

Thank you both for the replies, it is so maddening to try to figure out what caused it. The motorcycle ride was for 4 hours and the allergies a super high s well as its a seacoast. I can try wearing a mask as much as possible except indoors and compare whats different next weekend, I dont have reactions at my main home.

“I went to a regular PCP today and my weight, with clothes and shoes on, was 99!”


99 lbs is really low -

I went from 135 to 122 if I’m remembering correctly.

No muscle - my legs were scrawny.

I am now 137 lbs and that’s a good weight for me.

***** OMG - I accidentally posted on your post!!!
I got confused - sorry !!****
If I try to fix it - it may make it worse!!! ********


Thats ok,LOL!

Post Edited (sdarrah) : 6/2/2022 12:33:19 PM (GMT-6)

With weight, I go by percentage lost. For instance, when I was really healthy, I weighed just over 170 pounds. Now my weight stays between 151-155. At one point, it was down to less to 147 in the morning and 150 at night. That put me at about a 13% - 14% loss, if my math is correct. At 151-155, that goes to a 9% - 11% loss.

Hardly any muscle loss.

My loss is from Borrelia, rather than mold, as I've lost most fat on much of body. Also, elasticity went with it. So in it appears the weight won't be coming back. That is not always the case, as we have seen a lot of people, over the years, gain their weight back.

I know severe weight loss can be very concerning. Before I knew about Lyme/mold, I was slowly but steadily gaining weight despite no change in diet. Then, in 2015, I got sick with bronchitis, and full blown inflammation followed along with a host of new symptoms. That was when the weight loss started. I went from a plump 114 lbs (4’11” tall”) down to 89 lbs at the lowest.

My first attempt to get help was with a holistic chiropractor who put me on an elimination diet due to the inflammation and my GI problems. I didn’t follow it 100%, but I went from around 92 lbs to 89 lbs with that. I abandoned the diet after a few months, but it still took many months to get back to 91 lbs after moving out of the moldy house.

After several years, I gained more and was a desirable 96 lbs. We moved to the remediated house in June 2020, where I got sicker. I had already started gaining again before moving, but within a couple months couldn’t fit into the new clothes I had bought. The last time I weighed, I was up to a fat 110 lbs. I stopped sugar for several weeks but have cheated recently. I will have to stop more than sugar to lose more now.

Can my campground outdoor atmosphere cause me to react with vertigo, anxiety, and sometimes nausea? Our
trailer is in a campground surrounded by marshland, very damp and lots of moisture. I dont know if its my trailer or just the outside area that I react to??

WBF, that's the hard part, I dont know which it is. I am going tonight and i am going to wear a mask outdoors and not in camper and see if I have any reactions this weekend.

My body probably would have reacted by now in that situation, yes. I hope you continue to feel okay!

Its now been 18 1/2 hours of only staying indoors and still no reactions, fingers still crossed until at least tomorrow.

I can barely walk I have constant balance and coordination problems but I do get up as much as possible

WBF thanks for asking! It went great, from 6:30 Thursday night until Sunday am I was indoors with zero reactions, we went outdoors on a motorcycle ride and I wore a mask, and also no reactions,

I think it could have maybe been a combination of mca activated by animal allergens and super high pollen count, and I had gone for a motorcycle ride without a mask breathing in all that pollen.

I dont really know but hope it doesnt happen again!

Amen! Isnt that true.