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Nervous About Ending Antibiotocs

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Posted 8/8/2022 9:27 PM (GMT -5)
Hi everyone. I was bitten on April 9 ish, tested positive on WB may 15, and started treating immediately after. Initial treatment started with doxycycline only, first only 21 days. Had a horrible herx with many neurological symptoms (severe weakness in limbs, numbness, tingling, slurred speech, etc.) After finding my LLMD, she said 90 days of doxycycline (total, so including the initial 21 days). Herbal treatment includes Samento (cats claw), banderol, and Cumanda. I have reached 30 drops 2x a day with the first two, and still working up slowly with Cumanda with minimal herxing issues.

I am less than 10 days away from being done with antibiotics. They have been quite hard on my body, so I’m very excited! But also a little nervous. I’ve heard of some people becoming worse again after stopping them. I’d say I’m between 80-90% better. I’ve expressed this concern with my LLMD and she has ensured me that we have multiple avenues to explore is something happens, but she doesn’t believe I will back track. I’ve been through a lot emotionally and I’m afraid it has kept my body from truly healing as my anxiety has been very high consistently (both because of illness and other reasons). So I suppose I’m just looking for some reassurance! Not that any of you are doctors and can do that… it’s just nice to share my experience with likeminded people and see what you all think. Any advice/perspective is welcome, as long as you are not providing your own “diagnosis” of my symptoms. (Another “support” group on another app drove me to deep depression because they continued to tell me I would never get better and had other coinfections and yada yada… while I am going to be tested for Bart simply for my own sanity, my LLMD doesn’t believe I have it). I’m not against any “real” advice, but please be kind and understanding.

Post Edited (Piika25) : 8/8/2022 9:03:49 PM (GMT-7)

Posted 8/8/2022 10:40 PM (GMT -5)
Welcome to the forum!
Here’s an excerpt of Dr Burrascano’s Lyme disease treatment document.
Dr B was one of the first Lyme literate doc.:

“TICK BITES - Embedded Deer Tick With No Signs or Symptoms of Lyme (see appendix):
Decide to treat based on the type of tick, whether it came from an endemic area, how it was removed,
and length of attachment (anecdotally, as little as four hours of attachment can transmit pathogens). The risk of transmission is greater if the tick is engorged, or of it was removed improperly allowing the tick's contents to spill into the bite wound. High-risk bites are treated as follows (remember the possibility of co-infection!):
1) Adults: Oral therapy for 28 days.
2) Pregnancy: Amoxicillin 1000 mg q6h for 6 weeks. Test for Babesia, Bartonella and Ehrlichia.
Alternative: Cefuroxime axetil 1000 mg q12h for 6 weeks. 3) Young Children: Oral therapy for 28 days.
EARLY LOCALIZED - Single erythema migrans with no constitutional symptoms:
1) Adults: oral therapy- must continue until symptom and sign free for at least one month,
with a 6 week minimum.
2) Pregnancy: 1st and 2nd trimesters: I.V. X 30 days then oral X 6 weeks
3rd trimester: Oral therapy X 6+ weeks as above.
Any trimester- test for Babesia and Ehrlichia 3) Children: oral therapy for 6+ weeks.
DISSEMINATED DISEASE - Multiple lesions, constitutional symptoms, lymphadenopathy, or any other manifestations of dissemination.
EARLY DISSEMINATED: Milder symptoms present for less than one year and not complicated by immune deficiency or prior steroid treatment:
1) Adults: oral therapy until no active disease for 4 to 8 weeks (4-6 months typical)

2) Pregnancy: As in localized disease, but treat throughout pregnancy.
3) Children: Oral therapy with duration based “
Posted 8/8/2022 11:02 PM (GMT -5)
This is extremely helpful. Thank you so much!

Post Edited By Moderator (Girlie) : 8/8/2022 9:06:00 PM (GMT-7)

Posted 8/8/2022 11:06 PM (GMT -5)
Oops - I started typing in your post - that’s why it shows I edited -

I know it sounds like a lot of abx - BUT you really don’t want this infection to go chronic….
When it’s chronic you could be looking at years of treatment.
So you should treat until your symptoms are gone… and add several more weeks.
Posted 8/9/2022 11:40 AM (GMT -5)
Getting tested for Bartonella and babesia is a good idea. If either are present, they require their own treatment. The multiple infections seem to work in tandem with each other and make it difficult to get rid of the one if others are present. Some LLMDs, like Dr J, treat Babesia first, as they find it easier to successfully treat Lyme and Bartonella that way.

Girlie sees Dr J, so she can explain more about that.
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